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Crohn's Disease Forum » Diet, Fitness, and Supplements » InstantCoffee Log, rather than bloat the weight gain thread.


 
05-15-2015, 04:54 AM   #1
InstantCoffee
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InstantCoffee Log, rather than bloat the weight gain thread.

I'm starting a log of my personal journey and experiments. I am my own guinea pig, I will take all the risks, because I'm tired of living with this condition, and western pharm has failed me.

History:
Dx 2005ish when I was 14, currently 25. Immediately put on remicade, azathioprine, prednizone.

Remicade got me through HS and stopped working in college. Started having recurring abscesses on my butt cheeks reminiscent of hydradentditis suprativa (not cysts or fistulas) in college. First encounter with dietary limitations.

Switched to Humira after college due to declining health. Didn't help.

Infections got worse, symptoms got worse, eventually I went on disability, bedridden, diarrhea, vomiting every day.

Was off Humira for several months due to abscesses. Started a gluten-free diet and saw a huge improvement. Continued with diet, didn't restart Humira.

Later cut canola, nuts and high fructose corn syrup. Gained 50 lbs.

~2013

Abscesses returned, finally made the link to high sugar intake. 2 months no sugar no dairy, abscesses healed, Crohn's symptoms improved.

Late 2013:
Reintroduced sugar and dairy, over time symptoms deteriorated again, had to cut rice, orange juice and chocolate. ~summer 2014.

Summer 2014:
After some dieting got chocolate back, began to take protein shake to gain weight, go to the gym regularly. Began to have diarrhea again. Stopped going to gym, had to cut out protein shake. Began living on steak, eggs, oats and milk, Later 2014 into early 2015.

2015:
Assuming sugar caused disbiosis went on a 'detox' with vinegar, honey as only carb, eating steak with garlic for supper. Condition continued to deteriorate. Had to cut steak and garlic and later honey as well.

Currently rebuilding and introducing a more fiber based diet with no/ low carbs as a result of research on MAP and AIEC.

Supplements:
-Lauric acid
-Cat's Claw
-Vitamins of various types, most importantly D3, C, methyl b12
-Probiotics
-L-Glutamine


Diet loosely based on pubmed study
http://www.ncbi.nlm.nih.gov/pmc/arti...178/figure/F2/
I can't have brown rice so

Limited meat, chicken only 1-3 times a week
Fish 1-3 times a week
Eggs as needed for protein
Sticky rice daily
Indian Bottle Gourd 1-3 times a week
Milk and cheese to my heart's content for now, I'd like to cut it but I'm afraid I just can't afford to replace the calories at this point in time.
Coconut oil daily in food or milk for lauric acid content and calories

Things I'm testing / trying:
-POM juice on rare occasion
-carrot juice
-Miso
-Raw milk
-Home made kefir
-Sauerkraut
-taurine

Supplements in loose use / testing (take sporadically):
-colostrum
-chromium piccolonate
-zinc piccolonate
-spirulina
-Tribulus for unrelated issues
__________________
Dx 05
Past drugs: Remicade, Azathioprine, Prednizone, antacids, Humira
Current therapy: Diet and supplements.
I'm my own guinea pig.
My log with studies, journal of my experiments:
http://www.crohnsforum.com/showthread.php?t=72046
My Blog
https://beyondtheoddsfitness.wordpress.com/
05-17-2015, 07:41 AM   #2
InstantCoffee
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My diarrhea is gone and now I'm having the opposite problem. I'm not sure of too many safe, low-carb fibers I can eat and most are high satiety, they make me full very fast.

Rice seems to be off the table again, I thought it was safe but now not so much. I believe that's what caused the japanese diet I tried to fail, the fermented bean paste seems okay though, just tastes awful. I ordered an aged Korean type off Amazon for really reasonable price.

http://www.amazon.com/gp/product/B00...?ie=UTF8&psc=1

Trying Taurine as a result of http://www.healingwell.com/community...f=38&m=2540341.
Maybe placebo, I feel really well after taking it.

Pom juice seems to have no negative effect on me unlike most other things high in simple sugars, I have to explanation for this. I only started trying it after someone said their Ayurvedic doctor said to take 2 pomegranates a day for diarrhea.

Tried Pau D'arco again, reacted to it, this stuff's going in the trash, I'm not sure why some say it's great for Crohn's. Makes me squirt out the rear in less than an hour.

If anyone can recommend any good multi vitamins that have:
b12 as methylcobalamin
metals in citrate form
niacinamide

And aren't giant horse pills I'd appreciate it. I'd rather take 5 little ones than 3 giant ones, they literally hurt my throat going down.

I might try getting my meats from a butcher instead of the grocery store.
05-21-2015, 05:45 PM   #3
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Started making my own miso soup with the bean paste, it's actually really good.

I use chicken, eggs, oat flour, baby carrots and kale in home made broth or water, then mix the miso paste in after it cools so I don't kill the probiotics.

Something is giving me cramps and issues, either the kefir or pom juice. Only one way to be sure.
05-27-2015, 09:05 AM   #4
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I'm cutting milk, it doesn't have a perceptible effect on my digestion but my skin problems seem to be getting worse despite whatever I try. I know there's a dietary link but I'm not sure what. Sugar was usually the cause in the past but I've cut my diet to a bare minimum of carbs and I'm still getting breakouts on my back and the lesion on my jaw is filling up again when it was finally getting better.

If my skin clears up I may try small amounts of raw milk, like 1 gallon a week to prevent becoming lactose intolerant. Your body shuts down lactose production when it's not consuming any.

Also I'm trying some bone broth. I'm a bitch sketchy about cow bones though because of MAP bacteria.

Looking at a diet like this:
Breakfast:
Oat bread muffin (oats, egg, butter, salt)
Cup of coffee with coconut oil
+ vitamins and supplements

Lunch:
Meat (chicken, tuna, or other fish)
Strawberries for carbs
Kayle for Vit. K

After work snack:
Pom juice with aloe vera
Possibly another oat muffin if hungry

Supper:
Miso soup (chicken boiled with kayle and parsley with miso paste added after cooling )
Glass of carrot juice for Vit A

Meats will be fried in coconut oil.
Looking to incorporate broths, probably as a quick breakfast.

Tuna at least once a week for selenium

Current supplement plan:
-Taurine
-Monolaurin
-Vitamins: A, C, D, K, methyl B12
-Minerals: Magnesium, calcium, zinc gluconate & piccolonate
-Chromium piccolonate
-Colostrum
-Cat's Claw (need to buy more)
-Tribulus
-Milk thistle
-fish oil
-caprylic acid
-black cumin seed oil

Last edited by InstantCoffee; 05-27-2015 at 09:33 AM.
06-03-2015, 04:46 AM   #5
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Dairy
Modifying my dairy intake was a flop because last weekend I got sick and ended up buying raw milk and chugging protein shake, but it's not all a loss because I figured out an alternative, more likely cause to my skin problems.

Salicylates:
Unfortunately I'm look at salicylate sensitivity as the cause of my recent flares and my acne breakouts and abscesses on my face. The clues all add up nicely but I have to test it to be sure and it's really hard, I'm finding many of my supplements contain some kind of soy / olive oil or extract high in salicylates.

I've got to stop using toothpaste and regular shampoos and find alternatives, I'm using salt and baking soda for toothpaste for now and brushing thoroughly.

A lot of foods I thought were safe might not be. Coconut and olive oil have been hit and miss with my crohn's and this may explain why. When flaring I've had to cut them and the question to me is cause or effect.

Either way my skin seems to get better with salicylates reduced.

Salicylates also means no aloe vera, no strawberries which I just fell in love with.

