Share Facebook


01-31-2016, 10:27 AM   #1
wamom
 
Join Date: Nov 2015
May need to add carbs....rice?

Hi,

My daughter (almost 15) has been on SCD 7 months and doing well. Last blood work showed no inflammation, she's grown a an inch and gained a few pounds. Doctors support SCD but don't know enough to give us advice other than "it seems to be working". We are concerned that she may not be getting enough carbs to really kick-start growth, and puberty. I read a new study about IBD-AID Diet and added oats, which are supposed to be "legal". Gave her horrible gas and gurgling. No diarrhea She also seems to get stomach upset from eating too many fiber-rich legal foods - dried fruit, for example. But she is so picky anyway that we hate to take anything out.

I just have a feeling that a bland carb like rice might work for her (and she loves it), but of course it's very illegal. Wondering if anyone has had luck sticking mostly to SCD or Paleo but adding in a carb. Thanks.
01-31-2016, 02:54 PM   #2
Jakefriesz1
 
Join Date: Jan 2016
Location: Key largo, Florida
I was on special carb diet for about a year and got sick of eating squash for my carbs. But you could add a little white rice for sure just start slow and work your way up. And make sure it's cooked well and chewed well. The bacteria in our gut need these different carbs to grow. Some of the good guys


01-31-2016, 06:24 PM   #3
Susan2
Senior Member
 
Susan2's Avatar
 
Join Date: Dec 2011
Location: Geelong, Victoria, Australia

My Support Groups:
· Stoma
Did you add the oats raw or cooked? I can't cope with them raw but I soak overnight in water and yoghurt and cook for a long time until they become really mushy porridge.
__________________
Crohn's Disease - symptoms since c1955, diagnosed early 1970s. On Prednisolone until...
Total Proctocolectomy in 2000.
Ileostomy that behaves most of the time
Currently on no medications, but under constant gaze of very caring GP, with annual blood and other tests.
01-31-2016, 07:39 PM   #4
hugh
Senior Member
 
hugh's Avatar
 
Join Date: Oct 2011

My Support Groups:
white rice or sweet potatoes, start slow to see if it is tolerated and to increase bacterial numbers.....
__________________
'Liberation can only be gained by practice, never by discussion'
SN Goenka
01-30-2017, 05:35 AM   #5
ebarker2
 
Join Date: Jan 2017

My Support Groups:
You could try quinoia. But of course, plants have carbs. You just have to eat more. The concern is fibre. Can she get enough to help the microbiome, and does the fibre cause problems.

Paleo worked very well for me, but i started eating rice, buckwheat, millet, organic corn, lentil flour and other carb rich food as i thought I wanted more energy. In practice I felt better before, but for instance I was having a breakfast salad with 30 ingredients that took 30 minutes to prepare. But from my perspective, the worst IBD culprits are gluten/gliadin, many gluten/gliadin substitutes (found in gluten free bread and biscuits), additives, MSG, preservatives etc.
01-30-2017, 10:14 AM   #6
Optimistic
Senior Member
 
Optimistic's Avatar
 
Join Date: Oct 2014

My Support Groups:
Hi. I have a child on scd and I understand. There are times when I am tempted to adjust it for a number of reasons. However, although there are a handful of small scale studies that show good results in patients who can stick to it religiously, there are no studies that show success when people modified on their own. That is going off the diet. We are thinking of it just like we would meds. You either follow it as studies show work or move on. If we decide scd isn't a good fit one day we will move to something else with a track record.

But I feel your pain...

There are two studies going on that compare scd, ibd aid and organic in Crohn's patients.
01-30-2017, 10:23 AM   #7
ebarker2
 
Join Date: Jan 2017

My Support Groups:
This new article basically encapsulates my views...

http://www.webmd.com/ibd-crohns-dise...ohns-colitis#1
01-30-2017, 09:29 PM   #8
wildbill_52280
Senior Member
 
Join Date: Sep 2009
Everyone may be slightly different but I can't tolerate rice very well. Try it but be ready to remove it right away if she becomes worse.
SCD principles have been very helpful to me over the years by the way.
My advice: experiment with higher vitamin d levels, quite a few studies show benefits for crohn's/IBD.

