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01-23-2016, 10:14 AM   #61
Hollies83
 
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Blimy it still sounds confusing to me lol

Some of you have answered me already but are any of you able to eat takeaway ie Indian, Chinese etc? Or do you stay well away from it? Also do any of you drink alcohol? Can I also ask what you drink other than water? 😊
01-23-2016, 12:18 PM   #62
Absentminded
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Blimy it still sounds confusing to me lol



Some of you have answered me already but are any of you able to eat takeaway ie Indian, Chinese etc? Or do you stay well away from it? Also do any of you drink alcohol? Can I also ask what you drink other than water?

I have an Indian takeaway once in a while, although it doesn't always agree with me unfortunately.
I do also drink a little bit of alcohol, never in excess, my favourite is gin and soda or a glass of wine. During the day at work I have herbal tea or decaf coffee, I also drink a lot of sparkling water with fresh lime in it.


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Lucinda x

Diagnosed: July 2009

Resection and removal of Enterocutaneous Fistula: Jan 2014
Pelvic infection Drainage: April 2013
Ileostomy reversal: February 2013
Ileocecal resection and temp. ileostomy (Say hello to Norman!): Nov 2012
Current Medication: NONE!

Past medications: Humira, Infliximab, Azapthioprine, Asacol, Budesonide, Prednisolone, Flagyl, Cipro, Cholestyramine (Questran), Fortisips.
01-23-2016, 12:52 PM   #63
Hollies83
 
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I have an Indian takeaway once in a while, although it doesn't always agree with me unfortunately.
Thank you for your response 😊
I do also drink a little bit of alcohol, never in excess, my favourite is gin and soda or a glass of wine. During the day at work I have herbal tea or decaf coffee, I also drink a lot of sparkling water with fresh lime in it.
Well the only thing I used to have from a curry place was a chicken korma, can't do spicy, I stopped eating takeaways
altogether just in case, I don't know if a korma would be too creamy?
Do you drink squash at all?
01-23-2016, 12:54 PM   #64
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Well the only thing I used to have from a curry place was a chicken korma, can't do spicy, I stopped eating takeaways
altogether just in case, I don't know if a korma would be too creamy?
Do you drink squash at all?
For me,if I have vegetables, they have to be well done.

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
01-23-2016, 12:56 PM   #65
Hollies83
 
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For me,if I have vegetables, they have to be well done.
Hello Ronroush7 😊
Oh I have given up on veg other than carrots and green beans.
01-23-2016, 01:09 PM   #66
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I have mostly banned vegetables because for the most they mess with my stomach.

01-23-2016, 01:20 PM   #67
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Hi Hollies-I'm guessing that a squash drink is not pureed squash but a highly processed drink? I drink water and only occasionally tea. High sugar drinks can throw off your natural gut flora and the "low sugar" ones have unnatural chemicals(who knows what these do to our GI track?)
01-23-2016, 01:22 PM   #68
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Hi Hollies-I'm guessing that a squash drink is not pureed squash but a highly processed drink? I drink water and only occasionally tea. High sugar drinks can throw off your natural gut flora and the "low sugar" ones have unnatural chemicals(who knows what these do to our GI track?)
That's true, I do try to not eat a lot of sugars.
01-23-2016, 01:54 PM   #69
Absentminded
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Well the only thing I used to have from a curry place was a chicken korma, can't do spicy, I stopped eating takeaways

altogether just in case, I don't know if a korma would be too creamy?

Do you drink squash at all?

My favourite from my curry place is a tandoori mixed grill as it doesn't have any sauce, but I can tolerate a korma or a butter chicken.

I don't drink squash at all, I try not to have any sugar (fructose) in my diet so stick to sparkling water.


01-23-2016, 02:40 PM   #70
Hollies83
 
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My favourite from my curry place is a tandoori mixed grill as it doesn't have any sauce, but I can tolerate a korma or a butter chicken.

I don't drink squash at all, I try not to have any sugar (fructose) in my diet so stick to sparkling water.
Oh okay I shall try that once and see how I get on, I have been really good and not had any, have brought it for everyone else and I have had boring food 😟

I don't like sparkling water but drinking a lot of water.

