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07-31-2015, 08:26 PM   #1
LodgeLady
Senior Member
 
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Join Date: Sep 2013
Location: Westminster, Maryland
LDN Wearing Off

So I've been 4 months on ldn and no matter what the dose the positive effects wear off after about a month. I don't think it's helping my Crohns like I'd hope it would. My new internist feels ldn is only addressing my symptoms and doing nothing to address my "Crohns-Disease" . So I'm coming off it and seeing a new GI. I'm really disappointed and had hoped I'd feel better than I did. On to more testing and probably different drugs.
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Entocort , Prednisone, Pentasa, ,Protonix, Xifaxan


Lots of learning.

Lots of praying.....

08-01-2015, 03:34 AM   #2
HelenMelb
 
Join Date: Mar 2013

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Sorry to hear the LDN appears not to be working for you. For what it's worth, it took about 4 months in our case to start seeing benefits-it was very slow and we often wondered if it was doing anything at all.

After about 6 months, we were clearly seeing benefits.

Hope you find the right treatment very soon.
08-06-2015, 10:04 PM   #3
Jmrogers4
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My son had the same results as HelenMelb unfortunately it was not enough to keep him there for long. Hope you are feeling better soon
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
09-15-2015, 09:19 AM   #4
SallyJane
 
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Join Date: Nov 2013
Location: England - Hampshire

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Hi, Just a thought. When LDN did not seem to be working as well for me, I did some research and found that lack of Vitamin D reduces the efficacy of LDN. I saw my GI, who gave me high dose vitamin D. Two tablets to take immediately and then two the following week. He said that supplements would take at least a year to get to the same levels. My symptoms improved almost immediately and I am still on LDN (phew!)
As I understand it, Crohns sufferers are almost always short of vitamin D.
May be worth a try.
Good Luck. Sally
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