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Crohn's Disease Forum » Parents of Kids with IBD » Triple digit weight!


01-23-2016, 10:40 AM   #1
pdx
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Triple digit weight!

E hit 100 pounds last night, for the first time ever! She was 5'1" and 75 pounds at diagnosis a year ago and 69 pounds a month later when nothing was working for her yet. EEN got her up to 90 pounds last spring, and supplemental EN up to 95 over the summer.

She called the whole family upstairs to see the scale reading.
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Daughter E (15) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (currently on 9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (15 mg weekly)
vitamin D, folic acid, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Topical clobetasol for Remicade-induced psoriasis
01-23-2016, 10:45 AM   #2
Clash
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That's awesome!
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Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
01-23-2016, 11:07 AM   #3
Farmwife
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Lol, tell her to enjoy a 100 pounds!
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
01-23-2016, 11:16 AM   #4
malorymug
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Yay!!! May she never go back!! I'm so please she is doing well.
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Mom to: 15 year old boy
Crohn's in stomach, small intestine, large intestine, and perianal disease
Diagnosed April 2014, at age 13

Currently taking:
Remicade 10mg/kg every 6 wks
Methotrexate 7.5 mg/wk
Cipro
Augmentin
Miralax

previous meds:
6mp 50mg
Flagyl
Cipro
Prednisone 30 mg
01-23-2016, 11:23 AM   #5
ronroush7
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That is great news!;!!!//.
01-23-2016, 11:24 AM   #6
Optimistic
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Wonderful!! She has worked very hard to get there. So glad.

I'll celebrate with her by having something calorie rich!! 😀
01-23-2016, 11:42 AM   #7
Maya142
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Way to go E!!

My daughter insisted on a cake when she reached weight milestones - so one when she reached 90 lbs and another when she reached 100 lbs. Might be an idea for E .
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
01-23-2016, 12:02 PM   #8
my little penguin
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Good news to hear
That's wonderful !!
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DS - -Crohn's -Stelara
01-23-2016, 12:46 PM   #9
pdx
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Location: Portland, Oregon

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My daughter insisted on a cake when she reached weight milestones - so one when she reached 90 lbs and another when she reached 100 lbs. Might be an idea for E .
Thanks, everyone! And a cake is great idea!
01-23-2016, 01:13 PM   #10
crohnsinct
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That's awesome! How tall is she now?

I remember when O hit 100. We celebrated also. But then she dipped down a bit and back up...needless to say...lots of cake around here!
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
01-23-2016, 01:17 PM   #11
ronroush7
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Thanks, everyone! And a cake is great idea!
How old is she?

01-23-2016, 01:51 PM   #12
pdx
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She's 5'3" now, so she gained 2 inches this year (and she's 13.5 years old, ronroush). She was above 95th percentile for height until around 8 years old, when Crohn's symptoms started, so I think she's still got some height to gain. She also doesn't have many signs of puberty yet either. It seems like her body was really just focused on healing and gaining weight this year.
01-23-2016, 01:55 PM   #13
crohnsinct
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That's so awesome! Grow, grow, grow! Gain, gain, gain!

T was also always ginormous for her age until a few years ago, Sadly, we didn't identify her IBD early enough to capitalize on growth potential as she had precoscious puberty and the window was closed for us. But she is 5'4" so pretty average. Her sisters are 5' 7".
01-24-2016, 04:47 AM   #14
Sascot
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Great news!
01-24-2016, 11:50 PM   #15
CarolinAlaska
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That's great. Jae took over 2 years to hit that benchmark, but she grew from 5'1 to 5'8 in 3 years. I thought we'd never do it. Even last fall we were at 96-98 lbs. Finally on prednisone from late November-early January she jumped up to 116 lbs and is still holding onto it! I definitely appreciate the post and am rejoicing with you.
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Carol
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), controlled with 6MP.
Osteoporosis, Scoliosis, EDS, Asthma, Lymphedema, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety postural tachycardia/POTS and multiple food allergies.
01-26-2016, 01:07 PM   #16
pdx
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Finally on prednisone from late November-early January she jumped up to 116 lbs and is still holding onto it! I definitely appreciate the post and am rejoicing with you.
So glad to hear that J has kept that weight!
01-26-2016, 07:52 PM   #17
kimmidwife
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That is wonderful!!!
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
02-03-2016, 02:23 AM   #18
vtfamily
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That is great news! Congrats and may it continue!
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