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02-17-2016, 11:59 AM   #61
Bufford
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I would confront this doctor and literally crawl up his backside telling him in no uncertain terms the situation and put the fear of god into him. He has been unprofessional, shows no honor whatsoever. To say what he did is based on his own opinion and not facts, that in itself is malpractice. These kinds of doctors should be routed out of the system as they will only victimize other patients.

My advice is do not ever go back to that doctor and find another as soon as possible.
02-17-2016, 02:01 PM   #62
fuzzy butterfly
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Hi I agree with Bufford, and I think you should report this to the Pals department of the hospital and if you wish to the GMC, it is beyond belief how your wife is being treated, sending love n hugs 💕
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02-17-2016, 02:22 PM   #63
Salad_Shooter
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I am in total shock.

That stoma appears to be very unhealthy and in need of revision. I cannot believe what you're being told. Is the UK so far behind us in treating these diseases?? I've read horror stories after horror stories...blaming the patient, wanting the patient to see a psychiatrist, patients harming themselves. What is wrong with these doctors???

This is beyond shocking. The whole thing reeks of malpractice and negligence.

Poor you two. I don't know what to say. I will, however, pray for you both.
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End Stage Severe Fistulizing Crohn's Disease (Diagnosed 40 years ago)
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02-17-2016, 02:33 PM   #64
Salad_Shooter
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I wish you two could come to the states. I wish you could see my GI. When I had my surgery, within 2 hours post op, it began turning black..and inside of a week, I was back in surgery for a revision. It had fallen apart. I do not like the looks of those photos. She'd be in surgery in a heartbeat here, I imagine. Just my opinion. It just looks very unhealthy and it doesn't look like any stoma I've ever seen.

Bless you two and what you're going through. Please give Sarah a hug from us. Let her know we're thinking about her and we're on her side.

I just can't believe the trials. I can't.
02-17-2016, 06:22 PM   #65
fuzzy butterfly
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Hi salad, the uk is not so behind in treating crohn's as such. Unfortunately Sarah has copped for the worst doctor I've ever heard of by the sounds of it . I can't believe what they are being put through it's a crime in my eyes. You know what if I lived closer I'd go see that doc and give him the riot act, boy would I rip him to pieces. I'm so furious with how he is treating Sarah 😬
This situation has me in tears at times and in a rage times.. Arghhh
💕
02-17-2016, 06:50 PM   #66
Salad_Shooter
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But, this is the third post I've read on here where a doctor in the UK (different doctors) are turning away really sick people, saying it's all in their head and they need a shrink....OR they are doing it to themselves.

I'm fuming. I agree......tears/rage/argh
02-17-2016, 07:00 PM   #67
fuzzy butterfly
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Oh ye it does happen. Unfortunately,and in all countries from what i can gather. It could be time for the people to revolt,then maybe things will change. It is so infuriating ...why are people like him allowed to practice,should be struck off..😠

Last edited by fuzzy butterfly; 02-18-2016 at 02:10 AM.
02-18-2016, 12:08 AM   #68
Christi
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This is not fair and i will not leave it there, docs like that dont deserve to be there. Im praying for you both. That stoma arent even there really anymore. Take it further and find someone else
02-18-2016, 12:34 AM   #69
Susan2
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It might make you feel better but there is absolutely no point in taking out your anger/concern/frustration/disgust on the doctor. The best thing to do is vote with your feet - go somewhere else. Write a letter of complaint, if you like, but it is far more productive to pour your energies into finding someone who will take a fresh and unbiased look at the problem. Fight the battles that are worth fighting at the time. It might seem unfair, but the last thing you and your wife need is more stress.
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02-18-2016, 05:25 AM   #70
Jennifer
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I'm just now catching up on this thread and I'm having a hard time believing that all of these people at that hospital think that her stoma looks fine and that she's doing this to herself. HOW????

That stoma looks like it needs to be redone and that may be causing the blood loss. I haven't had a stoma but I did have to have a large wound packed for a month so it could heal from the inside out. Tissue that isn't covered with skin bleeds really easily so my guess is that the swollen/irritated stoma is what's making it constantly bleed. There could be another cause but that's what came to mind when looking at the pictures.

I'm not really certain how things work in the UK but is it possible to go to another hospital when you're on vacation/holiday? Would it be possible to just go for a drive and then suddenly need to go to a hospital while you're away or would they really make you drive back a few hours to go back to that garbage one she's at now?

Also we do have a section where you can rate/post a review of your doctors so you're welcome to share any info about them on the public forum: http://www.crohnsforum.com/forumdisplay.php?f=79

This is the type of thing that almost sounds news worthy. I wonder if it's possible to contact a local news station about it if they simply release her and do nothing for her. Leaving her like that is dangerous and they should be reported.

I'm so sorry she and you are going through this. This is horrible!
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Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
02-19-2016, 08:47 AM   #71
nitty
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Wow! I've just been reading this thread and I am totally appalled. It's a long time since I was a nurse, but the wound breakdown process is so obvious it is disgusting that you have had so little help or compassion.

