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11-18-2015, 06:57 PM   #1
Mehita
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Muscle Soreness

I hate to blame everything on Crohn's and/or Remicade, so please tell me what you think...

DS just told me his whole body is sore - arms, legs, back. He said it's not his joints, it's the muscles. It started yesterday, but got worse today and is about a 5 out of 10 on being annoying/uncomfortable/not right. It's not painful, just an all around soreness.

We tried to think of what, if anything, he's done differently the last five days or so. He said in gym class they've been stretching before starting class, but it's no big deal. Touch your toes, stretch your hamstring, etc. He couldn't think of anything else.

Any ideas?

He's due for Remicade in one week.
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Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
11-18-2015, 08:06 PM   #2
my little penguin
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Growing or ready to grow ??
Myalgia ( muscle pain ) is very common with crohns
Just an extra
DS has it
Soaking warm tub
Hot packs and exercise tend to help DS
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11-18-2015, 08:33 PM   #3
Maya142
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Could he be getting sick?

If they just started stretching, could he sit out for the next day or two and see if it improves?

I agree with MLP, we use heating pads and hot showers for painful muscles.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
11-18-2015, 08:42 PM   #4
DanceMom
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My little one gets body/muscle aches with a virus. Sometimes it's the first sign she's getting sick. Tylenol usually helps.
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A is 12

Diagnoses: Immune Dysfunction, Hypogammaglobulinemia, Asthma, Allergies

Treatment: Privigen (IVIG), Flovent, Zyrtec, Cellcept
11-18-2015, 09:07 PM   #5
Farmwife
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Sick/virus was my first thought. I hope he gets better soon.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
11-19-2015, 09:41 AM   #6
Jmrogers4
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I know my younger son gets awful muscle aches pretty much over his entire body just before shooting up in height.
Is it bad to hope it's just that or a virus and is quickly over?
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
11-19-2015, 10:04 AM   #7
Tesscorm
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I know the feeling of not wanting to jump to crohns/remicade at the first sign of 'something'.

But, as it is an overall soreness, I would wait it out a few days and see if it is a virus or growing pains. But, for sure, try the hot showers, hot baths with epsom salt, etc. FWIW, a friend recently told me she swears by magnesium oil (rubbed on skin) for muscle/joint aches - S recently tried this for his chest/ribs but he hasn't noticed much of a different tho.
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
11-19-2015, 05:42 PM   #8
Mehita
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Today was better. Now it's just in his legs. His favorite suggestion was that he's growing, but he said he'd take a virus. Anything BUT Crohns!
11-19-2015, 06:16 PM   #9
my little penguin
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Watch magnesium oil
It is still absorbed by your system and too much magnesium can cause toxicity
11-23-2015, 09:37 AM   #10
Mehita
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Where might he be getting too much magnesium oil from? Isn't that just a topical thing?
11-23-2015, 10:46 AM   #11
Maya142
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How's he feeling Mehita?
11-23-2015, 11:37 AM   #12
Tesscorm
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Even topical applications are absorbed into your system. When S hurt his shoulder, I checked with GI if he could use voltaren to help with pain. GI said 'ok' but only sparingly as it's still absorbed. Imagine same would apply for magnesium oil or anthing else.
11-23-2015, 03:53 PM   #13
Mehita
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He's fine now and hasn't said anything for a few days. Remicade is on Wednesday.

I looked through different things he uses topically: lotion, soap, the acne cream. Nothing has magnesium oil in it unless it's under a different name.

Looking back, if I had to pick, I think I'd pick the stretching in gym class. I guess we'll see how things go after Thanksgiving break (with five days of no gym).
11-23-2015, 04:29 PM   #14
kimmidwife
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Mehita,
Hoping it just some weird fluke thing and he is feeling better!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
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