Experimental fasting diet
But beyond that I might try an experimental diet. A few weeks ago someone made a brief post about trying intermittent fasting for Crohn's and it was promptly deleted. I'm really disappointed with the amount of censorship here, we're all adults and can make decision on what we think is safe with our own bodies. Intermittent fasting is safe and has been used in weight modulation for years.

He explained some of the functions in release of catecholamines ,insulin response and serotonin balance in passing, but I never got to ask more detailed questions.

I passed it off as another anti-inflammatory diet until I found this.
http://www.crohnsforum.com/showthread.php?t=72412

A 2010 study where remission was induced in a patient by balancing their serotonin / dopamine levels.

Now the poster simply said it was 0 calories except some milk and coffee until 5PM, and before eating you should do weightlifting exercises. I don't understand the milk, but they mentioned something about sodium retention and preventing starvation effects. I wish I had time to discuss it with them further.

If I have to willpower to not eat until 5pm I can probably pull this off. I rarely have anything but a small lunch anyway until that time, but that's enough to offset the body's fasted state that induced this response.

If it's not showing positive results I don't intend to do it for more than a week because trying to hammer down a 2000ish calorie diet before bed is rough.

Meanwhile I'm reading about the effects of fasting on serotonin and healing.

Serotonin is a bioamine derived from tryptophan that is highly conserved throughout evolution (Berger et al., 2009). In vertebrates there are two pools of serotonin, one made in neurons of the brainstem and one made in the periphery, mainly, but not only, in enterochromaffin cells of the gut. In those two compartments serotonin biosynthesis is initiated by a different rate-limiting enzyme, tryptophan hydroxylase 1 (Tph1) in the periphery and tryptophan hydroxylase 2 (Tph2) in the brain. Since serotonin does not cross the blood-brain barrier it is believed that each pool of serotonin has a discrete set of functions (Berger et al., 2009) although some neurons of the hypothalamus may be accessible to peripheral molecules that otherwise do not cross the blood-brain barrier. While brain-derived serotonin is a multifunctional neurotransmitter, gut-derived serotonin (GDS) has emerged recently as a hormone able to regulate bone formation, erythropoiesis and regenerative processes
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3696514/

It looks like there's a huge spike around the 48 hour mark but idk if I want to go that long.

I found this
http://www.crohnsforum.com/showthread.php?t=9465
http://mech.fsv.cvut.cz/~smilauer/Cr...fasting_en.pdf

But it's very unscientific. He's just kind of following a theorized cancer treatment which he cites, I haven't read it, blindly, but it works. I see it more of proof of concept than the outline which I'll follow.

He's not technically fasting because he's consuming calories from a fruit / vegetable smoothie, just in very low amounts.

Juice Fasting vs. Water Fasting
Juice fasting is much easier than water fasting. A water fast puts more stress on your vital organs (kidney, liver, heart and intestines) by promoting a faster release of acids (eg. uric acids) and toxins. This process itself could be overwhelming for a person who is doing fasting for the first time. Raw juices supply much needed vitamins, minerals and enzymes, improves cell oxygenation and promotes recovery from sickness.
https://www.knowyourgut.com/the-mira...litis-and-ibs/

May explain the limited calorie intake of milk he suggested vs. a complete fast.

Last edited by InstantCoffee; 06-03-2015 at 05:17 AM.
06-03-2015, 09:17 PM   #6
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Day 1 fasting.

Started off the day with a cup of coffee and a large spoonful of l-glutamine. Had cramps and gas early on, idk if related to glutamine or previous night's protein shake.

As the day went on hunger increased, obviously, stomach felt better, and mood improved dramatically. This could be due to fast or due to being off salicylates.

Experienced unusually high thirst. Some weakness toward end of fasted period (4:00).

Had chicken with cheese and an oat flour cake (oats, butter, salt, baking soda, eggs) but couldn't finish the whole thing. Also had POM juice and protein shake with creatine, l-glutamine and d-aspartic acid. probably should just go with milk, protein shake seems to have adverse effects.

I'll have the POM as my blast of carbs to help absorb the creatine and l-glutamine right before the meal. I'll have to experiment more with DAA to see if it's causing a reaction.

I'm hoping if my condition improves and I can put on about 5 lb.s I can try a 48 hour fast to see if the increased serotonin spike at the 48 hour mark makes a noticeable difference.

Studing a link between the OCTN markers for Crohn's and poor transport of l-carnitine. http://www.sciencedirect.com/science...51729413000086
Propionyl L-Carnitine is being suggested as a treatment. I'm going to see if I can pick some up after work.

Day 2 Fasting:

Slept very well, went to bed late and got up 30 minutes before alarm feeling well rested.

Experiencing some rumbling / gas but BMs have been solid despite the protein shake and DAA I took last night which often leads to looseness.

Stomach started rumbling during morning coffee, not sure what's going on, it's just nescafe and whole milk. I'd like to get more raw milk but I'm down to $30 in my bank until Friday.

I need to pick up a new salicylate-free vitamin K, and moisturizer. My mother just sympathy bought a bunch of my old vitamins I can't have because of salicylates lol.

I'm going to reintroduce Taurine tonight, it doesn't seem to be causing my loss of libido since it's still there without the Taurine. I also want to buy Propionyl L-Carnitine after some promising studies. Home treatments are expensive.

Scale weight: 124.3 I expect it to drop further before it gets better.

Tonight's dinner plans: 2 cans of tuna + cheese and protein shake, then an oat cake at the end of the night. I plan on soaking some oats overnight in milk and pom juice for tomorrow night's dinner after reading about the benefits to digestibility of oats from 24 hour soaks.

I definitely, by result of the fast or the low salicylate diet, am experiencing a psychological benefit. My focus is much higher, I never could focus on pubmed studies like I have been the past few days. My depression went way down.

Last edited by InstantCoffee; 06-04-2015 at 11:55 AM.
06-04-2015, 11:22 PM   #7
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Interesting to see you focusing better by going lower salicylate. May want to look into phenols as well. They're closely associated with salicylates for treating spectrum disorders / cognitive symptoms...which tend to go hand in hand with bowel irregularities as well. Food chemicals tie in with blood brain barrier/leaky brain theories with regard to inflammation.

Fasts beyond 16 hours are pretty stressing on the body. Watch out for hypoglycemia symptoms. Don't want to overdo it.

Have you considered the histamine (aged cheese) or the casein/whey proteins...or both contributing to skin issues? Just curious because dairy is a huge obvious catalyst for my breakouts (face, chest, back). As well as eggs and chocolate too, both histamine related.

Sugar/Fruit/Juices/FODMAPs foods for IBS symptoms/diarrhea? How many grams of sugar do you consume per day? I'm guessing not much because you say you're low carb.

Oats / other non-wheat grains contributing to leaky gut? All grains contain prolamins (a category of proteins) which are considered to be indigestible. Even the orzenin protein in white rice which some label as a safe starch. I read that this can contribute to dysbiosis and gut permeability because they can either pass through the intestinal barrier or get consumed by certain bacteria that eat protein. Additionally I have notes that oats have saponins (avenacin) and lectins which add to the leaky gut effect. How do you handle "safe" starches like white potatoes (nightshade, questionable), yams, sweet potatoes?

I think safe starches, fats, and extra protein are viable options for weight gain while trying to avoid the symptoms from food chemicals and sensitivities.

Last edited by WingedVictory; 06-04-2015 at 11:48 PM.
06-05-2015, 05:28 AM   #8
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Interesting to see you focusing better by going lower salicylate. May want to look into phenols as well. They're closely associated with salicylates for treating spectrum disorders / cognitive symptoms...which tend to go hand in hand with bowel irregularities as well. Food chemicals tie in with blood brain barrier/leaky brain theories with regard to inflammation.

