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Crohn's Disease Forum » General IBD Discussion » Colonoscopy with Fistula--M scared


 
05-02-2016, 01:58 PM   #1
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Colonoscopy with Fistula--M scared

Hello All,

I have had IBD for quite sometime now but recently I had a hemmoroid attack after a series of bowel infections and diarrhoea.

My doctor prescribed me daflon and fiber supplements but it didnt work. After examining my bum (that was unbearable for me) she said she is still not sure and needs to carry out colonoscopy. She had also suggested an M.R.I but it was rejected by my insurance company for some reason.

I am trying to avoid colonoscopy but she says its necessary. I am scared as my anus hurts already and even B.M are a torture for me. I fear the colonoscopy prep and the insertion of cam and stuff will only hurt my anas more. I fear it will make my fistula worst. Or might hurt the sphincter at this stage. She also mentioned she might operate it then, M not sure if she meant to operate it during the colonoscopy, is it possible?

Please tell me is it safe to get a colonoscopy done while you have a fistula and hemmorhoids?


She also suspects Crohn's for me but my previous colonoscopy in 2013 was clear. So are there chances I woyld have developed this disease in 3 years. Thank you
05-02-2016, 03:05 PM   #2
ronroush7
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Call your doctor and tell her of your fears. I am bnot sure about surgery during a colonoscopy. I think it is possible that you could have developed Crohns. Give us an update and let us know how you are doing.
05-02-2016, 03:30 PM   #3
Ihurt
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I am so sorry you are suffering. I know what you mean about the whole colonoscopy prep you have to drink. It can be very hard on the anal area with all the diarrhea. I know when I had my colonoscopy done three years ago it tore my a** up and swelled my hemorrhoids up. One thing I would recommend is puts lots of ointments( either vaseline, aquaphor healing ointment or maybe Zinc oxide paste) down there before you even start the prep stuff. This way when you do start going, at least there will be a barrier there to protect your butt. Also I would reapply the stuff constantly in-between bathroom trips. I will have to do this too if I end up having another colonoscopy. My anus does not feel good at all right now either so I feel for you.

Does your GI doc think you have Crohn's especially due to the fact you have a fistula? I do not think Fistula's happen to healthy people without disease normally.

I am not diagnosed with crohn's either. My GI keeps saying IBS as my tests were normal when I had them over the last 4 years. I however keep having stuff pop up so I am not so sure. I would definitely call your doctor and tell him/her your fears and concerns about the test and how it will aggravate your already very painful anal area. Maybe he/she will be able to suggest something.












Hello All,

I have had IBD for quite sometime now but recently I had a hemmoroid attack after a series of bowel infections and diarrhoea.

My doctor prescribed me daflon and fiber supplements but it didnt work. After examining my bum (that was unbearable for me) she said she is still not sure and needs to carry out colonoscopy. She had also suggested an M.R.I but it was rejected by my insurance company for some reason.

I am trying to avoid colonoscopy but she says its necessary. I am scared as my anus hurts already and even B.M are a torture for me. I fear the colonoscopy prep and the insertion of cam and stuff will only hurt my anas more. I fear it will make my fistula worst. Or might hurt the sphincter at this stage. She also mentioned she might operate it then, M not sure if she meant to operate it during the colonoscopy, is it possible?

Please tell me is it safe to get a colonoscopy done while you have a fistula and hemmorhoids?


She also suspects Crohn's for me but my previous colonoscopy in 2013 was clear. So are there chances I woyld have developed this disease in 3 years. Thank you
05-02-2016, 03:46 PM   #4
ronroush7
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Ihurt, you are your best advocate

05-02-2016, 05:00 PM   #5
Ihurt
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Lol, no kidding! That is my problem, I need to follow my own advice ha ha! It is so hard not knowing what is going on though. I think it really sucks with my having other health issues. It seems my GI doc then just wants to blame everything on that. I honestly think when a healthy person( meaning no other health issues) goes into a doctor the doctor is more likely not to fluff them off. When a person who suffers other issues it is like they want to just blame stuff on that or that your just sick with all these issues and they all go hand in hand kind of answer, yet your left with no real answers. It is frustrating.








