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02-02-2016, 01:54 PM   #1
Benourer83
 
Join Date: Oct 2015
Location: Lakeland, Florida
Scopes today

So after still no improvement with miralax we had an egd and a colonoscopy today. Results were not what I expected. We also had a rectal suction biopsies and a dissachrides assay. Obviously no results on biopsies yet, but when the GI came to share findings he was impressed with no ulcers in colon but she had furrowing in her esophagus. They (discharging nurse) sent us home with a info packet on eosinphillic esophagitis or EoE. I was honestly surprised as we went in for a rule out for Hirschprungs which is still on the table until biopsies come back. Follow up in 2 weeks ...... still scratching my head on this one
02-02-2016, 02:10 PM   #2
my little penguin
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Join Date: Apr 2012

My Support Groups:
Good place for eoe advice
http://community.kidswithfoodallergi...inal-disorders
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DS - -Crohn's -Stelara -mtx-IVIG
02-02-2016, 02:17 PM   #3
Benourer83
 
Join Date: Oct 2015
Location: Lakeland, Florida
Thanks
02-02-2016, 02:22 PM   #4
my little penguin
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Join Date: Apr 2012

My Support Groups:
http://apfed.org

Another site

More later
02-02-2016, 05:29 PM   #5
kimmidwife
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Glad it went well. And at least you have one answer for now. Hopefully the biopsies will give you more answers.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
02-03-2016, 10:54 AM   #6
Benourer83
 
Join Date: Oct 2015
Location: Lakeland, Florida
Glad it went well. And at least you have one answer for now. Hopefully the biopsies will give you more answers.
Thank you
02-03-2016, 11:49 AM   #7
Farmwife
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Join Date: Apr 2012
Location: Michigan

My Support Groups:
Mlp gave a good website for eoe.
They thought Grace had a version of that but it wasn't.
Keep us posted!
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
02-03-2016, 11:51 AM   #8
Benourer83
 
Join Date: Oct 2015
Location: Lakeland, Florida
Mlp gave a good website for eoe.
They thought Grace had a version of that but it wasn't.
Keep us posted!
Thanks I've been reading in my free time with a 2 year old lol. What did they end up finding with Grace sorry I tried to find some of your back story really quick but didn't come up with much.
02-03-2016, 11:59 AM   #9
Farmwife
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Join Date: Apr 2012
Location: Michigan

My Support Groups:
Lol, Grace had to much of a back story.
Her Eosinphils were raised thru out her GI track. However she never got better in full EEN.
Once the GI realized this, she was switched to an unofficial ibd dx. Meaning, we can't pinpoint crohn's over UC and or UC over crohn's.
All we know is we want to hold it back as long as possible.
I could care less what they call it but even now dx's still might be changing.
Grace is one of a kind. Lol

Do you have any ideas yet what might be the foods that trigger the eoe?
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