Fasts beyond 16 hours are pretty stressing on the body. Watch out for hypoglycemia symptoms. Don't want to overdo it.

Have you considered the histamine (aged cheese) or the casein/whey proteins...or both contributing to skin issues? Just curious because dairy is a huge obvious catalyst for my breakouts (face, chest, back). As well as eggs and chocolate too, both histamine related.

Sugar/Fruit/Juices/FODMAPs foods for IBS symptoms/diarrhea? How many grams of sugar do you consume per day? I'm guessing not much because you say you're low carb.

Oats / other non-wheat grains contributing to leaky gut? All grains contain prolamins (a category of proteins) which are considered to be indigestible. Even the orzenin protein in white rice which some label as a safe starch. I read that this can contribute to dysbiosis and gut permeability because they can either pass through the intestinal barrier or get consumed by certain bacteria that eat protein. Additionally I have notes that oats have saponins (avenacin) and lectins which add to the leaky gut effect. How do you handle "safe" starches like white potatoes (nightshade, questionable), yams, sweet potatoes?

I think safe starches, fats, and extra protein are viable options for weight gain while trying to avoid the symptoms from food chemicals and sensitivities.
I'm not 100% sure if salicylate consumption has an effect but avoiding topical application has cleared up my skin breakouts, except my facial abscess continues to fill up but that might be my protein shake which I'm going to stop taking again because it's been causing diarrhea and gas. It may be a coincidence and something else in the soaps I was using were causing it, but the thing is I've been using shower gel on the rest of my body and fancy soaps + coconut oil on my face, scalp and shoulders. The shower gel was on a salicylate free list, and the rest of my skin is fine, meanwhile my face, scalp and shoulders are red and inflamed and break out regularly.

I've looked at amines before and the foods don't seem to have any link to things I'm sensitive to enough to be concerned. I'll look at phenols.

If I do a 48 hour fast it will probably be calorie-limited with small amounts of juice throughout the day. I also need to research electrolyte balance and how fasting effects it so I can make sure that's not an issue.

Currently my protein shake is causing symptoms, sugars often do, I reintroduced it temporarily because sometimes it seems to have a calming effect when other things are causing symptoms but if i take it for too long it reverses. I believe it's the maltodextrin in it since studies already show how bad that is for Crohn's. Unfortunate they couldn't have left it out, it's otherwise a great product.

Oats are the only grain I consume and have thus far shown no adverse reaction. I can't have white potatoes, I haven't tried sweet potatoes in a long time.

Dairy seems to be a safe bet for me and modifying my dairy intake hasn't had much effect on my skin or digestion. I'd prefer to be on raw milk rather than pasteurized but I can't afford it until next week.

When I come home from work I immediately drink a glass of POM juice with glutamine, creatine and DAA in it to quickly absorb them, plus take a few of my pills.

Then I eat my supper and follow with more POM. Supper is meat + cheese.
Appetite permitting I'm hoping to add an oat flour muffin after, but I think the protein shake has been causing appetite cessation and adverse effects, when I eliminate it my appetite should come back.

As my symptoms improve I'm going to look at adding fruits, vegetables and maybe lentils.

I'm also aiming to understand the effects of sugar on my system.
Sugar causes loose stool and presence of increase bile in it. I want to better understand what causes increased bile in stool, decreased bile absorption, or increased bile production, and how sugar effects it.
http://www.ncbi.nlm.nih.gov/pmc/arti...379072/?page=1
I just finished reading this study that suggests a high sugar diet promotes fermentation of colonic bacteria, but not bacteria in the small intestine.

There is a change in secondary bile acids but not primary, there's an increase in faecel lithocholic acid and deoxycholic acid, but not a marked increase in primary acids.

Total gut digestion slowed down with increase of sugar intake, it's believed to be related but they can't prove it.

Admittedly I know nothing about bile and this is something I need to go research.

Further research on bile acids:
Bile is released by the liver where it is conjugated with taurine or glyine to form 8 conjugated bile acids or bile salts which are water soluble due to their pH levels and more effective.

I know Taurine has been suggested as a treatment for UC and possible Crohn's in something called rapid induction therapy.

When these bile acids are secreted into the lumen of the intestine, bacterial partial dehydroxylation and removal of the glycine and taurine groups forms the secondary bile acids, deoxycholic acid and lithocholic acid. Cholic acid is converted into deoxycholic acid and chenodeoxycholic acid into lithocholic acid. All four of these bile acids can be taken back up into the blood stream, return to the liver, and be re-secreted in a process known as enterohepatic circulation.[2][3]
So the question arises, is there an excess production of bile, is the bile not being conjugated and that's why it's not being converted by bacterial dehydroxylation and reabsorbed, or is the bacterial dysbiosis of the gut preventing dehydroxylation?

http://en.wikipedia.org/wiki/Bile_acid_malabsorption

Most likely it's not overproduction but failure to reabsorb. So my next question is, is this a cause or an effect?

The ileum is very efficient at absorbing the glyco- and taurine-conjugated forms of the bile salts. The apical sodium-dependent bile salt transporter (ASBT, IBAT, gene symbol SLC10A2) is the first step in absorption at the brush-border membrane. The cytoplasmic ileal bile acid binding protein (IBABP, ILBP, gene symbol FABP6) and the basolateral heterodimer of OSTα and OSTβ transfer bile acids through and out of the cell where they eventually enter the portal vein. These bile acid transporters are all highly expressed in the ileum but not in the liver, jejunum or colon.[4] When expression of these specialized transporters is reduced, the intestine is less efficient at bile acid reabsorption (Type 1 bile acid malabsorption). If intestinal motility is affected by gastro-intestinal surgery, or bile acids are deconjugated by small intestinal bacterial overgrowth, absorption is less efficient (Type 3 bile acid malabsorption). A very small proportion of the patients with no obvious disease (Type 2 bile acid malabsorption) may have mutations in ASBT,[5] but this mutation is not more common in most patients and does not affect function.[6]
I'm going to try psyllium husks as they seem to be an OTC variation of cholestyramine with less side effects.

There is a worry of reduced absorption of vitamins, but if I'm doing intermittent fasting I can take my vitamins at a time far spaced out from my food when I'd have to take the husks for their effect.

http://www.ncbi.nlm.nih.gov/pubmed/6673068

Patients with Crohn's show a low level of Taurine conjugated bile acids but a normal level of Glycine conjugated bile acids as compared to controls, making an abnormally high glycine to taurine ratio of bile acids, supporting Taurine supplementation further.

Last edited by InstantCoffee; 06-05-2015 at 11:43 AM.
06-07-2015, 08:39 AM   #9
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I picked up psyllium husks, boswellia and DHEA Friday, and I ordered propionyl l-carnitine online because I can't find it in stores around here.

It's sold as GPLC as an exercise supplement and men's sexual wellness enhancer, it could be the people I asked about it simply didn't know they had it and I didn't know about GPLC as a name until I left my usual store.

Studies were done on 4g and the only one I found was an l-carnitine complex with 300mg per pill, 60 capsules a bottle, $35. Hell to the no.

I read a study on DHEA confirming my theory I had about 2 years ago on its benefits for Crohn's disease, never have I felt so validated! I went and bought more.

As of yesterday I weighed in at 125.8 vs. starting weight of 124.3 a few days before. I weigh at a stable time of the day, in the morning post bowel movement, so there should be little room for difference in retention and stuff.

I'm not sure what's working but it's definitely working between kicking salicylates and intermittent fasting.

My calorie intake is actually lower because I'm eating roughly the same size dinner as usual, maybe SLIGHTLY larger but no lunch.

