Hi all! I'm a freshman in college, was diagnosed in February 2012. Had some serious ups and downs, including a bout with C-Diff that put me in the hospital for 17 days at the end of 2013, but overall, things have been relatively stable. Counting my blessings there. Currently on Asacol, Remicade, and methotrexate, doc says i have a shot at quitting the methotrexate if I make it through spring with no flares.
Honestly, the worst part of everything for me is mental. The physical part isn't fun, but the mental part is worse. I've never felt right since I got diagnosed. It comes and goes, gets much worse when I've just come off prednisone. It seems like most people who have trouble with prednisone have it while they're on it, mine comes along after I get off it and my hormones are out of whack. Just waking up everyday and not knowing how the day will go. Right before I got C-Diff I had been working out and had gained a bunch of weight and I told my mom I felt the best I had ever felt... Within a couple weeks I was homebound and didn't return to school for two months. I'm just tired.
Honestly, the worst part of everything for me is mental. The physical part isn't fun, but the mental part is worse. I've never felt right since I got diagnosed. It comes and goes, gets much worse when I've just come off prednisone. It seems like most people who have trouble with prednisone have it while they're on it, mine comes along after I get off it and my hormones are out of whack. Just waking up everyday and not knowing how the day will go. Right before I got C-Diff I had been working out and had gained a bunch of weight and I told my mom I felt the best I had ever felt... Within a couple weeks I was homebound and didn't return to school for two months. I'm just tired.