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Crohn's Disease Forum » Support Forum » How to taper off Entocort


04-27-2016, 01:52 AM   #1
Byrdfeeder
 
Join Date: Apr 2016
How to taper off Entocort

I'm doing 8 weeks of Entocort (9 mg/day) for microscopic colitis, and doc said to taper off, but he was not specific about how to taper. I've been all over the web looking for specifics, but can't find info. Does anyone have any experience with the taper? Some Crohn's sites suggest tapering to six mg for two weeks, then discontinue. That seems a little abrupt to me, so I'm looking for some first-hand input.

I'm doing great on the Entocort; had a few side effects for the first few days but, otherwise, so far so good. I hate to think about a return of symptoms at the end of this course. :-(
04-27-2016, 05:55 AM   #2
ronroush7
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I would call my doctor's office and ask them.
04-27-2016, 01:06 PM   #3
Byrdfeeder
 
Join Date: Apr 2016
I wish it were that simple! (Long story, but calling this office isn't usually an effective strategy.) I won't see the doc until week eight, so I was hoping to get some info before then so I could plan my refills. Thanks for your suggestion!
04-27-2016, 01:10 PM   #4
ronroush7
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There is also a section called Treatment. In there is a sub forum for Entocort. You can try there.

04-28-2016, 01:59 PM   #5
hcrum87hc
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I'm tapering at the moment from 9mg. I go to 6mg for a month, and then 3mg for the final month.
__________________
Blessed is he who trusts in the Lord, whose confidence is in Him. Jeremiah 17:7.

Officially diagnosed with Crohn's Disease in June, 2014 2 weeks before 27th birthday after ER visit due to partial blockage (stricture).

Current Meds:
Humira-40 mg every other week
Imuran-150 mg/day

Surgeries: Ileocecectomy 7/13/16 removed 60cm of small intestines.

Status: All inflamed and strictured intestines removed. All remaining intestines are currently healthy.
04-28-2016, 03:24 PM   #6
Lizzie
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I'm tapering at the moment from 9mg. I go to 6mg for a month, and then 3mg for the final month.
Me too, exactly the same. I've been on 9 mg for three months, now I'm on day three of my month at 6 mg. Bit worried as I've had permanent mild gut ache since starting the taper, hope it's not significant.
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