Bowel movement quality has improved, less gas, no floaters from poor fat absorption.

I've started sipping a mix of pom and carrot juice through the day to stabilize electrolytes but in small enough amounts to remain in a fasted state hopefully. It's about a liter of water, 1/2 cup carrot and 1/4 cup pom juice to last 8+ hours.

I'm going to experiment with psyllium husks and sugar today to see if they allow me to eat sugar without producing bile filled BMs.
06-17-2015, 07:40 AM   #10
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The first week went great, but this weekend I decided to try not fasting.

Psyllium husks opened the door to certain chocolates and treats that caused me problems in the past, but has a limited effectiveness.

Friday I got adventurous and tried a natural chocolate from the health food store with caocao nibs in it resulting in some bloating and stomach discomfort.

I've had increasing gas levels since Saturday night / Sunday and not sure what's causing it. I've been experimenting a bit too much maybe, I had tried Hershey's chocolate, a buttermilk powder, introduced a new supplement called MSM, tried two types of bacon, and 100% maple syrup.

Monday my usual juice drink seemed to be sending me on bathroom trips, I wonder if I imbalanced my gut flora with the sugar. They Hershey's bar is my #1 culprit, but still experiencing gas / diarrhea 2 days out.

I'm trying soaking my oats because it's supposed to increase digestibility and also going off my fast, but if I don't see an improvement in the gas / bathroom frequency soon I'll go back on it.

Current supplement regimen:
-DHEA
-D Aspartic Acid
-GPLC (propionyl l-carnitine)
-Taurine
-Creatine
-Weekly Vit D
-Fish oil
-Boswellia
-Magnesium
-MSM
-Nightly DMSO application

Possibly related:
Hidradenitis Suppurativa flare on face has not been looking good. I've been applying a salve of DMSO with colloidal silver and tea to it but it's been growing quite large and painful.

I put a hydracolloid bandage on it sunday and removed it yesterday, it opened and I drained a LOT of fluid from it, then applied more DMSO with tea, silver, magnesium and zinc to it. I've heard HS responds to zinc and magnesium and may be viral. I'm not sure if the oral magnesium and zinc I used are actually capable of penetrating the skin or dissolving in the DMSO though.

It's really disconcerting to learn that HS is known to be linked to Crohn's yet none of the 7-10 doctors I've seen regarding it have mentioned it as a diagnosis or even being related to my Crohn's.

Bookmarked reading for later further investigating serotonin / dopamine therapy:
http://www.crohnsforum.com/showthrea...039#post872039
http://www.healingwell.com/community...f=38&m=2621363
http://www.steinorthopedic.com/pdf/aminoacidtherapy.pdf
http://www.livestrong.com/article/18...otonin-levels/

I'm very interested in this, it directly related to the success of treating with IF and DHEA. Maybe Crohn's flares and depression are more closely linked than just being sad about pooping and hurting?

Interesting facts:

"Tyrosine, not tyramine, is the precursor to catecholamines. Tyramine is a breakdown product of tyrosine. In the gut and during fermentation, tyrosine, an amino acid, is decarboxylated to tyramine. Under ordinary circumstances, tyramine is deaminated in the liver to an inactive metabolite"

I tried https://en.wikipedia.org/wiki/Phenibut phenibut once and had adverse effects in the next 12 hours, wonder if it's related, it acts on the neurotransmitter amino acids similar to benzodiazepines.

Reading suggests avoiding foods high in tyramine as they can displace amines such as dopamine which may be counterproductive:

https://en.wikipedia.org/wiki/Tyramine


" tyramine can also displace stored monoamines, such as dopamine, norepinephrine and epinephrine, from pre-synaptic vesicles."

Foods containing considerable amounts of tyramine include meats that are potentially spoiled or pickled, aged, smoked, fermented, or marinated (some fish, poultry, and beef); most pork (except cured ham); chocolate; alcoholic beverages; and fermented foods, such as most cheeses (except ricotta, cottage, cream and Neufchâtel cheeses), sour cream, yogurt, shrimp paste, soy sauce, soybean condiments, teriyaki sauce, tempeh, miso soup, sauerkraut, kimchi, broad (fava) beans, green bean pods, Italian flat (Romano) beans, snow peas, edamame, avocados, bananas, pineapple, eggplants, figs, red plums, raspberries, peanuts, Brazil nuts, coconuts, processed meat, yeast, and an array of cacti.
Lets see, things on that list that don't agree with me:
pickled / smoked / fermented food, chocolate, alcohol, yogurt, teriyaki, banana, nuts, that I'm aware of. Others I simply don't eat / try.

Cheeses however seem safe, so maybe no connection / purely coincidental.

I've made my own miso soup with soybean paste and had no negative effects. Sour cream seems safe, as does high intake of most meats.

http://www.nrlc-group.net/procedures...Tryptophan.php

Milk is extremely high in L-tryptophan which could explain why so many Crohn's patients react poorly to it.

https://en.wikipedia.org/wiki/Mucuna_pruriens

http://www.healingwell.com/community...f=38&m=2152224

I just found my multi-vitamin has all the sufficient co-factors for the Serotonin therapy, I just need to buy the tyrosine, 5htp and cysteine. Going to try this after work.


Wild Oregano Oil & Thyme Oil
http://www.healingwell.com/community...f=38&m=2970239

Last edited by InstantCoffee; 06-17-2015 at 12:33 PM.
06-18-2015, 07:50 AM   #11
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Yesterday I got progressively worse throughout the day after my morning routine so it had to be either MSM or the maple syrup. I was in extreme pain from the gas around mid afternoon and considered leaving work early. Instead I took a break, sat in the car in the fetal position and farted for 15 minutes straight and that got me through the next 2 hours.

Last night before bed I took an extra large dose of MSM and was gassing it all night, I think I found my culprit but not 100% sure yet. The gas started this weekend, and my MSM arrived Friday night. I don't' remember it being bad on Saturday though, I was out all day and didn't have issues to my recollection, but my dosing was super low too.

Monday wasn't terrible, then I had the chocolate bar monday night, then tuesday was not great, but wednesday was the worst and most food based antagonists are gone in 12-24 hours, so shouldn't be residuals from the hershey's bar unless it upset the balance and allowed other things (maple syrup and POM juice) to continue to feed gut bacteria.

Hershey bars do contain emulsifiers which are known to exacerbate AIEC.

I'm back on intermittent fast until this sorts itself out.

After yesterday's reading I stopped by the store and bought:
- L-tyrosine
- 5-HTP
- L-cysteine
- oregano oil
- thyme extract

I like this approach because it does a couple things:
1. The neurotransmitter issue approaches form a new angle, instead of trying to add back in lacking nutrients, it tries to repair the processes that cause them. I had good success with IF which is directly linked to neurotransmitter stabilization via increased dopamine and gut serotonin levels.

2. The oil approach directly targets invasive bacteria on a level other at-home therapies cannot.

If it was the MSM causing it, then I'll have to see what the mechanism of that is and why it was recommended in the first place (it's considered similar to DMSO, a powerful anti-inflammatory).

If it was the sugars I was eating, then the therapy I was trying was just that. I don't want a therapy, I want a treatment. If it's not opening doors in my diet it's not actually targeting my disease, just my symptoms. Being asymptomatic is cool and all, but I want to fight back.
06-18-2015, 02:28 PM   #12
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bacteria is not the whole picture. it absence or wrong type just makes the gut line populated with immune cells and creates the pain. This is the manifestation, but not the cause of the inhibition of the cellular apoptosis and the bad cellular signaling.

