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Crohn's Disease Forum » Support Forum » Mental Health Support » I'm ready to give up...


05-21-2015, 09:47 AM   #1
CLCH87
 
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Location: Orlando, Florida

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I'm ready to give up...

I'm just at a point where I've been told I'm out of options. I have been on almost every drug and had an allergic reaction, was told after being admitted to the hospital that surgery isn't a good option because my case is so "stubborn" that it would come right back. I just feel like I'm trapped on this ride and I want to get off of it.
I really feel like I'm out of options and will just be stuck like this forever.
05-21-2015, 10:07 AM   #2
GABoy
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I know exactly how you feel because, at times, I feel the same way. I've struggled with mental health issues my whole life, pulled everything together, but now feel as if I'm coming unhinged. I'm focusing on what I can control at this point... and nothing else. I wish you all the best and want you to know that there are a lot of us feeling the same way you are.
__________________
Diagnosed with perianal Crohn's Disease: 12/2013

Surgeries:
Abscess Drainage 10/2013
Seton Placement 11/2013
Abscess Drainage + Seton Placement 4/22/2015
Abscess Drainage 10/28/2015
Seton placement 2/11/2016
Abscess Drainage 2/26/2016
Mucosal Advancement Flap 8/12/2016


Prior Medications:
Cipro, Flagyl, Prednisone, Humira, Entyvio

Current Medications:
Remicaid 6MP and Allopurinol
05-21-2015, 10:23 AM   #3
24601
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Location: London, UK
Hi! I definitely can relate to how you are feeling! I've tried a lot of treatments and am now having a stem cell transplant because until now nothing has really worked - or not well enough. I'm very much hoping that these newer treatments come through quickly and give us more options. I'm very much holding onto hope too...though I feel lucky to be having the stem cell transplant, it's not a permanent solution.
__________________
Stricturing jejunoileitis dx 1996 aged 17
Current treatment: stem cell transplant
Previous treatment: Humira + methotrexate
Past treatments: prednisolone, azathioprine, budesonide, pentasa, EEN (oral and NG), elimination diet, SCD, whipworms, 6mp, Remicade, anti-MAP antibiotic therapy
Surgeries: small bowel resection and strictureplasties in 2001, 2005, 2009, 2014
05-21-2015, 11:19 AM   #4
CLCH87
 
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Thank you both so much. I just needed someone to tell me I'm not alone and it will get better.

Where are you getting the stem cell transplant done? That was one of the things the hospital GI suggested but he had no clue how to go about it or who to contact.
05-21-2015, 11:22 AM   #5
Cat-a-Tonic
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Hi CLCH87, there's a thread here with a lot of information about stem cell transplants:
http://www.crohnsforum.com/showthread.php?t=22259
05-21-2015, 12:04 PM   #6
24601
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I'm in the UK but the original autologous stem cell transplant trial and the more recent allogenic one were done in the US at Northwestern in Chicago. There have been and still are trials happening at other centres in the US but I don't know about the possibility of having it outside of a trial - which is what I'm doing.

The US trials that are currently recruiting that I can see on ClinicalTrials.gov are
1) at UCLA ages 18-70
https://clinicaltrials.gov/ct2/show/...nsplant&rank=5
2) pediatric to young adult in Pittsburgh (ages 5-25)
https://clinicaltrials.gov/ct2/show/...nsplant&rank=2

They list the criteria for inclusion and if you're interested it sounds like it would be well worth contacting them.

If there's anything you'd like to ask me I'm happy to answer too
05-21-2015, 01:01 PM   #7
CLCH87
 
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Thank you so much!
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