I also can tolerate oats, well cooked refried beans that have been mixed well and some brands of wheat.
__________________
Learn How Fecal transplants restore good bacteria that regulate inflammation to induce remission and how it has potential to be a cure for IBD in the future. Follow the link below.
http://www.crohnsforum.com/showthread.php?t=52400
01-31-2017, 11:18 AM   #9
Scipio
Senior Member
 
Scipio's Avatar
 
Join Date: Oct 2015
Location: San Diego

My Support Groups:
Maybe try brown rice instead of white. It has a lower glycemic index and thus provides a lower/slower blast of carbs to the system than white rice does. More fiber too.
02-03-2017, 03:45 AM   #10
Rhoo
 
Rhoo's Avatar
 
Join Date: Feb 2017
Location: Los Angeles, California
You can try buckwheat
02-05-2017, 02:56 AM   #11
SB7
 
Join Date: Sep 2015
Location: Florida

My Support Groups:
I've been on scd but have added rice(white at first, wild and then a little brown)and sweet potatoes to my diet without any issues. It's been fine for me but like everything else, it may not be ok for others.
09-20-2017, 03:23 PM   #12
richard1353
 
Join Date: Aug 2017

My Support Groups:
white rice or sweet potatoes, start slow to see if it is tolerated and to increase bacterial numbers.....
What's the good time to take in the whit rice or potatoes that are illegal foods in SCD diet?
09-22-2017, 04:45 AM   #13
hugh
Senior Member
 
hugh's Avatar
 
Join Date: Oct 2011

My Support Groups:
What's the good time to take in the whit rice or potatoes that are illegal foods in SCD diet?
SCD has been around since the 50's and started as a cure for celiac disease before gluten was discovered.[1]
It was assumed that since stopping all complex carbs 'cured' the disease then the problem must be...... all complex carbs.

It is a diet that has given many people much benefit.
But it is a very rigid and dogmatic diet and it doesn't work well for everyone.
SCD is very paleo-ish (even referred to as paleo’s little brother [2] I think).

And the science has come a long way too!

Paleo is also many different things to different people so as a label it has limited value other than to point in the general direction that you should be looking in diet wise.

It's all very individual.…
Sometimes you might want to have more or less carbs for different reasons.
The paleo world has generally accepted the notion of “Safe starches”, but this refers to the idea that they are free of toxins [3], not that it is safe to eat them whenever you want.

I recommend reading Paul Jaminet’s blogs on gut disease to get a well thought out take on diet and supplements and see if it makes sense to you

Bowel Disorders, Part I: About Gut Disease[/I]
“In our view, various dietary and nutritional tactics are critical, with toxin elimination and vitamin D normalization among the most important steps. Most medical treatments are likely to be ineffective if the diet is bad.
http://perfecthealthdiet.com/2010/07...g-gut-disease/

Bowel Disease, Part II: Healing the Gut By Eliminating Food Toxins
Summary of Toxic Foods to Eliminate or Avoid
In short, bowel disease patients should eliminate toxic foods from their diet:

http://perfecthealthdiet.com/2010/07...g-food-toxins/

Bowel Disease, Part III: Healing Through Nutrition
Summary
Although not a complete list of the vitamins and minerals which may be helpful to bowel disease patients, these are among the most important – and most often overlooked:

http://perfecthealthdiet.com/2010/07...ugh-nutrition/

Bowel Disease, Part IV: Restoring Healthful Gut Flora
A healthy gut is a multi-species society: it is the cooperative product of the human body with trillions of bacterial cells from a thousand or more species.
An unhealthy gut is, more often than not, the product of a breakdown in this collaboration.

http://perfecthealthdiet.com/2010/07...ful-gut-flora/

[1] http://scdwiki.com/index.php?title=H...bohydrate_Diet

[2] “series of talks on paleo and IBD by Dr. Joseph Brasco of the Huntsville Center for Colon and Digestive Disease”
http://www.crohnsforum.com/showthread.php?t=48559

[3] “any starchy food that (after being properly cooked and prepared!) is low in fructose and relatively free from natural toxins (like lectins, saponins, and gluten and related proteins….”
https://www.thepaleomom.com/what-is-a-safe-starch/

Last edited by hugh; 09-22-2017 at 05:55 AM.
Reply

Thread Tools


All times are GMT -5. The time now is 06:45 PM.
Copyright 2006-2017 Crohnsforum.com