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Crohn's Disease Forum » Your Story » Just diagnosed


11-25-2015, 11:31 PM   #1
amelio01
 
Join Date: Nov 2015
Just diagnosed

Hello,
After months of diarrhea my doctor sent me for a colonoscopy where I was diagnosed with Crohns. I currently feel like I am drowning in information! Im having trouble with all of the contradictory information out there. Im definately going to ask for a referal to a dietitian sooner than later. Because my crohns has been left unchecked for months, Im experiencing a terrible flare up and am asking for help in what I can eat. Ive been eating apple sauce, chicken broth with soda crackers, and chicken and rice. Any other ideas?
11-25-2015, 11:47 PM   #2
ronroush7
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Bananas and toast. Go to a nutritionist and ssdk to be tested for food allergies. Best to you. Keep us updated.
11-26-2015, 02:09 AM   #3
amelio01
 
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Thanks! The most difficult thing right now is hearing that finding the right foods is a lot of trial and error. Im loosing a lot of weight and dont have much of an appetite. I cant wait to figure out what works and what doesn't!
11-26-2015, 02:14 AM   #4
ronroush7
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Every person is different. I , personally feel as I get older I am finding more foods that aggravate the Crohn's Disease. I hope things settle down for you.

11-26-2015, 11:50 AM   #5
David
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Welcome to the community. I'm sorry to hear of your diagnosis. Have they put you on any medications?

For food, I would also look into enteral nutrition.

All my best to you.
11-26-2015, 12:14 PM   #6
amelio01
 
Join Date: Nov 2015
I just got diagnosed on Tuesday. I have a follow up appointment with the doctor to go over medications he talked about 2 different ones- I cant remember the names but they were in the form of a shot. Right now I trying to figure out what to eat! I tried scrambled eggs and theywent right through me this morning!
11-26-2015, 12:45 PM   #7
ronroush7
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Ouch. I was recently told not to do eggs anymore.

11-26-2015, 03:23 PM   #8
amelio01
 
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Im sticking to apple sauce, broth and soda crackers and chicken and rice. I also drink Gatorade and lots of water. These foods seem to be okay but my energy is very low! Althought I had diarrhea before, since the colonoscopy its been worse- Im wondering when it'll go back to 'normal!'
11-26-2015, 03:24 PM   #9
ronroush7
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Im sticking to apple sauce, broth and soda crackers and chicken and rice. I also drink Gatorade and lots of water. These foods seem to be okay but my energy is very low! Althought I had diarrhea before, since the colonoscopy its been worse- Im wondering when it'll go back to 'normal!'
Have you had your blood checked?

11-26-2015, 03:28 PM   #10
amelio01
 
Join Date: Nov 2015
Yes. The last time was a few weeks ago before my diagnosis. Im assuming they'll send me again....
11-26-2015, 03:32 PM   #11
amelio01
 
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At first they thought it was fatty liver disease because I had had that in the past but my levels came back normal and had completely reversed the fatty liver. Thats when they decided to send me for the colonoscopy.
11-26-2015, 03:34 PM   #12
ronroush7
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Maybe they need to stick you on iron.

11-26-2015, 03:37 PM   #13
amelio01
 
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I was thinking about that too. I have an appointment with my family doctor next week and Ill ask her about iron and any vitamins I should be taking.
11-26-2015, 04:31 PM   #14
amelio01
 
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Does anyone know if Tylenol is okay to take?
11-26-2015, 04:39 PM   #15
ronroush7
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Out of otc drugs for pain, it is the only one my doctor recommends. Aspirin and the others can cause bleeding.

11-26-2015, 05:22 PM   #16
amelio01
 
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Thanks!
11-26-2015, 06:27 PM   #17
ronroush7
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You are welcome


11-28-2015, 04:35 PM   #18
amelio01
 
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This might be my denial talking but has anyone seeked a 2nd opinion about their diagnois of bowel disease? How accurate is a colonoscopy? I did have some biopsies take and am still waiting on the results.
11-28-2015, 04:58 PM   #19
ronroush7
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Have you had a fecal calprotectin done?

11-28-2015, 04:59 PM   #20
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You give a stool sample and it measures the inflammation.

11-28-2015, 05:23 PM   #21
amelio01
 
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No and no. I have an appointment with my doctor so Ill will inquire about those 2 tests.
11-28-2015, 09:27 PM   #22
David
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There's nothing wrong with seeking a second opinion.
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