Also chemicals and food types are not the whole picture because this is not an allergic reaction.

intermittent fasting is not going to work if you are loosing weight, because your endogenous glucose production is going to increase the cells anabolism no matter that you do not eat.

You need to become insulin resistant on low sugar cellular environment using diet. the feeling is like you do not have energy, you cannot concentrate and you can ending gaining a bit of weight. when you feel like that you need to exercise to adapt the mitocondria to this low glucose environment.

dopamine is a precursor of adrenaline, with a similar molecular structure. Dopamine is a catecholamine and if of course heavily implicated in any autoimmune disease. lots of autoinmune patients, specially girls and women, takes antidepresants and some of them have effects on dopamine.

Have you ever checked your sugar levels during the 24 hours of the day?
I understand food isn't the whole picture, it's symptomatic of the greater problem, but identifying a trigger is important in identifying a safe and balanced diet.

Treating for bad bacteria is shown to be extremely effective so I don't think it should be discounted, even if the bacteria are also a product of the condition rather than the cause.

What are your feelings on the serotonin - dopamine treatment? Basically loading l-tyrosine and 5-htp onto a patient (mostly tyrosine) and forcing the body to balance neurotransmitter levels by creating a competitive environment?

The problem is that fasting could possibly conflict with it. Can't modulation of cortisol levels have a negative effect on hormone levels (like testosterone) which could cause a drop in dopamine? I don't really have a firm grasp of their connection but I know they are related, and that your dietary cycle effects dopamine / serotonin levels through the day. The doctors don't describe diet as it relates to their treatment.

I'm on my second dose today, many people reported diarrhea from the 5-HTP and I've thankfully had none so I'm already optimistic for that, and my depression is gone. I felt so giddy last night I started laughing for no reason.

I fasted to 5:00 for 2 weeks, I tried coming off the fast this weekend because I wanted to see if it was the fast or the supplements working. I can't say whether it was breaking the fast that hurt me, I believe though that the MSM was the prime culprit and I'm going to stop taking it.
06-18-2015, 03:21 PM   #13
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The relationship between cortisol and testosterone is that they are created from the same resource pool - but cortisol comes first. If your body is producing too much cortisol it can become starved of the cholesterol it needs to produce testosterone.
06-18-2015, 10:22 PM   #14
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InstantCoffee: what protein shake do you use?
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Currently on: Colazal, Prilosec, multi-vitamin, probiotics, total EFA's, glucosamine.

Previous meds: Sulfasalazine, Asacol, Rowasa, Pentasa, Entocort.


"Adopt the pace of nature: her secret is patience. -Ralph Waldo Emerson"
06-19-2015, 05:02 AM   #15
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InstantCoffee: what protein shake do you use?
I use Russian Bear 5000, it's a mass gainer imported from Russia and the only one that doesn't make me extremely sick.

I believe it's because it uses glucose polymers instead of sucrose or fructose. It also contains your daily vitamins and minerals as well as some supplements that may help with crohn's like colostrum.

That said, since they started adding maltodextrin I hesitate to recommend it for long-term use by crohn's patients.

I just found Jay Robb's all-natural protein yesterday

http://www.hihealth.com/jay-robb-whe...ate-12-oz.html

I haven't tried it but it looks very safe, the ingredients list is super clean, but it is a PROTEIN shake not a mass gainer, and I want one for an infusion of liquid calories with low satiation. A protein shake is typically low in calories.

I would also say that ON Gold Standard is *probably safe* because it's one of the few that doesn't have sucralose (a fake sugar) and a huge list of other added ingredients.

http://www.vitaminshoppe.com/p/optim...1#.VYPoK_lVhBc

Protein Blend (Whey Protein Isolates, Whey Protein Concentrate, Whey Peptides), Cocoa(Processed with Alkali), Lecithin, Natural and Artificial Flavors, Acesulfame Potassium, Aminogen®, Lactase.

That said when I tried it it DID upset my stomach, but I've had a hit or miss relationship with chocolate and vanilla flavoring that many do not.

My bet is that cortisol and starving to low sugar levels is much more important to treat any autoimune disease than testosterone levels. low testosterone increase immune system yes, but the action of high cortisol prevails to shut down immune system.

also a high cortisol and low test ratio does not mean a low basal testosterone blood levels.

low testosterone, low cortisol could be terrible btw, you have point this very clear.
I'm not sure I entirely understand the role on insulin but I'll try to learn more. I've seen Chromium Picolonate recommended as a Crohn's supplement due to its effects on insulin but never understood why.

It seems counter productive to your recommendations though. It says it increases insulin receptor sites.

Good or bad?

http://www.demorton.com/Tech/Crohns-AlanGraham.htm

Last edited by InstantCoffee; 06-19-2015 at 05:26 AM.
06-20-2015, 04:31 AM   #16
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Alright, I won't bother with chromium.

I've restarted fasting thursday and friday. I'm kind of still in recovery from the MSM so hard to gauge progress, I sort of have to restart from where I was, the MSM made a real mess of my stomach.

I don't really have access to diabetic testing supplies. Idk if you can get that without a prescription? Plus I can't really afford additional stuff on top of neurotransmitter pill cocktail and oils.

If nothing else, the pills have annihilated my depression. I'm walking on cloud 9 all day and sleeping better.

I only really have time for one big meal but I eat it slowly after work. Lately it's meat (chicken/steak/tuna with fixings) followed by oatmeal with 100% maple syrup and milk then strawberries.

I can probably cut the creatine. It has a lot of proported benefits but as far as I can tell it only helps me get a few extra reps out in weightlifting. Its effects on muscle gain and weight gain in tests are small. It's also additional stress on what's probably already a set of stressed kidneys.

When you say not to take supplements fasted, does that include my neurotransmitter pills? Because I have to take those 2, eventually 3 times a day to work.
06-20-2015, 02:03 PM   #17
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Jose, the gut biome is just as overlooked by the medical community as diet is when treating digestive autoimmune diseases and that's why they're clueless in bringing true disease remission. I think the shocking truth is just how much bacteria matter in our mental and physical well being. I'm starting to think probiotics / bacteria can be considered psychotropic and immunomodulating "drug" all on their own based on the gut/brain axis signaling theory.

The concern with food chemicals isn't about allergies, it's the secondary condition of food sensitivities which are a result of leaky gut. And why would the absence of bacteria on the gut lining lead to cell destruction/pain signals? That doesn't even sound like a realistic state to achieve and I'm not sure what exactly that is trying to prove anyways.

Instant, I think you might find this blog useful if you aren't familiar with it already.
http://coolinginflammation.blogspot.com/

It seems you're fasting extensively for the sake of starving bacteria. I question whether that will work given how well bacteria can survive.
Have you ever explored the possibility of candida or e. coli overgrowth? I know you mentioned MAP before.
Are you concerned at all with healing a leaky gut? Still taking glutamine, what dose? What is your position on oatmeal, do you think it contributes to leaky gut?
What brand of probiotic or fermented foods, milk or water kefir? Do you consume prebiotics like resistant starch so they will thrive? Green banana/plantain flour or potato starch are popular choices.
Any estimation of your daily carbohydrate intake?
Are you still avoiding salicylates? Have you considering re-adding coconut oil?

Last edited by WingedVictory; 06-20-2015 at 02:27 PM.
06-21-2015, 01:06 AM   #18
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It seems you're fasting extensively for the sake of starving bacteria. I question whether that will work given how well bacteria can survive.
Have you ever explored the possibility of candida or e. coli overgrowth? I know you mentioned MAP before.
Are you concerned at all with healing a leaky gut? Still taking glutamine, what dose? What is your position on oatmeal, do you think it contributes to leaky gut?
What brand of probiotic or fermented foods, milk or water kefir? Do you consume prebiotics like resistant starch so they will thrive? Green banana/plantain flour or potato starch are popular choices.
Any estimation of your daily carbohydrate intake?
Are you still avoiding salicylates? Have you considering re-adding coconut oil?
The fasting isn't for bacteria so much as a hormonal anti-inflammatory response in the body.