It's so nice I can speak to you and the others to get ideas 😊
01-23-2016, 02:50 PM   #71
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Oh my i have read the posts here on avoiding sugars. Jeepers i cant live without sugar im a sugar addict . So glad i can tolerate it. Or id just go crazy sugar is the only thing i cant do without. Spicey food i can eat in small n not often doses. Coffee tea milk water all are fine. Alcohol only in small amounts ie half a glass of wine at any one time or i get the D the day after. . Thats me now post two op's. B4 then i could eat n drink well basicly bugger all without severe pain for 18 mths. Till gi said surgery next stop on the crohns train. . Love to you all 💕
01-23-2016, 03:03 PM   #72
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Oh my i have read the posts here on avoiding sugars. Jeepers i cant live without sugar im a sugar addict . So glad i can tolerate it. Or id just go crazy sugar is the only thing i cant do without. Spicey food i can eat in small n not often doses. Coffee tea milk water all are fine. Alcohol only in small amounts ie half a glass of wine at any one time or i get the D the day after. . Thats me now post two op's. B4 then i could eat n drink well basicly bugger all without severe pain for 18 mths. Till gi said surgery next stop on the crohns train. . Love to you all 💕
Hi Mandy, lucky I'm not a sugar person I have always been more savoury x not fussed about chocolate at all x can't you believe you have had two ops x I am dreading if they ever tell me that x it's a chicken korma I am missing x
01-23-2016, 03:14 PM   #73
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Hi hun. I hope you dont have to do the surgery one. I only had two bcoz i had a temporary ileostomy n stoma . To give my bowel a rest n time to heal. So the 2nd was just to reverse that so i no longer had a bag on my side. To be truthfull i do not regret the op. As i was ready to slit my throat at the time. The pain i could not bear any longer. Constant day n night for 18mths. No let up what so ever n id had enough. So took myself to my local hospital with a suitcase packed n said sort me out now coz i aint leaving till you do.
Had to take a stand and make clear no fobbing off this time matey's. I didnt scream or shout just told it like it was. Within a week i was opperated on n felt so much better the day after n have never looked back as they say. Never take no for an answer is what iv learnt on my crohns train ride . It been one hell of a ride. But im stronger n braver for it .☺💕.
01-23-2016, 03:21 PM   #74
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Hi hun. I hope you dont have to do the surgery one. I only had two bcoz i had a temporary ileostomy n stoma . To give my bowel a rest n time to heal. So the 2nd was just to reverse that so i no longer had a bag on my side. To be truthfull i do not regret the op. As i was ready to slit my throat at the time. The pain i could not bear any longer. Constant day n night for 18mths. No let up what so ever n id had enough. So took myself to my local hospital with a suitcase packed n said sort me out now coz i aint leaving till you do.
Had to take a stand and make clear no fobbing off this time matey's. I didnt scream or shout just told it like it was. Within a week i was opperated on n felt so much better the day after n have never looked back as they say. Never take no for an answer is what iv learnt on my crohns train ride . It been one hell of a ride. But im stronger n braver for it .☺💕.
Oh you poor thing you have been through a lot x I am hoping they have caught mine in time x my sister has stoma, she is spina bifida x so I know all about that but to be honest I don't know if I could handle it x I just want to get better and get back to normal x can I be cheeky and ask how old you are l, just tell me to mind my own if you want x
01-23-2016, 03:40 PM   #75
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Lol im 53 chic. Was dxd at 49 after about 4yrs of what i call pissing about trying to find out what was wrong.
I hope they have caught you early n can get you well soon.
Ah so your aquianted with the old stoma one. Is your sisters stoma related to her SB.( Il mind my own if you wish there).
I found the stoma (which i named Hetty n the witches cauldron as there was always something brewing 😆 )no problem maybe bcoz i felt sooo much better for it. I saw it as my saviour n took it into my heart. Had many a conversation with.. as it seemed to gurggle alot,kinda like a baby lol.
Heres to you getting back on track hun ☺💕
01-23-2016, 03:42 PM   #76
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I know what you mean about sugar, Mandy, I am an addict too, brought up on the stuff from babyhood (sugared water in my bottles) and I've got the teeth to prove it! I ate little else but cakes, sweets, biscuits and chocolate as a kid and wasn't much better as an adult. However, after that terrible month I had when I was in agony even sipping water, I've given it up! And I'm a lot older than you, I'm 61 soon. So if I can do it, honestly, anyone can. I've not eaten sugary stuff for four or five months now (except for a chocolate muffin before my colonoscopy, I figured that the prep would do a lot more damage than one little bun, well, one enormous bun actually). I almost don't miss it now. To begin with, I wanted to snatch cakes out of people's hands and devour them!
01-23-2016, 03:45 PM   #77
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Hehe lol x yeah my sister had a bag for a few years from the age of 14 but they didn't something called the ace procedure so now she doesn't have a bag but has a stoma and uses catheters x I think I would struggle with it x I am only 32 and have never had anything wrong with me so was so upset to be told I have crohns, really was hoping it was what my mom had and that's gluten and what intolerance - coeliac x
01-23-2016, 03:47 PM   #78
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☺ oh well done you Lizzie. I really am a sweet toothed monster lol. I guess if i really had to i would but its my only pleasure. I gave up smoking 2yrs back when i had my 1st op. To give up sugar i dont think id live longer it would just seem like it 😆
01-23-2016, 03:47 PM   #79
Hollies83
 
