Share Facebook
Crohn's Disease Forum » Extra Intestinal Manifestations » Skin » Hidradenitis suppurativa


08-03-2015, 12:07 PM   #1
darster
Senior Member
 
darster's Avatar
 
Join Date: Dec 2012
Location: Connecticut

My Support Groups:
Hidradenitis suppurativa

Hi all, TMI rant

I have been having terrible recurrences of this dreaded skin condition since stopping Humira. It occurs on my vagina and is very very painful. Just when I think it is going away, more of the painful lumps form. I am careful to drain them if I can when I shower, and it helps. I used hibiclens to wash and disinfectant the area. Then an antiseptic and pain reliving spray on the area. I may have temporarily conquered it as no new eruptions have surfaced in a week. Do any of you suffer from this? Any other suggestions as to how to maybe prevent them from occurring?
08-03-2015, 12:48 PM   #2
DJW
Forum Monitor
 
DJW's Avatar
 
Join Date: Jul 2013
Location: Ontario

My Support Groups:
I'd get these in my groin. Had them drained by the surgeon. Them dressed by the nurse. It took time but it worked.

My only other suggestion is to keep the area shaved. The nurse told me hair agrivates things.

Hope you get some relief. I know how painful it is.
Sending you my support.
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
08-03-2015, 04:23 PM   #3
Lady Organic
Forum Monitor
 
Lady Organic's Avatar
please take a look at the fallowing thread: http://www.crohnsforum.com/showthread.php?t=72670

I have posted there after I watched a medical nutrition team help a severe case of HS, non-responsive to any medication. A low-glycemic food diet could help you.
__________________
''UC-like Crohn's'' since 2001:
on: 25mg 6-MP (purinethol)+ B12 shots
minor hands/wrists chronic arthritis since 01/2013

Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA, cortifoam, Imuran (failed) Purinethol (success) methotrexate (failed CD and arthritis).
Reply

Crohn's Disease Forum » Extra Intestinal Manifestations » Skin » Hidradenitis suppurativa
Thread Tools


All times are GMT -5. The time now is 04:37 PM.
Copyright 2006-2017 Crohnsforum.com