My daughter has Crohn's disease and will be 15 this month. She has complained about join pain here and there over the years but it's never been a big problem. Last weekend she was complaining about it more than usual but took some Tylenol and seemed ok. She had Remicade last Monday, came home and slept and when she woke up she was in a lot of pain. We went to the ER Tuesday, they took some x-rays and blood work, gave her some Meds while we were there but didn't seem very concerned. She felt better we came home but had an appointment Wednesday with her GI. He was a little concerned about antibodies and had more blood work done. He didn't really seem to have answers for us. He referred us to a rheumatologist and is suppose to call today with blood work results. And that's it. Oh my husband insisted on something for the pain and she was given Tylenol with codiene. I mainly give it to her at night and it has helped her sleep better. I just feel like no one is helping her , myself included. She puts on a brave face at the doctors and I'm afraid we didn't express how bad it is for her. At home she is crying in pain. And all we can do is wait for the rheumatologist appointment. Does anyone have any advice for me? Oh and this week she says her stomach feels great and is not an issue at all. Yesterday she seemed a lot better than usual and went to sleep without even Tylenol but early this morning she needed it. She back to sleep now. Feeling so down.
Forgot to add he did order another colonoscopy / endoscopy as its been awhile. He wants to see what's going on.
Forgot to add he did order another colonoscopy / endoscopy as its been awhile. He wants to see what's going on.