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Crohn's Disease Forum » Tests for IBD » Getting first colonoscopy after 7 years. VERY nervous


12-23-2015, 12:55 AM   #1
afidz
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Getting first colonoscopy after 7 years. VERY nervous

The last colonoscopy I had went terribly wrong. I have had the same GI for the last 6 years, he is absolutely wonderful. He knows my history and has been very understanding when I tell him I am just not ready for another scope. Especially now, because my hernia is so bad and my organs are so displaced, a scope is going to be very difficult. However, my GI and I both feel, in light of the recent events that it is time for him to do a scope. For all he knows, I don't even have Crohn's. (not really, I have it) He has just been going off of what the previous GI's have written in their reports to treat me. For 6 years.
So, he is going to do one, next Tuesday. He blocked out extra time and is doing it at the hospital instead of the endoscopy center where he normally does them, just in case something does go wrong.
I trust him, I am just SO nervous. The last colonoscopy literally destroyed my life. I will never lead a normal life or bare my own children because of it. I just can't go through any more pain or heartache, I have already been through more than I can handle.
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Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Humira
Remicade
Asacol HD
Cimzia
Methotrexate
12-23-2015, 01:26 AM   #2
Jennifer
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Good luck with the scope! I know it's beyond scary because of the perforation that happened the last time with your other GI but this one is well aware of your condition and I'm sure that if he doesn't feel that he can continue then he'll stop there. Let me know how it goes and if you aren't feeling up to posting after your procedure then I can post an update for you if you want. We're all rooting for you!
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
12-26-2015, 10:09 PM   #3
teeny5
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Good luck!
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Previous meds: Sulfasalazine, Asacol, Rowasa, Pentasa, Entocort.


"Adopt the pace of nature: her secret is patience. -Ralph Waldo Emerson"
12-27-2015, 10:39 AM   #4
Lizzie
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Hope it goes well for you. I know what it's like to be terrified of colonoscopy, and that's without the horrendous problems you have had. It's good that you trust your GI, that's so important. All the best.
12-27-2015, 12:48 PM   #5
my little penguin
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Wishing you the best of luck Tuesday
Hoping your GI can get some answers for you
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12-27-2015, 05:13 PM   #6
Jennifer
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Good luck with the prep tomorrow and the scope Tuesday afidz!
12-28-2015, 04:36 AM   #7
afidz
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Good timing I suppose. There is a rather large abscess on my butt cheek that seems to be getting bigger. Glad I'm seeing my GI. I have never had a fistula, hoping I don't now. Also hoping that there is no disease progression but with the way things have been going, I'm not keeping my hopes up
12-28-2015, 02:05 PM   #8
Christi
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Good luck with scope please keep us updated
12-28-2015, 08:29 PM   #9
afidz
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prep is going well, except I am starving. I am using moviprep. WAY better than Golytely
12-29-2015, 12:01 AM   #10
Jennifer
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Good luck tomorrow!
12-29-2015, 12:05 AM   #11
Lady Organic
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Good luck and let us know how it went!
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''UC-like Crohn's'' since 2001:
on: 25mg 6-MP (purinethol)+ B12 shots
minor hands/wrists chronic arthritis since 01/2013

Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA, cortifoam, Imuran (failed) Purinethol (success) methotrexate (failed CD and arthritis).
12-29-2015, 09:52 AM   #12
Optimistic
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Thinking of you. Should be over soon. You did it!
12-29-2015, 10:00 AM   #13
Maya142
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Good luck!! Hope it goes well!
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
12-29-2015, 10:15 AM   #14
my little penguin
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Thinking of you
12-29-2015, 03:44 PM   #15
Lisa
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Just saw this...hope everything is going well or went well......will look for an update!
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While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
12-30-2015, 12:08 AM   #16
afidz
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Hey everyone sorry for the late update. Spent most of the day sleeping. Everything went well. In looking at the reports of my last GI's scope and what my current GI said, there is no new disease progression. I have it in my transverse and ascending colon. There was internal hemmerroids in my rectum that I had no idea about. I had several ulcers that seemed pretty small to me. Overall everything went well, my GI was able to easily navigate through my colon despite the hernia. I think g he told Andrew there was one part where they had to move my abdomen in a weird way to move the scope but it went well. He said to make an appointment in 3 weeks but I'm going to make it sooner because I'm off meds and not going to last that long without losing my lung capacity. Thanks everyone for thinking of me today. Very pleased with the outcome
12-30-2015, 06:35 PM   #17
Axelfl3333
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Bows down in admiration.moviprep not bad!the Devils brew.good luck
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Crohn's Disease Forum » Tests for IBD » Getting first colonoscopy after 7 years. VERY nervous
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