I've tried anti-candida approaches and never really seen results.

I was taking glutamine, I just ran out, debating on buying more. I never noticed improvement and it gave me gas. I took about a tablespoon a day.

I tried fermented foods. Sauerkraut seems safe but I have trouble getting it to not get fungus when growing. Kefir upsets my stomach as does store yogurt, never tried home made yogurt.

I have some probiotic packets I got from GNC that I take.
As far as resistant starches, I can't have potato starch and idk about plantains or green bananas.

My carb intake is very high, my caloric breakdown is probably 30% protein then 35% fat 35% carbs if I had to guess.

I stopped avoiding salicylates, my skin got better because I can salicylates but it was actually the sodium laurel sulfate and the products I switched to were free of those. I'm back on coconut oil. I switch it out with butter sometimes.

I don't believe oats are inflammatory but I do believe they and other grains should be soaked for improved digestion.

Saturdays are gonna be hard to fast. I usually visit friends, I wasn't feeling so well from Friday's dinner, I felt drained, I think something didn't agree with me, so I had to eat some before leaving the house.

I think maybe is the maple syrup or garlic.

Last edited by InstantCoffee; 06-21-2015 at 02:47 PM.
06-21-2015, 07:44 PM   #19
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Do you think that the benefits of fasting outweigh the lack of nutrition you're missing for a good portion of the day? I would be concerned if fasting is impairing immune system function to fight off potential yeast/bacteria overgrowth issues. Are you doing it mostly for the serotonin aspect? That doesn't sound like it's a sustainable solution. I think your mood symptoms may be related to dysbiosis as the core cause of....well everything.

I think beating back candida to healthy levels mainly requires patience and dedication to GAPS or SCD or Low FODMAP combined with a probiotic/prebiotic regime. Milk kefir seemed to deepen my issues with dysbiosis giving me irregular heartbeat - I mainly it mainly had something to do with the yeast strains causing candida to migrate. I think for autoimmune sufferers with leaky gut and a weakened immune system fermented foods can be dangerous because they're so potent.

When you say you can't do potato does that mean you get IBS symptoms from them or something non-digestive? Just curious, either way I would think that banana or plantain is a healthier option than potato starch because it's a nightshade.

Macros look pretty balanced, I don't consider that high carb, especially if you're active.

When I read you switched up supplements and body care products I kind of didn't think removing salicylates would be effective since they're already in most plant foods. Which made me look at your initial post again and it seems like you have no fruits or veggies in your diet. Is that because you don't think you can handle the fiber? My father supplements most of his macro nutrients and I often worry that his body doesn't absorb them as well as he would from food sources.

I'd like to think that anything foreign in blood stream is inflammatory. If soaking oats helps ferment and break down the proteins that would be better. At this point though I would think that even fruits would be a safer bet than grains if you suspect leaky gut is a factor.

If raw garlic then i'd suspect feeling crumby as a die-off reaction. I think many of us tend to micromanage our diets thinking its a specific food that is causing "autoimmunity". I think in the past few years trying to diagnose myself I didn't focus enough on the bacteria/yeast aspect and too much on being gluten free. I'm now just starting to finally believe I have systemic candida after trying xifaxan and seeing more skin outbreaks in uncommon places... Antibiotics kill off the probiotics and thus a yeast like candida has an opportunity to further take over. And from a quick google around the internet it's a very common issue that is often diagnosed by the medical community as a digestive autoimmune disorder because SIBO, leaky gut, and IBS symptoms are basically the same as "crohn's" symptoms. SIBO and yeast overgrowth often come together. I'm not trying to project my own health issues onto you I just think we have some similar chronic non-digestive symptoms that could provide a link to potentially the same cause. Of course many symptoms do overlap with unique conditions.
06-22-2015, 05:09 AM   #20
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My appetite is greatly increased so my calories end up being about the same at the end of the day. I eat pretty much from when I get home from work until an hour before bed.

If it's caused solely by inflammation, I'd expect to see improvement through fasting.

If it's caused by candida, I'd expect to get worse by suppressing immune function.

The thing is our immune system doesn't seem to be doing much to fight it either way, and you have to consider the possibility that inflammation is leaving the door open for SIBO rather than the other way around.

I went on an anti-candida diet 2 years ago and it worked, the results were pretty noticeable.

I've tried no sugar no dairy recently and there wasn't a noticeable effect. Also I used to have skin fungal infections and I don't anymore. I'd expect those to still be persistent if it was a fungal source.

I don't think my problems are the same now as they were then, so I don't believe the same solution will work.

I don't think garlic is strong enough to trigger a herx reaction or I should have experienced one from the absurdly high amounts of monolaurin, caprylic acid and coconut oil I was ingesting, or the oregano and thyme oil I'm taking now.

Also thought I'd mention since I saw you posting about white rice. When I did my 2-3 month anti-candida diet I was on undecylenic acid from thorne research + 3000mg vitamin C daily and I pretty much ate only white rice, tuna and mayo and still had outstanding results. Idk if things would have been different without the rice, but my skin inflammation was gone within the first 3 weeks. After that I regained a lot of food tolerances.

Then I re-introduced sugar in the form of V8 splash and orange juice figuring they would be 'natural' and over the next few months I lost rice and orange juice.

When I say potato gives me issues, I mean my digestion slows to a crawl and I slowly digest it with gas and diarrhea and pain that's nearly intolerable. Yeah, IBD symptoms.

Last edited by InstantCoffee; 06-22-2015 at 06:06 AM.
06-22-2015, 07:21 AM   #21
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I think a lot of this is about perspective and getting facts straight, and I claim to be no expert.

Well yea, my concern with fasting wasn't so much that it would effect your weight gain goals, because I figured you can make up for calorie deficits in a small eating window. Your bodies going the whole day without nutrients to boost the immune system and perform bodily functions which is not good if you're potentially dealing with systemic infection from overgrowth and leaky gut. The other concern with fasting is that it may encourage you to consume a large amount of carbs in one sitting allowing bad yeast/bacteria to eat what you don't absorb in time.

I think our actual immune system cells only fight candida when it gets in the blood stream. I could be wrong and would welcome others input. Whereas candida overgrowth starts in our intestines, so it's the job of good bacteria/yeast to keep its numbers reduced. Many health researchers believe our immune system is partly comprised of our gut biome because it influences (postbiotics, immune-signaling) so many aspects of our body. A strong immune system is both having a balanced gut biome and giving them the prebiotics they need and giving our body the nutrients it needs to constantly heal the gut and detox.

If you had effective results with a candida diet 2 years ago then it sounds very likely that you still struggle with systemic overgrowth. Systemic meaning candida is overgrown, leaking from the gut into the bloodstream going to different parts of the body. My understanding so far is that this is something that we always have to be watchful of keeping at bay since candida doesn't completely go away. It's part of a healthy gut biome actually.

I think your results with the candida diet are more attributed to the undecylenic acid. From a quick google it looks like an antifungal. I think what you can take from that experience and regaining food tolerances is that fungal and bacterial overgrowths cause leaky gut. Certain foods leaking into the bloodstream creates food sensitivity symptoms.

The potatoes being an issue to me is because they take longer to digest and break down to glucose. If you can't tolerate them I would associate that with extreme dysbiosis higher up in your small intestine.

