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Crohn's Disease Forum » Support Forum » Vent Away » Need to vent. This sucks!


04-13-2015, 10:11 PM   #1
BlueEyes
 
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Need to vent. This sucks!

I was diagnosed with Crohn's in July of last year. Before that was under control I started having chest pain, around November-December time frame. Daily. Usually about 2 am. I am still dealing with back pain daily. Something as simple as rolling on my side in my sleep can make me hurt for days. I live on a heating pad. I've burned one out since the pain started. I've been on muscle relaxers, ibuprofen daily, indomethacin (my PCp was thinking it might be pericarditis) and now I'm taking Mobic, which is helping me sleep through the night unless I roll on my side. I can't even go for a one mile walk right now without hurting. I'm finally getting my crohn's under some kind of control, and I finally got a referral to a rheumy. But the appointment is May 18th! I have been in daily pain since November people. And if it gets to be more than the Mobic can handle, what the hell am I supposed to take then? I am starting to feel like people are tired of hearing that I am in pain. They have no response when I am honest with them. So now people don't know how to act with me. So this disease has taken away my enjoyment of food, my normal sleeping habits, I cannot sew right now , I am a quilter- it's my stress relief. I cannot take a gentle walk, and now I can't talk to anyone about it?? I'll be all right. I am just incredibly frustrated and there is no end in sight. I just want my life back.
04-13-2015, 10:15 PM   #2
BlueEyes
 
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And I have a rash. On my face. That will not go away.
04-14-2015, 12:17 AM   #3
FrozenGirl
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Ugh that all really sucks. Just when you have the crohns under control. Maybe try calling and asking to be put on a cancellation list to be seen sooner. Or calling every week or two to ask about any openings.
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04-14-2015, 07:23 AM   #4
copeland
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Sorry things are so bad - I always hate having to wait for a doctor appointment when I'm in pain.

Are you still taking ibuprofen? It's generally not recommended for people with Crohn's.
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27 years old, Crohn's since I was 16 or 17.
04-14-2015, 07:48 AM   #5
BlueEyes
 
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No, I am no longer taking the ibuprofen. When I was it was on the advice of my GI doc who is currently managing my crohn's. It was a temporary solution to get me some relief while seeing if the change to Humira would help. It scared me to take it, and the relief it gave me didn't always get me through the night. Then my back pain would flare during the day, and I could only take the ibuprofen once daily before bed. Now I only take the Mobic.
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