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04-23-2015, 07:10 PM   #1
my little penguin
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New diet Ibd

http://www.researchgate.net/profile/...be92e18ee6.pdf

Anyone hear about this diet yet?
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04-23-2015, 07:22 PM   #2
crohnsinct
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Ummmm...well you know I have. Pretty similar to what we are supposed to be following with T.

I think Maya posted about the emulsifiers on T's thtread. It also appeared in the adult section of the forum. I had read about it before also.

I have a folder from the dietician from our hospital chuck full of research on diet and they all are bout the same as this one.

The way I feel about it, once I made the decision to go with the meds, the decision to try diet is easy. If it helps...great. If it doesn't...still great.

Supposed to help with arthritic inflammation also.
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
04-23-2015, 07:26 PM   #3
Maya142
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That article about emulsifiers is on Medscape I believe. Very interesting - wish I had a kid who'd agree to try diet! We've done gluten free and that didn't help so she thinks ALL diets won't help
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
04-23-2015, 07:36 PM   #4
my little penguin
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Gi gave DS a choice
He feels crummy and felt better on EEN for 10 days so adding one food at a time very slowly to figure out what is irritating his Gi tract .
04-25-2015, 09:14 PM   #5
Farmwife
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What is this diet? The link won't let me thru. I just want the outline?
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
Azathioprine
04-25-2015, 09:25 PM   #6
my little penguin
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http://www.crohnsforum.com/showthread.php?t=71691

Abstract posted in this thread

Basically only 15 specific foods allowed plus formula
Nothing else
04-25-2015, 09:28 PM   #7
my little penguin
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http://mobile.journals.lww.com/ibdjo...icle=00007#ath

Try this link
04-25-2015, 09:31 PM   #8
my little penguin
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Partial enteral nutrition with a Crohn's disease exclusion diet is effective for induction of remission in children and young adults with Crohn's disease.

Title of the paper

http://www.ncbi.nlm.nih.gov/m/pubmed/24983973/

At the bottom a link to full text providers
Which lets you chose lww as a non professional which leads to the paper.
04-26-2015, 09:20 AM   #9
crohn'smakesmeangry
 
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what are the 15 foods that are allowed? Never mind i see it now
04-26-2015, 01:00 PM   #10
24601
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Redundant post as MLP later posted list of allowed foods

Last edited by 24601; 05-08-2015 at 02:09 PM.
04-26-2015, 01:05 PM   #11
24601
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Maybe it's just me but I feel like clarification is needed on the beverages. When I first read the line that says "water, soda, herbal teas" I was shocked because I thought they were saying that sodas (meaning soft drinks) were allowed and clearly it later states (as you'd expect!) that they are not.

I guess they mean soda water but perhaps I'm not the only one who finds that confusing.
04-26-2015, 01:12 PM   #12
my little penguin
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Realize this only the 6 week diet instead of 6 weeks of EEN since some kids can't handle doing EEN for that long.
04-26-2015, 01:18 PM   #13
crohnsinct
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Good point and clarification MLP. My daughter is on a version of an IBD diet. A combo of what has come out of the research in Israel, Japan and Umass.
Many more foods are allowed there BUT they are all whole foods, no sugar, no dairy and very little meat and seafood. But this was added once she had completed her 6 weeks exclusive enteral nutrition and it has been a slow transition.
04-26-2015, 01:31 PM   #14
my little penguin
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The paper has a second diet for weeks 6-12.not list on the website
DS is ready for that one yet .
Gi will provide that one once we get there
04-26-2015, 04:28 PM   #15
24601
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Very interesting to see that they had good success inducing remission using the diet alone (albeit for a very small sample size). Good to know for those who can't tolerate the formulas.

Crohnsinct - I'd be really happy to hear more about the phase of the diet that your daughter is doing and the process of reintroducing more foods. Always interested in diet research
04-26-2015, 04:29 PM   #16
Farmwife
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Grrrrr my hubby and I could read the study posted in post # 7 but not the others. My laptop hates me.

We still couldn't see the 15 food you could have.

I'm thinking of sending this to Grace's GI and asking what she thinks.
04-26-2015, 05:03 PM   #17
my little penguin
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Why would Grace need this ?
This is used to induce remission not as maintence meds...
Only works for 6 weeks .

Is her GI tract flaring ?
I thought only her JIA was flaring not her ibd ....
04-26-2015, 05:39 PM   #18
24601
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My little penguin, my understanding just on a quick read is that they do suggest avoiding or minimizing consumption of a lot of these foods after the six weeks so in that respect this is surely still a useful basis for a maintenance diet.
04-26-2015, 05:44 PM   #19
my little penguin
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There are two diets one for weeks 0- 6 and then a less strict one for weeks 6-12
But not a maintance diet.
04-26-2015, 06:23 PM   #20
pdx
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Thanks for posting the link to the study, MLP. The link between IBD and diet is so interesting. We've found my daughter's symptoms are very responsive to diet, and she also responded very well to 90% EN with Peptamen.

