Share Facebook
Crohn's Disease Forum » Your Story » I am a newbie


06-30-2015, 02:43 PM   #1
Moeli
 
Join Date: Mar 2015
Location: Snelgrove
I am a newbie

Hello Everyone. First diagnosed with colon cancer at 50. Went through the surgery and chemo for 52 treatments. Had a good 20 years and then changes started. Was diagnosed with Crohns at 72. Consider myself lucky compared to many. It is the continuous abdominal pain and what to take for it when it becomes 'too' much. I am on Mezavant daily and take Tylenol as needed. What does everyone else do to make it more tolerable. Thank you. Moeli
06-30-2015, 02:58 PM   #2
DJW
Forum Monitor
 
DJW's Avatar
 
Join Date: Jul 2013
Location: Ontario

My Support Groups:
Hi and welcome.

I've found a food journal to be very helpful. It will give you insight into possible trigger foods.

Sending you my support.
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
06-30-2015, 03:18 PM   #3
David
Co-Founder
 
David's Avatar
 
Join Date: Feb 2006
Location: Naples, Florida
Welcome to the community. You shouldn't have to deal with constant abdominal pain. Part of the issue is likely that Mezavant is a pretty weak med. If you're in pain, you're not in remission and your doctor needs to reevaluate you treatment plan.
07-01-2015, 08:14 AM   #4
Moeli
 
Join Date: Mar 2015
Location: Snelgrove
Welcome to the community. You shouldn't have to deal with constant abdominal pain. Part of the issue is likely that Mezavant is a pretty weak med. If you're in pain, you're not in remission and your doctor needs to reevaluate you treatment plan.
David. Thank you for your advise. I will discuss with GI at next appointment which is a month away. I feel that is something I have to learn to live with and it comes with the disease. I know of no one else who has it so I am somewhat ignorant so it is good to get help from you all. Thank you
07-01-2015, 08:19 AM   #5
Moeli
 
Join Date: Mar 2015
Location: Snelgrove
Hi and welcome.

I've found a food journal to be very helpful. It will give you insight into possible trigger foods.

Sending you my support.
Thank you DJW. I have asked my GI regarding diet. He said it has nothing to do with it. However I am cautious about what eat and will try your suggestion
07-01-2015, 09:28 AM   #6
DJW
Forum Monitor
 
DJW's Avatar
 
Join Date: Jul 2013
Location: Ontario

My Support Groups:
It takes some time to adjust.
07-07-2015, 12:04 AM   #7
David
Co-Founder
 
David's Avatar
 
Join Date: Feb 2006
Location: Naples, Florida
David. Thank you for your advise. I will discuss with GI at next appointment which is a month away. I feel that is something I have to learn to live with and it comes with the disease. I know of no one else who has it so I am somewhat ignorant so it is good to get help from you all. Thank you
In my opinion, you should not learn to live with any symptom of this disease. Keep working to get into deep, stable remission and symptom free. For some it's not too hard, for others it is incredibly difficult. But that should be the goal of everyone in my opinion.
Reply

Crohn's Disease Forum » Your Story » I am a newbie
Thread Tools


All times are GMT -5. The time now is 10:28 AM.
Copyright 2006-2017 Crohnsforum.com