I've had Crohn's for 13 yeah I'm no(w) 26 and been to the clinic today and have been told I have a huge fistula and my bowel is twisting, so my 8th surgery is booked for the 17 November.
I have to have the fistula removed and they need to untwist my bowel, I also have to have the bag on which they hope could be reversed.
3 weeks prior to surgery I have to have the surgical procedure to have a peg fitting in my neck to have TPN. I start Methotrexate injection and if I haven't put any weight on in 2 weeks as its low and dropped again today.
So anyone who could help with advice and information on how they find living with the bag, how they first coped any general advice would be really appreciated.
I've had everything over the years allergic to seriods and cannot have trail drugs xxxx
I have to have the fistula removed and they need to untwist my bowel, I also have to have the bag on which they hope could be reversed.
3 weeks prior to surgery I have to have the surgical procedure to have a peg fitting in my neck to have TPN. I start Methotrexate injection and if I haven't put any weight on in 2 weeks as its low and dropped again today.
So anyone who could help with advice and information on how they find living with the bag, how they first coped any general advice would be really appreciated.
I've had everything over the years allergic to seriods and cannot have trail drugs xxxx
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