05-03-2013, 06:25 PM   #1
ariebl
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Join Date: May 2013
Location: Massapequa Park, New York
Helping children with Crohn's

Hi I am Vice-President of The Ashley Wade Foundation ! Our goal is to enrich the lives of children affected a chronic illness by providing them with care packages, tickets to events, toys and games ! Kids with chronic illnesses are often forgotten when it comes to receiving gifts. The Ashley Wade Foundation has a new program called The Superstars. Superstars are children fighting a chronic illness. We send the children care packages or give them tickets to events. If you know someone with a child or have a child who has a chronic illness, please contact us at [email protected].
05-04-2013, 10:00 AM   #2
Jmrogers4
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Just looked at your website. That is pretty incredible what you are doing. Thank you for posting
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
05-04-2013, 04:05 PM   #3
araceli
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Join Date: Nov 2012
Location: El paso, Texas

My Support Groups:
WOW. Thank you for what you are doing.
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Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
05-05-2013, 11:15 AM   #4
Devynnsmom
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Join Date: Jan 2012
Location: Toronto, Ontario
I just checked out your website. What a great thing you are doing! Thank you
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Samantha, AKA Devynn's mom


Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
05-05-2013, 12:59 PM   #5
CarolinAlaska
Holding It Together
 
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Join Date: Jan 2013
Location: North Central, Illinois

My Support Groups:
This is great! Way to go, Ashley Wade!
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
05-05-2013, 07:54 PM   #6
jmckinley
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Join Date: May 2012
Location: Alabama
What a fantastic thing you are doing! Thanks for sharing!
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