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Crohn's Disease Forum » Your Story » What does resection do?


08-13-2015, 01:03 PM   #1
lewis3001
 
Join Date: Aug 2015
What does resection do?

Hi,
I have had crohn's since 15...I am 43 now.

It caused major problems in my until around age 25..faded away and gradually returned in the form of constipation.This is now making life almost impossible.

No job,or life outside my room,for the last 4-5 years..leg pain and mostly I have to lie down all the time,because of discomfort and lack of energy.

When my bowels work,I am physically well,but as they don't,this is rare.Maybe 1 day in a fortnight. I have tried everything from a normal doctor.Nothing works.

This is a mild retelling of the situation..it is effectively,a frustrating waste of a good life.

Does anybody have any experience with resection...?

Thanks,and best wishes to all you folks..crohn's is not easy..
08-13-2015, 02:03 PM   #2
Charlotte.
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Join Date: Nov 2014

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I'm sorry that you could not find the "right" medication for you. Did you have the chance to take part in a medical trial? My doctor offers this to those who did not respond to any treatment.
Well, I was told that resection is only useful if there is a lot of scar tissue because resection does not cure Crohn's. You can resect the inflamed part of the intestine but after a while another part might start to inflame. This is one possible result, the other is that you feel "cured" and won't have any symptoms for ages as some forum members do.
Best wishes to you and hang in there!
__________________
Crohn's Disease: diagnosed 2014 (at 24), symptoms for 10 years now
Enteropathic Arthritis, Sacroliitis, Osteopenia

Stelara; Uceris; Lansoprazole; Domperidone.

Previously: Remicade, Humira, Simponi, Azathioprine, Methotrexate, Sulfasalazine, Entocort, Uceris, Prednisolone, TPN, EEN, different alternative treatments.
08-13-2015, 02:41 PM   #3
24601
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Join Date: Dec 2013
Location: London, UK
Hi lewis3001,

Welcome to the forum! Sorry to hear about the issues you are having now.

Resection surgery is used to remove scarred and narrowed sections of bowel or diseased sections of bowel that have not responded to any treatment. I've had a number of resections and strictureplasties for strictures.

Have you had any imaging done recently?
__________________
Stricturing jejunoileitis dx 1996 aged 17
Current treatment: stem cell transplant
Previous treatment: Humira + methotrexate
Past treatments: prednisolone, azathioprine, budesonide, pentasa, EEN (oral and NG), elimination diet, SCD, whipworms, 6mp, Remicade, anti-MAP antibiotic therapy
Surgeries: small bowel resection and strictureplasties in 2001, 2005, 2009, 2014
08-15-2015, 10:06 AM   #4
fuzzy butterfly
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hi iv just come across this thread, stem cell transplant iv not heard of this linked to crohns, could you please give more info, sounds intrerseting !!!
__________________

5yrs since dxd. 3yrs in remission.. in remission since march 2014, dxd july 2012, ileostomy march2014, reversed feb 2015 all's good so far
Mandy
08-16-2015, 04:16 PM   #5
lewis3001
 
Join Date: Aug 2015
Thanks all for your replies..have decided to try a 50% liquid diet for a while.
Best wishes,

Lew.
08-16-2015, 04:53 PM   #6
fuzzy butterfly
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hi lewis, just to say hope it works for you and to send you best wishes, look after yourself n take care .....
08-18-2015, 09:29 PM   #7
lewis3001
 
Join Date: Aug 2015
Aha! I visited the crohn's specialist top doctor today.It seems I have a megacolon situation and will possibly need to have it removed,partially,at least.

This was a shock,but apparently a person can live a normal life after such an operation,so that has to be positive.
08-22-2015, 12:23 PM   #8
jhutch88
 
Join Date: Aug 2015
My dr has suggested surgery for me to have a 10 cm stricture due to scar tissue in my small intestine removed and I'm quite nervous about it. I met with one surgeon that didn't think it needed immediate surgery however my GI recommended surgery for me so that's who's opinion I am going with. I have typed out my story on my page and don't want to retype all that but if you feel like reading it and giving me any insight whatsoever I would greatly appreciate it
08-22-2015, 12:57 PM   #9
fuzzy butterfly
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Aha! I visited the crohn's specialist top doctor today.It seems I have a megacolon situation and will possibly need to have it removed,partially,at least.

This was a shock,but apparently a person can live a normal life after such an operation,so that has to be positive.
hi lewis, sorry to hear that love, but for sure you can enjoy a normal life after such an op. you may even find youerself feeling better than you have for a while . heres hoping all goes well and you do really well after . please keep us updated, sending love and best wishes ..
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