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Crohn's Disease Forum » Extra Intestinal Manifestations » Arthritis » Not sure if symptom is Crohns related or need specialist


11-07-2015, 04:27 PM   #1
Beaverley Hellbelly
 
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Not sure if symptom is Crohns related or need specialist

In the middle of the night while in bed I get strong pains, feels like in my bones. I figured it was arthritis. I'm not 50 yet, have had Crohns symptoms for many years, diagnosed in the 90s.

The pain goes away during the day and I only feel pain if I flex my joints, pain from rib cage all around torso. I've had herniated disc with sciatica in the past so recognise the different severe pain with that, and I know this is different. I recently also had kidney stones, again, last time was 10 years ago, which is different pain again.

Last hospitalization in 2012, had leakage of ileostomy reversal, trying to drain the stuff, maybe there is still something going on in there. I'm otherwise pain free, though diarrhoea always there.

Not sure who to see about this, my family doctor could either think I'm seeking more pain meds, say its arthritis and sleeping pills, or undergo some inconclusive tests. I'm losing sleep and my coworkers probably think I'm an alcoholic since I'm so dragged out during the day.

And yes I've been on cannabis steady the last few years. Usually one dose after work, that's it. No other medication, Pentasa was ended due to tinnitus- ringing ears.
11-07-2015, 04:38 PM   #2
Charlotte.
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Sorry to hear you are in pain at night. Can you reproduce the pain during a day as well by making a certain movement or be in a certain position? If yes, that would sound more as if it is a pinched nerve and a chiropractor could help? If you can't really reproduce or localise it, I think it could be anything more or less, so you should definitely see your family doctor and ask him about what tests to run now or where to go.
My arthritis pain in the sacroiliac joint (which was the first joint where I had severe pain) is most present when I lay in bed but still present when I wake up, already there when I lay down, so not appearing after a few hours, but anything is possible, I would say. My pain increased to the extend that I could neither lay down nor stay or walk and I went straight to the rheumatologist, as I was diagnosed with Crohn's two months prior to that.
But yours sounds as if it could be arthritis, could be something else, could be anything.

Do you think it started slowly or was it present from one day to another?
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Crohn's Disease: diagnosed 2014 (at 24), symptoms for 10 years now
Enteropathic Arthritis, Sacroliitis, Osteopenia

Stelara; Uceris; Lansoprazole; Domperidone.

Previously: Remicade, Humira, Simponi, Azathioprine, Methotrexate, Sulfasalazine, Entocort, Uceris, Prednisolone, TPN, EEN, different alternative treatments.
11-07-2015, 04:56 PM   #3
Beaverley Hellbelly
 
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Location: British Columbia
I started noticing this pain back when sleeping in a bed built over a concrete pad, poorly insulated, and I was recovering from surgery, I associate it with that chill to the bones. Since then it went away and only recently started coming back again. I never tracked it but the pain would come and go for a few weeks at a time. These days I am not really cold, though I tried a heating pad last night and it didn't really help. Eventually I just got up since that's the only thing that stops it. Maybe it's a different pinched nerve.
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