Share Facebook
Crohn's Disease Forum » Treatment » Remicade/Infliximab » What's the average length of time on Infliximab


01-26-2016, 08:56 AM   #1
Grant
Senior Member
 
Grant's Avatar
 
Join Date: May 2011
Location: United Kingdom

My Support Groups:
What's the average length of time on Infliximab

I've had 2 infusions & the results are quite startling tbh. I feel very much better & now I'm wondering how long people can stay on Infliximab before the effectiveness starts to wane. Humira was about 4 yrs 7mths for me so I'm hoping that I'll be able to have effectiveness on Infliximab for @ least that length of time.
Rgds
Grant
__________________
1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate
Currently on:
Inflectra
Questran
Loperamide
Calcichew
Pentasa 4gm daily
Daily Multi Vitamins
3mthly B12 Jabs
01-26-2016, 09:38 AM   #2
lgpcarter
Senior Member
 
Join Date: Jun 2013
Location: Canada

My Support Groups:
It really depends. I had many good years on it - though it was my first biologic so that may make a difference. I was on for around 9 years, on and off due to insurance reasons. I stopped to get pregnant and could not go back on.

Glad it is working for you.
__________________
Diagnosed in with Crohn's in large and small bowel in 2000.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Entyvio every 8 weeks, Imuran 50 mg, Flagyl and Cipro 500 mg twice a day
Previously: Remicade, Humira, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone
01-26-2016, 09:41 AM   #3
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I don't know how long but I have read that all biologics wear out. Keep us updated. Wishing you the best.
01-26-2016, 12:12 PM   #4
JaimeM
Senior Member
 
JaimeM's Avatar
 
Join Date: Sep 2015
Location: United States, North Dakota

My Support Groups:
I was on it for 6 years and did great. Only switched bc it was too hard to make it to my infusions (it was a 70 mile drive and I have a baby)
01-26-2016, 12:19 PM   #5
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I had to give up Remicade because I developed an allergy to it.

01-26-2016, 12:44 PM   #6
Grant
Senior Member
 
Grant's Avatar
 
Join Date: May 2011
Location: United Kingdom

My Support Groups:
Thanks for all the replies, I never felt this good this early on Humira. Infliximab feels like a whole different ball game so far.
Rgds
Grant
01-26-2016, 01:43 PM   #7
JaimeM
Senior Member
 
JaimeM's Avatar
 
Join Date: Sep 2015
Location: United States, North Dakota

My Support Groups:
Good luck!! Enjoy the infusions!. I always used it as my lazy day. So it was nap day all day. I actually really miss it sometimes haha
01-26-2016, 03:32 PM   #8
Lisa
Adminstrator
 
Lisa's Avatar
 
Join Date: Apr 2010
Location: New York

My Support Groups:
10 years and counting here Grant!!!!
__________________

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
01-26-2016, 04:25 PM   #9
matt82
 
matt82's Avatar
 
Join Date: Nov 2015
Location: london, Ontario

My Support Groups:
Wow. Nice to see people that have been on these types for do long. I was o remicade but severe reaction I could not use it and was on humira back in 08 but lost coverage. Looking to start humira again to get a abdominal fistula under control. Hope it works
01-26-2016, 05:00 PM   #10
Grant
Senior Member
 
Grant's Avatar
 
Join Date: May 2011
Location: United Kingdom

My Support Groups:
10 years and counting here Grant!!!!
Thats brilliant, I really hope it'll be 10yrs for me if things continue as they are. I had such a miserable xmas but within 4-5 days after my 1st infusion on 30thDec I really noticed an improvement & its been continual improvement since then.
Long may it continue.
Rgds
Grant
01-26-2016, 06:42 PM   #11
Mattie
Senior Member
 
Mattie's Avatar
 
Join Date: Jun 2013
How long did it take to start the infusions after gastro recommended it Grant?
01-27-2016, 12:49 AM   #12
Justanothercp
Senior Member
 
Justanothercp's Avatar
 
Join Date: Aug 2013
Location: Sacramento

My Support Groups:
I've been on it for over ten years. Blessed that it is still helping. Fingers crossed that it continues!!
01-27-2016, 02:39 AM   #13
fuzzy butterfly
Forum Monitor
 
fuzzy butterfly's Avatar
 
Join Date: Jul 2015
Location: manchester, United Kingdom

My Support Groups:
So glad it is working for you Grant.long may it do so...☺ did not help me but there you go, not for everyone i guess. When it works tho it is usualy pretty darn good stuff☺. Keep well 💕
01-27-2016, 02:40 AM   #14
fuzzy butterfly
Forum Monitor
 
fuzzy butterfly's Avatar
 
Join Date: Jul 2015
Location: manchester, United Kingdom

My Support Groups:
Also really glad its working for all you other guys too. Nice one ☺💕
01-27-2016, 07:53 AM   #15
Grant
Senior Member
 
Grant's Avatar
 
Join Date: May 2011
Location: United Kingdom

My Support Groups:
How long did it take to start the infusions after gastro recommended it Grant?
Hi Mattie, about 6 weeks. And it was hell waiting for it, I was so unwell over xmas new year. Barring side effects or bad infections I get the feeling this could be a bit of a life changer for me if the early signs carry on.
Best Wishes
Grant
01-27-2016, 08:37 AM   #16
Chica
Hey Grant. I've been on it for just over 3 years and it's fab. After about a year I noticed that the last week of the 8 week cycle was too tiring for me so I get it every 7 weeks now which makes a difference. I know someone who was on it for a few years, then he experimented with coming off for 4 months but sadly that didn't work so he went back on & it was just as successful. My consultant says that even when we are in remission, the condition is still working there in the background and the trough levels of Infliximab (Remicade / Remsima) gradually drop over the weeks so that explains any fatigue that may set in for some of us. It's a miracle med, worked straight away for me. Hope you continue to have good experiences with it : )
01-27-2016, 10:12 AM   #17
Mattie
Senior Member
 
Mattie's Avatar
 
Join Date: Jun 2013
Thanks for the info Grant. I hope it continues to work well for you. You must be mightily relieved to have your life back. I've just started the process of waiting - been told it will take approx 10 weeks to get into the system, which will seem forever!
01-27-2016, 11:04 AM   #18
Grant
Senior Member
 
Grant's Avatar
 
Join Date: May 2011
Location: United Kingdom

My Support Groups:
Mattie, I hope they can hurry it along for you.There really is nothing worse than waiting for something that may well work whilst feeling terrible. Fingers crossed for you.
Grant
Reply

Crohn's Disease Forum » Treatment » Remicade/Infliximab » What's the average length of time on Infliximab
Thread Tools


All times are GMT -5. The time now is 06:17 AM.
Copyright 2006-2017 Crohnsforum.com