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Crohn's Disease Forum » Your Story » Don't know what to do other than have surgery!!!


07-16-2015, 01:56 AM   #1
Natalieskrumbellos
 
Join Date: Jul 2015
Location: Iron mountain, Michigan
Don't know what to do other than have surgery!!!

i am only 20 years old and about a year ago I was told I had moderate uc well recently I had a flare up and have been at the ER three times trying to get this flare under control. At first they put me on 20 mg of prednisone and start to cut back a little everyday, when that didn't work my gastro doctor put me on 40 mg a day, once again when that didn't work I am put to 60 mg and I still haven't stopped bleeding or pain. I am very worried I am going to have to have surgery to fix the problem but that is the last option.
07-17-2015, 10:02 AM   #2
Tuff
Senior Member
 
Join Date: Feb 2013
Location: Ontario

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Hello Natalie, and welcome to the forum. I'm sorry you're having such a hard time. Have they not tried any other drugs with you? I don't have UC so I'm not that familiar with the treatment. We have a forum for UC here http://www.crohnsforum.com/forumdisplay.php?f=69
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Inflammatory bowel disease may more than double the risk of a serious blood clot in the legs or lungs.
************************************************** ********************************************

Stelara, Warfarin, calcium, Vitamins B12, D.
Previously: 5-Asa, Cipro, Flagyl, Prednisone, Aza, Remicade.
Pulmonary Embolism, DVT's, osteopenia, Peripheral neuropathy.
07-17-2015, 10:05 AM   #3
24601
Forum Monitor
 
Join Date: Dec 2013
Location: London, UK
Sorry to hear you are struggling with a UC flare. Has your doctor suggested any other meds like biologics? If not it would be worth seeking an opinion from another doctor as there are definitely more meds that you can try besides steroids before moving to surgery.

Best of luck!
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Stricturing jejunoileitis dx 1996 aged 17
Current treatment: stem cell transplant
Previous treatment: Humira + methotrexate
Past treatments: prednisolone, azathioprine, budesonide, pentasa, EEN (oral and NG), elimination diet, SCD, whipworms, 6mp, Remicade, anti-MAP antibiotic therapy
Surgeries: small bowel resection and strictureplasties in 2001, 2005, 2009, 2014
07-17-2015, 10:06 AM   #4
Lady Organic
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when did you start 60mg of prednisone? are you currently on other drugs for the UC and which one were you on before the flare started?

how many bloody/mucus bowel mouvements do you have in 24 Hours?
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''UC-like Crohn's'' since 2001:
on: 25mg 6-MP (purinethol)+ B12 shots
minor hands/wrists chronic arthritis since 01/2013

Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA, cortifoam, Imuran (failed) Purinethol (success) methotrexate (failed CD and arthritis).
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