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Crohn's Disease Forum » Your Story » Please help does anyone recognize


10-25-2015, 08:49 AM   #1
Tweeg
 
Join Date: Oct 2015
Location: Almelo, Netherlands
Please help does anyone recognize

It's been going on for six years

*Almost every day diarrhea
*Slime in my diarrhea or only slime
*Melena black diarrhea
*Extreme pain in my bowel Sometimes it's so bad that i'm going to vomit
*Lost a lot of weight. Bodyfat percentage 16%
*Vitamin D and B insufficiency
*Ulcers
*Tired pain in.joints
Sometimes i have a good period no diarrhea but then my poop looks flat or like a needle

Who recognize this please help
10-25-2015, 09:39 AM   #2
Clash
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The symptoms could fit a range of things going on in the GI tract. Have you seen a GI? Had bloodwork, fecal calprotectin stool test, imaging like MRE or scopes done?

Alot of the symptoms fit common CD symptoms and definitely warrant further investigation.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
10-25-2015, 10:07 AM   #3
Tweeg
 
Join Date: Oct 2015
Location: Almelo, Netherlands
The symptoms could fit a range of things going on in the GI tract. Have you seen a GI? Had bloodwork, fecal calprotectin stool test, imaging like MRE or scopes done?

Alot of the symptoms fit common CD symptoms and definitely warrant further investigation.
Yes but i'm going for a second opinion cause they can't tell me what is wrong
They examined my feces and blood. More then once They could see that i had an infection... but other times they could see nothing.

They have found extra arteries? In my uhmm the long one .. I can't come up with the right word. I'm Dutch trying to make myself understandable 😃
10-25-2015, 10:13 AM   #4
Clash
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So you are set up for a second opinion? Regular stool tests cover parasites, check for blood and infections. A fecal calprotectin stool test checks for inflammation in the bowels. So you may want to request that specifically.

Just keep pushing for answers. It may be a good idea to keep a journal about symptoms, food, bowel movements so you can present to the next doc.

I truly hope you find answers quickly. Hugs.
10-25-2015, 10:24 AM   #5
Tweeg
 
Join Date: Oct 2015
Location: Almelo, Netherlands
Yes that's was to high calprotectin
They gave me powders and drinks for gaining weight. Its discusting 😖

I'm so tired of always thinking when i'm away "better not eat or drink that, or better not eat at all. Is there a toilet? Omg now i'm in a bar shitting myself almost empty.. pale as a dead body sweaty" With a bit of luck i didn't vomit at the same time...where do you leave it?
I hope the have the answers for me Going to a university hospital now they are more specialized
10-25-2015, 10:35 AM   #6
Clash
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If your calprotectin was high then it is good you are going to have further investigations.

Some will switch to a low residue diet or a liquid diet during flares to help calm things down. In the US we have over the counter shakes like boost and ensure that are liquid formulas which contain needed calories. There are better and more broken down formulas we can get by prescription but maybe you could find something similar to try while waiting on next doc appt.
10-25-2015, 10:42 AM   #7
Tweeg
 
Join Date: Oct 2015
Location: Almelo, Netherlands
I'm going to search for shakes i like in the store or maybe at the gym.
I should have gone to another hospital earlier for a second opinion.11-19 I'm going
10-25-2015, 10:57 AM   #8
Clash
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Hopefully you can find an appropriate meal replacement shake that can help. I know sustegen is the equivalent of Boost or ensure in some countries.

Nestle produces alot of these type shakes so checking out their website may be helpful.
10-25-2015, 11:05 AM   #9
Tweeg
 
Join Date: Oct 2015
Location: Almelo, Netherlands
Mine are from nestle but i can't find a drink or something like that i like.
Thnx for answering 😊
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