I would also really like to make it clear that this is by no means representative of normal NHS treatment, and this doctor - and the stoma team - have handled things incredibly badly.

You have every right to change your doctor, even if it means walking off the ward and heading to a different A&E.
First, get talking to the patient liaison service of your hospital with your complaint and ask if you can be referred to another doctor, preferably in a different hospital if that is a feasible option for you.

Once you get sorted out with better treatment - revision of stoma looks like it would be needed - then you need to go back and put in an official complaint about this terrible team.

OK, a complaint won't help you personally, but it means that this doctor and his team's practices will have to be looked into and changes made if necessary. If people don't complain about bad treatment then nothing will be done to improve things for others in the future.

Best wishes to you and your wife. I really hope you get better help soon.
02-21-2016, 12:35 PM   #72
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Update: Apologies I have not updated sooner, but I have just been so hacked off by it all.

So we had a meeting with the Consultant on Wednesday and as predicted it was a waste of time. He has made his mind up that Sarah is doing all to herself and yet when I challenged him, he failed to provide any evidence to back it and said that he didn't need too, as he has discussed with 7 other Colorectal Consultants, including a professor (who is regarded as one of the country's leading bowel doctors) and they had all come to the same conclusion and they can't find a medical reason.

He also said he had spoken to the Consultant from St Marks and she had sent him pictures that backed up his theory, however he was a bit shocked when I told him they were in fact the pictures I had taken and sent to the consultant looking for help. He even tried to say they weren't my pictures (the ones posted here)...lol

The only person that can help Sarah is a psychiatrist.

We are a bit of a loss as what to do now, as Sarah just wants to get better. It's pointless asking for a 2nd opinion as he seems to have spoken to the Doctors that Sarah would get a 2nd opinion from. So we will wait and she has had her sessions with the shrink and go from there.

I 100% believe Sarah is not doing anything to herself, as I think over the last 8/9 years, I would have at least had a suspicion that all was not well. She has never acted strangely or tried to hide anything when I enter room. I have seen how upset this makes her, when there is no one else around and I have had to drag her to hospital, when she has been ill. If all this was some sort of self-harming issue to get attention, as this doctor thinks, I wouldn't have to drag her to hospital.
02-21-2016, 12:40 PM   #73
Salad_Shooter
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There's no way she could be doing this to herself. All they had to do was look at the photos. That stoma needs a revision very badly.

I am so SO sorry you two are dealing with this. What a crock of crap!! I'm so mad I could bite nails in two. I can't imagine how you two feel.
02-21-2016, 12:47 PM   #74
Salad_Shooter
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And that's as nice as I can be about those *(&^%^**(&) doctors..
02-21-2016, 12:57 PM   #75
fuzzy butterfly
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I cant say anything im too angry.. sorry.
Il be back when i can be more calm xxxx
02-21-2016, 01:30 PM   #76
Bufford
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If I had this happen, that doctor would be needing the ER. Not sure what to think, perhaps go to another country to get treatment and then return and sue this doctor?
02-21-2016, 02:09 PM   #77
Grotbags
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What a load of bullshit !, if he has consulted with 7 other consultants, they've come to that conclusion ( so he claims ) through his biased evidence !.
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02-21-2016, 02:18 PM   #78
fuzzy butterfly
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I agree with all of the above. Time to get to a hospital out of your area. Then report this doc to the general medical council.go to the PALS office in the hospital and get started on a complaint. I am ashamed that this is going on in this country its bloody barbaric ...😠😠
Much love n hugs to you and Sarah. We are all on your side here. As far as im concerned you can show any of my posts about this to anyone you need to if it may help. 💞💞💞💞
02-24-2016, 01:33 PM   #79
Christi
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I will sue them no questions ask, im so sorry but im so angry!!! This cant go on. How can they leave it like this? That stoma are closing, what will happen then? There are are so many things that could go wrong , no way. Her health is very much important as the next one. Please let us know and im sending support for you and sarah
02-26-2016, 04:54 PM   #80
Christi
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Just want to find out how things are going
02-26-2016, 05:27 PM   #81
fuzzy butterfly
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Yes i was just wondering the same thing Christi..
Hope you are getting somewhere with this p2baa. Love to you n Sarah xx
03-08-2016, 01:26 PM   #82
Christi
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Yes mandy im a bit concerned for them and hope they are doing well
03-08-2016, 02:30 PM   #83
Bufford
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I've been wondering too, I can only hope for the best of outcomes.
03-20-2016, 02:56 PM   #84
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To Sarah and her husband:
No words will describe how horrible it is to look at those pictures. NO WAY would any physician in the US let that go. I cannot fathom why any physician that has "treated" you think that it was self-inflicted. They are total quacks, inhumane, and they should walk a mile in your shoes. It is a total disgrace. My heart goes out to you both, and I hope you are able to find at least one medical person that can help you. It makes me sick how evil the physicians are that you have come in contact with. Many prayers to both of you.
Love, Snap
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