What still leaves me scratching my head, though, is that the ingredients of the formulas used for EN are not what you'd think would work. The unflavored Peptamen that my daughter used for EN has maltodextrin as its first ingredient, and also contains cornstarch, soybean oil, and guar gum. The first four ingredients of Modulen (used in this study) are glucose syrup, casein, sucrose, and milk fat. It's just strange how in the study's discussion section, the authors talk about how ingredients like maltodextrin, sugars, milk fat, and emulsifiers have been linked to intestinal permeability. (I'm not trying to say that the formula ingredients are bad--they worked really well for us!--but just that they don't make sense to me.)

The study's list of acceptable foods looks a lot like what my daughter ate for her 10% food, but we also found that she did well with low lactose dairy like yogurt, lactose free milk kefir, and cheddar cheese.
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Daughter E (15) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (currently on 9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (15 mg weekly)
vitamin D, folic acid, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Topical clobetasol for Remicade-induced psoriasis
04-26-2015, 06:41 PM   #21
Momtotwo
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why don't I see the 15 foods?
04-26-2015, 06:48 PM   #22
Momtotwo
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ah found it. This fascinates me. My kid has been living on chicken..one of the allowed foods.
04-26-2015, 06:59 PM   #23
my little penguin
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They are listed in the appendix
Allowed daily meals : foods may be grilled fried baked boiled or broiled
Unlimited chicken/fish
Fresh unprocessed beef steak ( lean meat such as sirloin ) once a week
White rice
Rice noodles
2 fresh potatoes peeled not frozen and not consumed at same meal
2 eggs
2 tomatoes
2 cucumbers peeled
1 carrot ( shavings )
Fresh spinach ( side portion)
1 apple ( peeled )
2 bananas
1 avacado
Few strawberries
Slice Melon
Allowed condiments for cooking
Olive oil
Canola oil
Salt pepper paprika cinnamon stick
Fresh herbs ( mint leaves oregano coriander Rosemary sage basil thyme)
Fresh onion or garlic or ginger
Fresh carrot shaving for salad rice or soup
True honey
Table sugar (2-3 teaspoons a day for cooking or tea)
Beverages -soda water , water herbal teas
One glass of freshly squeezed Orange juice daily ( not from cartons or bottles)


Not allowed
Dairy products of any kind margarine
Wheat breakfast cereal breads and baked goods of any kind yeast for baking
Gluten free products not listed above soya products potato or corn flour
Processed or smoked meats and fish (sausages luncheon meats salamis fish sticks)
Sauces salad dressing syrups or jams of any kind
Canned products or dried fruits
Packaged snacks (potato chips pretzels popcorn nuts etc)
All soft drinks fruit juices and sweetened beverages alcoholic beverages coffee
Candies chocolates cakes cookies and gum
04-26-2015, 07:05 PM   #24
my little penguin
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DS normally likes the allowed foods when his stomach is hurting anyways so
Not so hard so far
04-27-2015, 09:41 AM   #25
kimmidwife
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Very interesting but we are in a similar boat to Maya. My daughter refuses to try diet. I am going to really really try to push this with her.
Looking at the list MLP posted, the doctors have always told us no fresh fruit or vegetables during a flare. But this list has some fruits and veggies on it. It seems contradictory.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.

Last edited by kimmidwife; 04-27-2015 at 09:54 AM. Reason: Spelling
04-27-2015, 11:31 AM   #26
my little penguin
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I think there is a big difference between raw and fresh
Fresh veggies/fruits means you can't buy and cook frozen or canned.
At the top it states you can cook the following foods
So if veggies /fruits bother your kid then cooking them is an option.
This is not a one diet fits all just an option for those who can tolerate EEN for 6 weeks .
Also the fruits listed are known to not iritate most guts ( again not all)
Since all are soft mushy except apples
The veggies are extremely limited carrots are shavings only etc...
But nothing states they have to be in a raw state just fresh .

Just like any other diet this will not work for most
May only work for a few.

DS wasn't in a full flare but because we held his humira so long he needed a boost to move forward so that is why we chose this route vs 6 weeks of full EEN
04-27-2015, 07:39 PM   #27
CrohnsKidMom
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24601, I think soda water just means carbonated water. I think a little sodium is added in the process, but no other flavouring or sweeteners. Like Perrier, perhaps?
I like this list. The allowable foods make up the bulk of my son's diet. One should be a bit cautious about the onions and garlic though. I know they are good for you, but can cause digestive issues in some. Also, honey should not be given to very young children.
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04-27-2015, 07:51 PM   #28
my little penguin
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The main thing about this diet is at least 50% of the calories need to come from formula because it increases the chance of success and two the diet does not any calcium and very little fat which growing kids brains need
04-27-2015, 08:38 PM   #29
my little penguin
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http://online.ccfa.org/site/DocServe...df?docID=27003

Explains the differences in some diets
07-05-2015, 01:49 PM   #30
Pilgrim
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I put an inquiry into using this diet with her 70/30 EN as she is in flare.

I am curious if it is on the radar at our hospital.

How's it going?
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Mom to daughter,age 5, diagnosed at age 3 with Crohn's Disease
Current Treatment: Humira (started 12/2014) moved to weekly injections (07/2015), Back to 50% EN orally. Zinc supplements. Calprotectin through the roof.
Previous Treatment: Azathioprine (discontiued 09/14 due to Pancreatitis) Flagyl, Sulfasalazine, EEN, Iron,Vit D, Zinc, SCD
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