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I know what you mean about sugar, Mandy, I am an addict too, brought up on the stuff from babyhood (sugared water in my bottles) and I've got the teeth to prove it! I ate little else but cakes, sweets, biscuits and chocolate as a kid and wasn't much better as an adult. However, after that terrible month I had when I was in agony even sipping water, I've given it up! And I'm a lot older than you, I'm 61 soon. So if I can do it, honestly, anyone can. I've not eaten sugary stuff for four or five months now (except for a chocolate muffin before my colonoscopy, I figured that the prep would do a lot more damage than one little bun, well, one enormous bun actually). I almost don't miss it now. To begin with, I wanted to snatch cakes out of people's hands and devour them!
Good for you x I know you can do it x I was one for drinking wine and I don't drink it now and takeaways I had too many and I don't need them now x just shows x mind you it's easier when you know you can't have them in case your health deteriorates x
01-23-2016, 03:56 PM   #80
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Ye coeliac is easier. Crohns is a sod of a disease but we can get the better of it. As research n meds get better we have even more chance of a cure or at least something that really keeps it under control. As you are quite a bit younger than I you have more chance of that happening in your lifetime. I sure hope it happens in mine but defo hope it does in yours.
Are right so she has no bag now. I have not heard of the proceedure so i shall google that. I would have thought the bag would be less hassle but maybe im wrong there. I often am 😃
01-23-2016, 04:17 PM   #81
Hollies83
 
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Ye coeliac is easier. Crohns is a sod of a disease but we can get the better of it. As research n meds get better we have even more chance of a cure or at least something that really keeps it under control. As you are quite a bit younger than I you have more chance of that happening in your lifetime. I sure hope it happens in mine but defo hope it does in yours.
Are right so she has no bag now. I have not heard of the proceedure so i shall google that. I would have thought the bag would be less hassle but maybe im wrong there. I often am 😃
I suppose it's the fact you don't have the bag permanently, she has a catheter that goes into the stoma and has a washout which means she is on the toilet for a few hours every other night x
I know there isn't a cure for crohns, I'm not sure if there will be for a long time but if I can feel better and get back to work that will help me x
01-23-2016, 04:29 PM   #82
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No no cure yet as u say. But who knows maybe one one day !!.
Ah i see, that actualy seems as it may be easier. Not having to empty bag a few times a day. Tho the few hours seems a bigish task.
I hope you can too chic. You will be in my prayers as i ask for your wellness. 💞💋
01-23-2016, 04:30 PM   #83
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Waiting for a cure.

01-23-2016, 04:32 PM   #84
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As are we all my friend. Heres hoping it comes soon the sooner the better for us eh ?☺💕
01-23-2016, 04:54 PM   #85
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Yes

01-28-2016, 02:45 AM   #86
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Diet is hugelyy important. Stay away from acidic foods and drinks and friend, which probably is obvious ha..
01-29-2016, 10:56 AM   #87
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Oh diet is hard, I only eat little bits and just feel so full 😊
01-29-2016, 12:10 PM   #88
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Oh diet is hard, I only eat little bits and just feel so full 😊
My GI told me after my resection to eat smaller meals more often.

01-29-2016, 01:26 PM   #89
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Oh tell me about hollies i eat the same portion size as a bird n feel full looking at it. I so need to gain some weight but cant eat a lot n not really hungery most of the time. 😕💕
01-30-2016, 10:46 AM   #90
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Yes I was told eat little often but even when I do that, doesn't help that you can't eat but your belly is smaller now so just won't let you, my specialist that I need to eat but just don't fancy it half the time 😊 I so fancy a korma but haven't eaten a curry for months now so not sure what it would do, mind you still on steroids at the moment so wouldn't really know if my tummy can take it 😩
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