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Crohn's Disease Forum » Tests for IBD » Endoscopy results: ulcers and erythematous mucosa?


03-01-2016, 04:00 PM   #1
cheesypoof
 
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Endoscopy results: ulcers and erythematous mucosa?

Hey guys,

I just went in for my upper endoscopy and they found a couple of ulcers they took biopsies of and erythematous mucosa in a couple spots they took. I understand the ulcers but what does erythematous mucosa mean? I've googled it so I understand it's redness but is this typically something seen in Crohns? I'll get the biopsy information back in a few weeks but I'm not sure what they're checking for.
03-02-2016, 12:12 AM   #2
Trysha
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The inflammation could go with the ulcers
All tissue is routinely processed to look for any abnormalities such as infection,or abnormal cells related to other causes
It does take about ten days for processing of the tissue and for the pathologist to examine and report any pathological findings to the referring specialist.
A pathologist is an MD specifically qualified in diagnosis of tissue biopsies and other aspects of pathology.
Feel better soon
Trysha
03-19-2016, 06:48 PM   #3
cheesypoof
 
Join Date: Feb 2016
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Two and a half weeks later it showed that my stomach and small intestine were inflamed.. which was visually obvious. Been on nexium since post procedure with no improvement. Doc said to double the nexium and if i still am throwing up in a month to give him a call. ugh. Day one with double nexium so hopefully this works.
03-20-2016, 07:30 PM   #4
Eridon2002
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Is this a GI doctor who is wanting you to endure a month of throwing up before calling him? I think I would get a second opinion. Have you had a colonoscopy? Upper endoscopy only tells part of the story.
03-20-2016, 07:33 PM   #5
cheesypoof
 
Join Date: Feb 2016
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Well he wants me to try doubling the nexium up to 40mg a day before doing anything else. I've only had an Upper Endo and he says it just proved i had gastritis, asked me if I took a lot of aspirin, and said to double it and call him in "a few weeks". I can't really get a second opinion. I'm on Tricare so what I get is what I get. If I book an appointment tomorrow it won't be for a couple weeks so I might just book it tomorrow cause I have this deep feeling from people I've talked to that it's beyond ulcers/excessive acid production.
03-20-2016, 07:41 PM   #6
Eridon2002
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If he think it's gastritis he should test you for H. Pylori also. I think booking right away for a follow up is a good idea. I hope you start feeling better soon!
03-20-2016, 08:05 PM   #7
cheesypoof
 
Join Date: Feb 2016
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It tested negative for h.p. Just a bunch of inflamed tissue and ulcers in my small intestine. Oddly enough my actual stomach had no ulcers or irritation which is another reason I'm pointing more towards crohns. I got diagnosed with fibromyalgia a few years ago but not all the symptoms fit.
03-24-2016, 04:09 PM   #8
cheesypoof
 
Join Date: Feb 2016
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Scheduled a follow up. Ugh. He wants me on the Nexium for THREE MONTHS before moving forward with anything else. He also told me to half the amount of anti nausea I've been taking!! 4mg does nothing for me! He sent me to get blood work done for H. Pylori even though all three biopsies tested negative for it. I've been throwing up almost every day for 4 months now and my throat has begun hurting from it. I can't imagine going another two months with half the anti-nausea medication. Is it normal to be on Nexium this long?
03-25-2016, 03:04 PM   #9
happy
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Paging Cat-a-Tonic for you.
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03-28-2016, 10:40 AM   #10
Cat-a-Tonic
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Thanks Happy. I don't know that I can be super helpful but here's my experience: I've been on a double dose of Nexium and it didn't do much for me (I wasn't vomiting daily though). A single dose (40 mg) of Nexium keeps my GERD at bay for the most part - when my GI tried me on the double dose, my symptoms didn't improve much and I suddenly wasn't able to break down my medications properly. I was on Asacol at the time, and it requires a particular pH level to break down. The double dose of Nexium screwed with the pH of my digestive system so badly that the Asacol tablets were just going through me completely whole. Obviously that was not good, so I went back to the single dose of Nexium and have been on that ever since (for probably about 4 years now).

All I can tell you is, listen to your instincts. If you feel like being on this much Nexium for this long isn't helpful, then express that to your doctor. With vomiting like that, they should really be looking at other causes (gastric Crohn's perhaps? It's rare but it does happen).
03-29-2016, 06:33 PM   #11
cheesypoof
 
Join Date: Feb 2016
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The endoscopy just showed chronic/acute inflammation in my small intestine but only acute in my stomach so most of the issue is in my small intestine. When I say double dose I was only on 20mg at first and then after a month they doubled it to 40mg. I started taking 20 with breakfast and 20 at dinner. Splitting the dose has helped and the drowsiness has gotten better. But still constipated (using Miralax now), my sex drive has disappeared, sleepy but I can drive now.

I lied during my Doctors appointment and told him my grandpa went in for a colonoscopy and they found something where he has to take pills every day. My doctor said "Oh it's probably diverticulitis, that's not related" and completely brushed it off. I asked if there were any other steps and he said just to schedule a FU appt in a month.

The zofran has caused my frenulum under my tongue to swell so I've stopped taking it all together. Amazingly I haven't vomitted in 2 days so far but it always seems to go away for a few weeks to where it's just nausea and then come back even worse but fingers crossed it's just a small intestine ulcer.

I was so confused what that comment meant lol. But thank you for your input! My doc looked at me like I was crazy when i was saying how many side effects I was having!
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