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Crohn's Disease Forum » Your Story » New to this Forum- 20 Year Old w/ Crohns


08-06-2015, 09:05 PM   #1
alllison_x
 
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New to this Forum- 20 Year Old w/ Crohns

Hi! My names Allison and I am 20 years old. I just got diagnosed with severe crohns disease in November of 2014. I really had no idea what the disease was up until that point. Nothing led up to me getting sick, it all hit me pretty fast. Unfortunately I had no idea what I had gotten into.

Anyways, I'm here to talk if anyone ever needs it (even though I am fairly new to the disease I still want to be of support)
I also want to get to know other teens out there going through the same thing as me!
08-07-2015, 06:21 AM   #2
teeny5
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Welcome to the forum!
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Currently on: Colazal, Prilosec, multi-vitamin, probiotics, total EFA's, glucosamine.

Previous meds: Sulfasalazine, Asacol, Rowasa, Pentasa, Entocort.


"Adopt the pace of nature: her secret is patience. -Ralph Waldo Emerson"
08-07-2015, 08:45 AM   #3
DJW
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Location: Ontario

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Hi and welcome.
I'm glad you decided to join. Give yourself time to adjust.

Sending you my support.
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Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
08-07-2015, 09:28 AM   #4
SarahBear
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Welcome to the forum, Allison! Sorry you've had need to find us.

Are there any specific questions or concerns you're having? How is your treatment going so far?
__________________


Sarah.
Diagnosed with Crohn's disease 12/6/08.
Have taken: Prednisone, 6mp, methotrexate, Pentasa.
Currently waiting for a new medication!

Check out the Crohn's forum chat!

08-08-2015, 09:53 AM   #5
FrozenGirl
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Welcome Allison!
I'm also 20 diagnosed Nov 2013. How are you doing now? Flaring, remission or the horrible In-between?
__________________
Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
08-08-2015, 08:07 PM   #6
alllison_x
 
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Welcome to the forum, Allison! Sorry you've had need to find us.

Are there any specific questions or concerns you're having? How is your treatment going so far?
I don't have any questions so far..figuring everything out one day at a time. I got really sick about the month ago and ended up in the hospital. I was there for a week and given fluids through an IV the whole time. I also had a blood transfusion (two bags). Then they decided to do a colonoscopy to see if anything had changed sense I first got diagnosed and they found that there is only two inches out of my whole body not infected with crohns now (small intestine, large intestine, and colan are infected) I tried to stay away from Humira but my gastro said I needed the big guns now. so Ive just recently started that and I never thought I could ever feel "normal" again but i do!
08-08-2015, 08:08 PM   #7
alllison_x
 
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Welcome Allison!
I'm also 20 diagnosed Nov 2013. How are you doing now? Flaring, remission or the horrible In-between?
Remisson! Thank god, I was so bad I couldn't even leave the house. My gastro recently put me on Humira (along with a few other things) and I have never felt better sense I got diagnosed. I am so relieved that this medication is working
08-09-2015, 05:56 PM   #8
Ian_H
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Hey welcome!

I was diagnosed at 20 as well. Same diagnoses. The forum really helps out finding personal experiences of meds, surgeries etc that doctors can't truly give you. It helped a lot recently when I started remicade to read others experiences. Good luck and if you have any questions don't hesitate to ask!

Ian
08-09-2015, 05:58 PM   #9
Ian_H
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Hey welcome!

I was diagnosed at 20 as well. Same diagnoses. The forum really helps out finding personal experiences of meds, surgeries etc that doctors can't truly give you. It helped a lot recently when I started remicade to read others experiences. Good luck and if you have any questions don't hesitate to ask!

Ian
08-09-2015, 08:01 PM   #10
Mr chicken
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Glad humira is working so well for you
Ds is 11 ( dx at age 7) and has been on humira for 2.5 years now
It works wonders .
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DS dx at age 7 Crohns
Humira 40 mg every 10 days
Mtx 12.5 mg -due to juvenile spondyloarthritis associated inflammatory bowel disease

Vsl#3ds iron Zantac folic acid


Aka MLP....
08-10-2015, 03:37 AM   #11
pcrutchfield
 
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Location: Lithonia, Georgia
Hi, I'm Phyllis and new to the Forum. I've been truly informed by several of you
I have been on Remicade every 4 weeks for 2 years along with Azathioprine which I take 4 pills daily. I read about the rashes and itching, that is what I am experiencing now. My doctor put me on benadryl and pepcid. It didn't seem to work, so I added Seabreeze for the rash. But it seems I'm getting what looks like lesions only on my backside. Has anyone experienced this?
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