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04-23-2015, 03:55 PM   #1
seengi
 
Join Date: Dec 2014
Hi

Hi all.

I've been around this forum for some time now and appreciate your stories and advices.

I have been diagnosed in my mid 20's and that has been quite a shock for me.
Unlike a lot of people here it started all of a sudden : some day I woke up sick, I was feeling nauseous and had bad cramps. Long story short, a month later, I was in the ER, having lost 12kg with bad fever feeling like, well, too tired too feel much in fact.
I was told something like "Hello there, have you heard about CD? Well, there's no cure, but we have some treatments and there's also surgery. But for now we will start with steroids and their nice side effects, have a good day sir."

No need to tell you that I had a bad time dealing with this.

In the first months, I tried to convince myself that it was a mistake, that the scope report just say that the lesions were "compatible with CD" and that the thickening that showed up on CT scan was just, well, something else.

But as the time passed, I met my new friends : urgency, mucus, weird poops, lots of poops, more urgency, and you know what follows.

I read a lot, here (thanks for that awesome forum by the way) and around and that helped me figure out some things.
I tried improving my diet too, and that helped me too.

So, that's my story.
04-23-2015, 07:10 PM   #2
mamalana
 
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Join Date: Mar 2015
Location: Houston, Texas

My Support Groups:
Nice to meet you, welcome!
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Dx Crohn's 2014

Current Rx:
Remicade (starting 2/16/16), Imuran, Celebrex, Flovent (for EoE), Singulair

Previous Rx:
Prednisone (pure evil), Budesonide (bad reaction), Prilosec, Bentyl, Protonix, Cimzia (failed after 4 months), Humira (failed after 7 months)
04-26-2015, 09:33 AM   #3
David
Co-Founder
 
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Join Date: Feb 2006
Location: Naples, Florida
Welcome to the community. Thank you for sharing your story.

What medications are you on and how are they working for you?

All my best to you.
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It's good to be back
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