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Crohn's Disease Forum » Treatment » Remicade/Infliximab » Remicade antibodies/joint pain?


05-08-2015, 05:41 PM   #1
73monte
 
Join Date: Apr 2013
Location: niagara falls, Ontario
Remicade antibodies/joint pain?

My Daughter has been on Remicade for about 2 years now. Seems to be working well with no issues.

After her last infusion, she had severe joint pain in her knees, shins, and lower back. It subsided in a day or so, and she is fine now.

Has anyone experienced this, and is it a concern?

Is it typical side effects, or would this be a sign of developing antibodies?
05-09-2015, 04:23 PM   #2
momoftwinboys
Senior Member
 
Join Date: Dec 2011
I do not know if it is the same thing or not, but....
My son had back pain during his last two infusions. The second time was worse than the first and had to stop the infusion give him iv Benadryl before finishing. They ran an antibodies test and he had high antibodies and zero remicade left in his system. He had to switch to humira.
Hope they are unrelated but thought I would share...
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Son (age 13) dx Crohn's October 2011 (age 10)
Azathioprine 10/2011-11/2012
Remicade October 2012
krill oil, multivitamin, liquid Vitamin D/Calcium/Magnesium, zinc, pro-thera complete probiotic.

"The decision to have a child is to accept that your heart will forever walk about outside of your body" Katherine Hadley
05-09-2015, 11:13 PM   #3
hedge
 
Join Date: Oct 2011
Location: Mora, Minnesota

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I would talk to her GI and get tested for antibodies. I just had the same thing happen to be and will be getting taken off of Remicade.
05-10-2015, 06:28 PM   #4
73monte
 
Join Date: Apr 2013
Location: niagara falls, Ontario
Thanks for the replies.

Just one day of joint pain could be such a serious sign of antibodies? It seems a little extreme, but as a Father, I've always resorted to wishful thinking. She has no other Crohn's symptoms, and just had an MRE in December which looked very good.

Wouldn't side effects like joint pain continue for weeks?
05-10-2015, 09:22 PM   #5
my little penguin
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Join Date: Apr 2012

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Could be remicade antibodies or juvenile Spondylarthritis ( which would be joint pain for weeks)
JSpA tends to start out slow and build. 30% of kids with Ibd have joint involvement as a EIM .
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