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Crohn's Disease Forum » Your Story » 15+ years of Ulcerative colitis and I am finally taking a stand


08-15-2015, 05:23 PM   #1
BrettxW
 
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Join Date: Aug 2015
Location: Wallingford, Connecticut
15+ years of Ulcerative colitis and I am finally taking a stand

Hello everyone..

It was October 11th, 1998 when I was first diagnosed. I was 13 (I think)..I felt like I was a test patient for the medical college here as I was misdiagnosed a few times. Medications they were giving me caused me to have Pancrentitis (spelling). It sucked! I was in remission for a good 4 years of my life but after I graduated High School I fell out of remission. Ever since then I was just able to manage the side effects and discomfort. Always hiding behind a fake smile.
It got so bad that I ended up getting severe depression and attempted suicide twice...I was done with living like this...

Here I am now...Wishing I did this sooner but I am finally taking a stand. I am tired of letting my life be ran by this annoying illness. I want this illness gone! If that means, I need to have a bag then I do not care! I want to be able to live my life and enjoy it..Not having to worry about running to the bathroom every hour or so.

I was taking Mercaptopurine (6MP) for years and that was working fine. I actually took myself off the medicine for a while as I was testing if the medicine was really working or not and it seemed there was no difference. SO...Monday, I am meeting with a more in depth specialist to get information about taking Humira or Remicade. I have been reading things about hwo people have been put into remission with it so...I am going to give it a shot. I also am going to ask about the surgery where they put a J pouch in you? Not sure if that is exactly what it is..but I want to try everything. I want to live my life!!! I cant wait to start reading and learning more from this site!
08-15-2015, 06:19 PM   #2
sickinlk
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Location: Donegal, Ireland

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Remicade gave me my life back. Its worth a shot
08-15-2015, 07:22 PM   #3
BrettxW
 
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Join Date: Aug 2015
Location: Wallingford, Connecticut
Thats what I want to hear!!!!

I actually just had a very painful moment. It felt like everything was building up at my hot spot and wouldn't pass to come out. Talk about pain!!
08-16-2015, 03:42 PM   #4
buttER
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Location: Netherlands

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Hi there
I like the positive attitude! No-one is going to help you more than yourself so good on you.
I know that painful moment. I had coconut icecream recently and I really felt like there was a hedgehog with its spikes up crawling its way through.
A sense of humour helps!
08-21-2015, 01:24 PM   #5
Om3ga1
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Location: Albuquerque NM

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I've learned the hard way myself that you sometimes have to take the bull by the horns. Keep looking out for #1 cause your the only one who can.
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Crohn's Disease Forum » Your Story » 15+ years of Ulcerative colitis and I am finally taking a stand
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