I wouldn't expect going no sugar or no dairy to reduce their population since they're said to have incredible survival skills. Your weight gain issues even make me think they're causing leaky gut (possibly along with other foods) and they're robbing you of a lot of your nutrition - whether they're stealing it or causing diarrhea. I've read when in fungal form they can root themselves into organs and suck the nutrients out of you. From my understanding diarrhea is not a natural response to a food. It's a sign of bacterial/fungal issues or a lack of bulking fiber in your diet. I don't think it's effective to try to starve the yeast back into normal proportions. I believe building our guts with a diverse probitic and prebiotic supplementation may be the only way to kill them off and crowd them out with good bacteria. In addition the postbiotic compounds the probitics produce should make the body/mind feel and function better.

When your gut flora is balanced and dysbiosis is corrected leaky gut should be able to heal and one should be able to safely consume a moderate carb diet again. Food sensitivities would also no longer be an issue. Although most will have to be mindful of not over-carbing frequently because of the chance of recurrence. Long-term supplementation with probiotics or fermented foods will probably be necessary. Even then I would be wary of home-made stuff because of the yeast factor.

Wouldn't it be sad if most digestive autoimmune suffers don't really have autoimmunity? That autoimmunity isn't even real. That all this is because of dsybiosis and bacteria/fungal overgrowths? I'm going to blunt. I don't think most of this community is approaching their disease from the right viewpoint. I myself, wasn't for the longest time. I was too obsessive about specific foods causing the leaky gut. I joined this forum to shake things up and get scientific discussions going, but not many people aren't "sciencey" around here like us.

Last edited by WingedVictory; 06-22-2015 at 09:10 AM.
06-22-2015, 07:33 AM   #22
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When I had sepsis from candida, it was cured with antifungals, and no diet changes or probiotics were needed. If you really think you have candida, wouldn't you be trying to get a doctor to prescribe you antifungals? Or testing you for candida so you know if you have it?
06-22-2015, 07:39 AM   #23
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Antifungals will definitely help, but that alone is leaving yourself open to recurrence of overgrowth. To me, they scream, band-aid solution. Just like immunosuppressants and certain surgical procedures. Meaning it doesn't resolve the root of the problem.

Not everyone has health insurance, UnXmas. Those tests out of pocket are pricey and frankly some of us have been let down to the point where we struggle to trust any sort of health professional. Nowadays, its not the guy dressed in all black hooded clothes you have to worry about it. It's the guy wearing a business suit carrying a briefcase or the one with the clipboard and lab coat lying through their teeth.

Most people have candida albicans in their gut - it's natural. I'd venture to say many autoimmune disease sufferers have varying degrees of some sort of systemic overgrowth and symptoms and if not treated properly could very well develop sepsis like you did. Even myself right now have self diagnosed symptoms of it. Look at it as a spectrum not binary (you either have it or you dont).

And you do realize that many "real" doctors don't even acknowledge systemic candida overgrowth, leaky gut, and food sensitivities. I wonder why...if you think about it there's likely more money to be made in the long run from not curing it. Not educating disease sufferers with the truth to me...is just another form of oppression.

Last edited by WingedVictory; 06-22-2015 at 08:23 AM.
06-22-2015, 02:56 PM   #24
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Doctors here in the UK are under huge pressure from the government to minimise the amount spent on treating patients. The government needs people as healthy as possible, so any financial motivation here should be the opposite to what you describe. Yet the recognition of the conditions you mention, and the treatments recommended, are the same here as in the US. How do you explain that? I'm genuinely asking; I see this argument about doctors keeping people sicker in order to profit often on this forum, but no one's ever answered this question.

Candida is recognised both here and in the US, doctors diagnose it and treat it. People are very unlikely to develop a serious candida infection without certain risk factors. The infection I had was life threatening, it wasn't anything to do with untreated autoimmune disease. Serious infections are routinely cured without diet or probiotics, so even if there was a much milder form of candida such as that which you're talking about, why would it need these measures when serious infections don't?
06-22-2015, 04:25 PM   #25
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I think you're looking too hard at evidence to support a theory rather than looking at theories that best fit the evidence.

I likely had fungal problems and dysbiosis in the past, but what I'm experiencing now it very different.

Regardless the thyme + oregano oil should kill it off, it's powerful and anti fungal, viral and bacterial. I can worry about rebuilding my gut flora which is probably already in tatters after I get rid of the harmful stuff.

We can't ignore the possibility that candida overgrowth may be created by an antagonistic problem in the gut. In fact we really need to consider that possibility, or there should be more people with candida infection from bad diets. We have millions of people living off twinkies and cola, every one of them should have candida infections if that's the case.

This points to the idea of a predisposition to the infection and so we have to question what it is.

There's evidence that bile salts malfunction in Crohn's. It's possible the poor use of bile is leading to an environment conducive to bacterial and fungal overgrowth.

There's the connection to antibiotics of course.



Interesting development. As of about a week ago I started having bad gas and cramps.

Yesterday I was doing my morning routine of coffee and pills. I put together a glass of water with my oregano + thyme oil, and decided instead of swallowing 7 L-Cysteine pills, why not pour them in the glass and chug?

I broke down the capsules and poured them into the glass. It was terribly acidic and burned, so I ran over and threw some baking soda in it to dilute it, then chugged it. Gas and pain slowly went away throughout the day. I didn't touch coffee the rest of the day.

So I'm wondering if it's something with acidity / coffee causing my current issues since baking soda seemed to help.

Last edited by InstantCoffee; 06-23-2015 at 04:42 AM.
06-23-2015, 08:26 AM   #26
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Evidence from case studies is too specific to certain test conditions, type of specimen, statistical significance, genetics. All that super heavy scientific literature you sift through I think is a bit too detailed and cutting edge.

If I could go back in time for myself...I would have focused my treatment around probiotics/prebiotics and rebuilding a healthy gut biome. If there were any supplements to invest in next I would buy a high dose probiotic and prebiotics to overhaul the gut. The highest dose one I've seen yet is a new brand called Elixa. I heard colostrum is recommended to take with them to help the bacteria stick to the walls of your colon. Also plantain or green banana flour. From there start adding prebiotic rich foods like green bananas, cooled rice/potatoes (once you can tolerate them) to your diet. You will likely have to work through the IBS symptoms as your gut rebalances and heals. Just my advice - something to think about and research before investing. If you do go through with it plan it out thoroughly so you get the most effectiveness out of the probiotic regime. Like in a smoothie with all prebiotics, followed by prebiotic foods throughout the day. One thing to caution is that foods and supplements with fructooligosaccharides like inulin can also feed opportunistic bacteria/yeast therefore some recommend to use resistant starch as the initial form of prebiotic. I don't speak from experience as I'm still waiting on plantain flour and higher dose probiotics. If you can't afford supplements perhaps slowly ramp up some home-made sauerkraut.
http://coolinginflammation.blogspot....ra-repair.html

High carb intake doesn't necessarily = SIBO/fungal overgrowth, then crohn's/colitis. Considering we have cultures all throughout the world that thrive on varying macro nutrient proportions without chronic autoimmune digestive diseases. There's ones that are high fat, high carb, or high protein. If your gut microbiome is strong with probiotics then I don't think moderate carb is an issue.

As far as anti-fungals/antibiotics go I don't think they're as effective (or at all) if you don't supplement probiotics/prebiotics to correct dysbiosis and stay low FODMAP. At least until the immune system gets boosted and the gut heals up to better absorb the FODMAPs before opportunistic bacteria can. It's like putting a bucket of water on the roof of a burning building when the fire is fueled from deep inside.

After going on xifaxan my skin breakouts flared up. Which reinforces how important probiotic bacteria are to our immune system. I've never had the condition diagnosed. It could very well be a light case of Hidradenitis Suppurativa like you mention yourself having.

