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Crohn's Disease Forum » Your Story » Undiagnosed - Could I have perianal crohns?


08-08-2015, 08:27 PM   #1
pomegranite14
 
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Very quick summary:

- 20 yr old

- have had chronic anal pain for 6 years

- been to many many doctors and had first been told there was no evidence of anything on my rectum. the next doctor said it was a hemorrhoid (telling me to eat more fiber and drink more water). the next, a thrombosed hemorrhoid. even one doctor said it was an inflamed varicose vein. then I went to see another doctor when the pain did not go away after years and years of this, and I was told it was an anal fissure. I then had the botox injection to heal the fissure (during which the doctor found 4) and because the area was numbed for days afterwards, I could not feel how hard I was straining to go to the bathroom and I developed a new hemorrhoid.

Today I am certain that same hemorrhoid turned into a skin tag which I have had for months now. The same doctor who performed the botox injection suggested I could have crohns because of all the fissures I had before. I did some research and think I could have perianal crohns. Most of my symptoms match up. I also have had very bad heartburn for years as well as constipation which I wonder could be a symptom as well. I take stool softeners everyday and have tried everything, (I am gluten-free and vegan for years) but still every time I go to the bathroom I am in excruciating pain.

I spend my summer in Colorado in the mountains and I think the altitude makes the pain worse. I recently ended up in the emergency room (my second visit just for fissure/hemorrhoid pain) because the pain after going to the bathroom was just too bad. They gave me a prescription for the pain killer norco to take after I go to the bathroom because the pain is too horrendous. That helps but constipates you which is even worse for fissures/hemorrhoids/skin tags. I do not know what to do, after I go I cannot move for hours, the pain lasts for as long as 14 hours.

I have tried everything, and have had chronic pain for 6 years now and just want to figure out a diagnoses. Every doctor has told me something different, I know crohns is difficult to diagnose, but I feel like this could be it.

Can anyone help me figure out what this is and if it does indeed sound like perianal crohns? I cant take it anymore


Thank you!!!
08-09-2015, 04:03 AM   #2
DJW
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That sounds awful, and so frustrating.

Have you seen a gastroenterologist? The gold standard for diagnosis is a scope with biopsies.
Blood work is a good place to start.

I hope you get some answers.
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08-09-2015, 12:33 PM   #3
Mr chicken
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Have you ever seen a Gi and had a colonoscopy/endoscopy ???
That is the gold standard for determining crohns
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08-10-2015, 01:01 AM   #4
Jennifer
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I'm sorry you're going through all of this pomegranite14. I hope you can see a GI soon and get a colonoscopy done as soon as possible. When you have one done make sure they take biopsies to help confirm a diagnosis (no matter what it may be). Have you tried Calmoseptine cream to help with the pain?

Keep us posted on how you're doing.
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08-10-2015, 01:10 AM   #5
pomegranite14
 
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Thank you all!
I am going to a Crohns specialist in a week who will run those tests, and hopefully get a colonoscopy (already had an endoscopy with no results) and then hopefully get a diagnosis. I can't take it anymore!! Just wanted to see here if my symptoms indeed sounded like perianal crohns...

Thanks!
08-10-2015, 01:12 AM   #6
pomegranite14
 
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I'm sorry you're going through all of this pomegranite14. I hope you can see a GI soon and get a colonoscopy done as soon as possible. When you have one done make sure they take biopsies to help confirm a diagnosis (no matter what it may be). Have you tried Calmoseptine cream to help with the pain?

Keep us posted on how you're doing.
I have not tried Calmoseptine to help but I will look into it! Have you tired it? Does it work??
Thank you so much for the suggestion !
08-10-2015, 01:15 AM   #7
Jennifer
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I have not tried Calmoseptine to help but I will look into it! Have you tired it? Does it work??
Thank you so much for the suggestion !
It's a common thing we buy before doing the colonoscopy prep as it can be painful. Yes it does help and many members suggest it. It can be found behind the pharmacist counter if it's not on the shelves so ask the pharmacy for help if you can't find it.
08-10-2015, 11:21 AM   #8
kellehbeans
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Hiya,

I replied to your post on the Undiagnosed Support Group, but just wanted to show my face here and let you know I am completely supporting you!

Your symptoms are extremely, extremely similar to my own, so would be interesting to me to see how you get on.
08-10-2015, 12:57 PM   #9
pomegranite14
 
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Hiya,

I replied to your post on the Undiagnosed Support Group, but just wanted to show my face here and let you know I am completely supporting you!

Your symptoms are extremely, extremely similar to my own, so would be interesting to me to see how you get on.
Thank you so much! I will definitely let you know! But have you been diagnosed yet ?
08-10-2015, 01:20 PM   #10
kellehbeans
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Thank you so much! I will definitely let you know! But have you been diagnosed yet ?

No Still ongoing through the long process.. Awaiting a GI appointment in September and hopefully get some scopes done!


08-10-2015, 01:40 PM   #11
pomegranite14
 
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No Still ongoing through the long process.. Awaiting a GI appointment in September and hopefully get some scopes done!
Me too! I have an appointment next week with a crohns specialist to see whats up and try some of the tests, but I am pretty sure I have perianal crohns. What are your symptoms?
08-10-2015, 02:23 PM   #12
kellehbeans
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Mine are closely related to proctitis at the moment. Basically, I have fissures galore, but going to confirm what damage has been done tomorrow, my joints ache like mad, headaches, I get more C even if stool is soft, occasional D, haemorrhoids (but I'm on steroids and nothing is healing or helping right now) and now I'm wiping damn orange fluid!! (Not oily) my pain is mostly left sided, and I get loads of burning during BM and stinging. Stabbing pains in left side too, like something is irritating it.


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