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12-21-2015, 09:32 PM   #1
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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Getting Off Of EEN

Hi everyone!
I was on the EEN diet from early October until early December (about 10 weeks). I drank 5 Boost plus a day due to a flare up and high inflammation. Along with the Boost plus, I was on Prednisone (currently tapering down and on 10 mg). My doctor started me back on Remicade (which I've been on before: Sept-August 2015). My doctor was worried about starting Remicade because of the risk of causing an abscess, but she finally told me to start tapering down on the Boost drinks because my fecal calprotectin went down a lot. I went down to 4 drinks, then 3, etc. and now I am eating food again. So far, I think that because of the Remicade, I've been ok with eating normal food again (haven't been using the bathroom as much). I feel fine, but I was wondering if anyone can share their thoughts about their transition into real food and their reactions. Thanks guys!
__________________
19 year old female,
Crohns dx: March 2014 at 16 years old,
Past medications/treatment: 5 and 7.5 mg/kg Remicade every 4-8 weeks, Pentasa, EEN nutrition with Boost Plus (10 weeks), Prednisone
Current medication: 10 mg/kg Remicade every 7-8 weeks, 50 mg 6 MP daily, and vitamin D supplement

In remission!

Last edited by laura98; 12-21-2015 at 10:28 PM.
12-21-2015, 09:37 PM   #2
my little penguin
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Join Date: Apr 2012

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Ds is 12 has done EEN twice
the first time he was 7 and did 9 weeks of EEN
Started back on food slowly
Added rice first - plain for a few days
Then veggies cooked
Then plain chicken
Etc ...

This time ds is switching from EEN (2 weeks ) to the crohns exclusive diet
He starred in April and just got to 50/50 in the past week
Good luck
__________________
DS - -Crohn's -Stelara -mtx-IVIG
12-21-2015, 09:41 PM   #3
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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Ds is 12 has done EEN twice
the first time he was 7 and did 9 weeks of EEN
Started back on food slowly
Added rice first - plain for a few days
Then veggies cooked
Then plain chicken
Etc ...

This time ds is switching from EEN (2 weeks ) to the crohns exclusive diet
He starred in April and just got to 50/50 in the past week
Good luck
What is the Crohns exclusive diet?

& thank you!
12-21-2015, 10:13 PM   #4
my little penguin
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Join Date: Apr 2012

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http://www.crohnsforum.com/showthread.php?t=71686

Thread on the research paper etc...,,
Basically nothing artificial
All fresh not frozen foods ( lots of veggies /fruits/fish chicken )
Very few grains
No canned goods cookies cakes etc...
Seems to help those when mess alone weren't enough
Only a small study though but since ds doesn't have typical crohns
And he was already on humira plus mtx his Gi wanted to try it
It has helped a lot
12-22-2015, 01:23 AM   #5
ronroush7
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Join Date: Oct 2013
Location: vienna, Virginia

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Has your doctor tested you for antibodies before putting you back on Remicade?
12-23-2015, 01:55 PM   #6
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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Has your doctor tested you for antibodies before putting you back on Remicade?
Yes I did, and there were no antibodies!
12-23-2015, 02:05 PM   #7
ronroush7
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Location: vienna, Virginia

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That is great

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