I'm curious how many grams of carbs do you consume in one meal sitting?
Also why do you think it is you get IBD symptoms from potatoes? Do you have issues with other nightshades or do you think it's because starches are slower to digest and bad bacteria/yeast get at them? I recently read about how tomatoes can "rev up" the immune system.

Do you have any regular sources of soluble fiber in your diet to feed bacteria? I know you mentioned psyllum husks but it doesn't seem like a consistent thing and you don't seem to eat fruit or vegetables.

Coffee/caffeine is a known irritant to the gut - especially on an empty stomach. I've thought it gave me the runs at one point. Maybe my stomach can tolerate it better now from healing. I only have a cup rarely.

I like how you have a personal blog about your research and journey to become healthier. Here's another health focused blog from a guy that does a lot with probiotic experimentation. He's tells it like it is and doesn't really censor his true beliefs about society, the media, medical industry/big pharma, and health related issues.

Last edited by Jennifer; 06-23-2015 at 11:49 PM. Reason: Link removed - the sale of items is agianst forum rules
06-24-2015, 08:48 AM   #27
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I've never really noticed any kind of positive results from probiotic supplementation. I've gone from moderate, long-term doses to taking an entire bottle in a few days.

I always have problems with my sauerkraut getting moldy despite my best efforts.

I don't think nightshades are related to the problem I have with potatoes. Although I can't have peppers I could have tomatoes and nightshade based seasonings long after, I can still have cayenne and cumin. Idk if tomatoes are safe now or not I haven't eaten them in months.

Yeah coffee has always been safe up until these last two weeks, so I think black coffee on a fast is just a non-option for me. I'm wondering if it may have been a silent antagonist for longer though. The hydradenitis inflammation on my face is seeing some improvement now, I'm not sure if it was already improving or just in the past couple days, I've had a hydracolloid bandage over it since saturday. The inflammed area under the skin has reduced significantly, although it's still filling with fluids.

I cheated on my fast yesterday, without the appetite suppressant from caffeine and the workload of my job, plus I think I under ate the night before, I was completely famished come lunch time and drove to the store for a quick fix with some prosciutto and cheese.

Today marks 1 week on the seratonin-dopamine therapy which means change in dose scheduling.

Doing some reading on resistant starch and found this interesting article:
https://mrheisenbug.wordpress.com/20...d-not-so-fast/

Basically it suggests that resistant starch feeds mostly bifido bacteria, but bifido bacteria are very low on the list of butyrate producing gut flora, and butyrate is one of the most important healing / protective byproducts of feeding healthy gut bacteria.

Clostridia / fermicutes are much higher butyrate producers, and most likely to be starved by the kind of low-carb dieting many Crohn's patients do to control symptoms.

https://mrheisenbug.wordpress.com/20...y-conclusions/

Last edited by InstantCoffee; 06-24-2015 at 10:01 AM.
06-24-2015, 12:01 PM   #28
WingedVictory
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I would much prefer fermented foods to buying probiotics since they offer more variety of probiotic strains and are more economical. I just think that fermented foods are much too potent for many of us trying to heal leaky gut. I think if they get into the bloodstream they can amplify the immune response and create more inflammation. Potentially even perpetuate systemic overgrowths.

I've yet to make sauerkraut. I bought a few fido jars to do it. They supposedly help seal out oxygen and I think the rubber seals allow the jar to burp out carbon dioxide. After how I reacted to the milk kefir I'm a bit more hesitant of fermented foods. I guess mold issues are mostly caused by too much oxygen getting in or not enough brine.

Have you considering making bone broth a mainstay in your diet? In the last 2+ weeks I think it has helped me heal to the point of being able to tolerate high salicylate foods again. I assume the more I heal the more foods I can tolerate without skin issues. After reading the second blog post you linked I think food sensitivities also have to do with feeding the right bacteria (Clostridia / fermicutes) to prevent an immune response. Or how about a solid dedication to L-glutamine and beef gelatin? It seems like you tried it but fell off the wagon because you didn't think it was working.

That blog on prebiotic analysis and butyrate production is interesting, but he doesn't seem think there are any conclusions to draw as they're just two isolated cases. I think the point he's driving home is to not hone in on one specific form of prebiotics to feed probiotics. I was thinking that myself this morning trying to find foods to balance things out. Like ones with pectin and inulin. Even certain components of meats feed certain types of probiotics. I admittedly still know very little on probiotics. So I guess autoimmune sufferers should feed their Clostridia / fermicutes? All this definately warrants further investigation. Thanks for the blog link.

You never answered my question on whether you carb-load in one meal sitting? That could be contributing to bad bacteria/yeast overgrowth.

And the one on soluble fiber intake. Any consistent sources of inulin, pectin, or resistant starch in your diet to feed probiotics? As many of us are constantly changing our diets to reduce inflammation, this also constantly shifts gut flora balance.

Last edited by WingedVictory; 06-24-2015 at 12:24 PM.
06-24-2015, 01:03 PM   #29
InstantCoffee
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The few times I made sauerkraut I tolerated it well. I made it once and ate it after about a week, kept it in the fridge for about a month.

More recently I had a batch at about 2-3 weeks but after I took some out and ate it I guess it needs to be sealed and refrigerated immediately, I thought maybe if I left the stuff I didn't touch in the brine it would be alright but I think too much surfaced and caused it to spoil.

I am worried about the lead and possibility of MAP in beef products, so I'm not sure if I want to commit to that route. I've considered chicken bone broth but they don't sell chicken bones at the store, I'd have to buy a chicken and cook it, then strip it down to the bones, just not something I often have time for.

Some of the commenters on the blog posts are interesting, one is on an almost entirely fruit based diet now. I'm not sure what kind of condition he is treating though.

http://freetheanimal.com/wp-content/...h-in-Foods.pdf

Actually the oat-flour based cakes I've been making are probably helpful. Oats have resistant starch, I'm not sure if they considered uncooked vs. cooked as in soaked in water and boiled, or if there's a difference, since I'm not soaking them, just grinding them into a powder and mixing them with eggs, butter and a sweetener.

I'm considering trying some cooking with plantains now.

My typical meal on IF I get home and have a glass of pomegranate juice with my l-glutamine and pills, then have my meat + fats followed by something with oats and maple syrup for sweetener. I don't put a particular focus on my carbohydrates. It's usually about 1-1.5 cups of oats, 1 cup pom juice, 2 tbsp maple syrup.

I tried adding my saccharomyces moulardii into my oats to soak overnight and it seems to be messing up my stomach. Guess that was a failed experiment.

I worry about prebiotics because many report gastric distress with intake of resistant starch, FOS and inulin, mostly in the form of gas. It seems like everything else, beneficial in moderation.

Last edited by InstantCoffee; 06-25-2015 at 09:47 AM.
06-26-2015, 10:48 PM   #30
InstantCoffee
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Coffee wasn't the issue. I bought a new multi-vitamin on Sunday and it had MSM in it. Why? I have no idea why.

I've been taking it every day at the same time I typically drink coffee and it causes the gas / bloating and feelings similar to wheat intolerance.

Funny cause others said it helped their Crohn's.

I've been experimenting a bit with my diet and I seem to be quite flexible. I at Amy's gluten free mac and cheese which is made with rice flour and had no ill effect. I've also been foolishly pigging out on chocolate, maple syrup, and other stuff.

I bought plantains to try this weekend and some nitrate free hotdogs. Going to have hot dogs and fries hopefully.

In spite of the MSM wreaking havoc on my gut this entire week I've continued to put on weight.

Last edited by InstantCoffee; 06-26-2015 at 11:12 PM.
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