Ihurt, you are your best advocate
05-03-2016, 05:35 AM   #6
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Call your doctor and tell her of your fears. I am bnot sure about surgery during a colonoscopy. I think it is possible that you could have developed Crohns. Give us an update and let us know how you are doing.
Thank you ronroush will update you about it
05-03-2016, 05:45 AM   #7
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Thats exactly my story. No doctor diagnosed a disease in me yet m really very sick. Just like you I have been told I have IBS. All tests show I am normal infact my weight might be giving them a wrong idea about my illness too. I look healthy but the crampy diarrohea has killed me for ages. I have lived with it pretending to be normal. Its only recently that I got very painful, crampy and frequent diarrhea that my doctor suggested colonoscopy again.

To answer your question, no she didnt suspect crohn's because of fistula. Rather its because of the uncontrolles diarrhea that is recurrent and not responding to any medicine.

Thank you for al your advice about colonoscopy prep. It gives me hope that I might survive it through these ointments. Thank you for all your support

I am so sorry you are suffering. I know what you mean about the whole colonoscopy prep you have to drink. It can be very hard on the anal area with all the diarrhea. I know when I had my colonoscopy done three years ago it tore my a** up and swelled my hemorrhoids up. One thing I would recommend is puts lots of ointments( either vaseline, aquaphor healing ointment or maybe Zinc oxide paste) down there before you even start the prep stuff. This way when you do start going, at least there will be a barrier there to protect your butt. Also I would reapply the stuff constantly in-between bathroom trips. I will have to do this too if I end up having another colonoscopy. My anus does not feel good at all right now either so I feel for you.

Does your GI doc think you have Crohn's especially due to the fact you have a fistula? I do not think Fistula's happen to healthy people without disease normally.

I am not diagnosed with crohn's either. My GI keeps saying IBS as my tests were normal when I had them over the last 4 years. I however keep having stuff pop up so I am not so sure. I would definitely call your doctor and tell him/her your fears and concerns about the test and how it will aggravate your already very painful anal area. Maybe he/she will be able to suggest something.
05-03-2016, 08:23 AM   #8
Ihurt
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Wow, sorry you are going through all this . I know how it is to be bounced back and fourth with doctors not knowing anything! I have lots of health issues so I have been through the rig when it comes to doctors. I cannot even count how many I have seen in the last 13 years( many of them not very good sadly and these were supposed to be top doctors!!

What did your doctor say about the fistula? Didn't your GI doctor question that alone? I do not think people with IBS get fistulas.

Just wanted you to know you are not alone. It seems it is so hard to get good health care with a knowledgeable doctor these days. I gotta say, it is scary when I think about all the "bad" doctors I have seen this past 13 years. Many things I was misdiagnosed with that I actually did not even have(Lupus, Scleroderma, Barrett's esophagus, etc..). I had to always follow up with two three opinions before getting answers and even then I was unsure. Then I have the doctors who kind of just fluff things off. I went to a TOP hospital here is Chicago and saw the professor of Gastroenterology years back. DO you know what he told me? He told me my problems were because I was a woman and that women make mountains out of mole hills all the time!!! Mind you, this was during a time when I was sick and had lost 35 lbs in less than 2 months! ( Found out later on my own that I could not tolerate Gluten). All those doctors and not one helped me. I ended up doing the research and decided to go gluten free for good and within 4 months I was 95% better( at least in my upper gut). Sadly I still had the other health issues ( Interstitial Cystitis, Fibromyalgia, Chemical sensitivities, skin issues, and IBS supposedly). It seems the more health issue you have, the more doctors are apt to just dismiss your symptoms. At least it has been that way for me.

I hope you get some answers and more importantly, some help and relief. Hang in there..












Thats exactly my story. No doctor diagnosed a disease in me yet m really very sick. Just like you I have been told I have IBS. All tests show I am normal infact my weight might be giving them a wrong idea about my illness too. I look healthy but the crampy diarrohea has killed me for ages. I have lived with it pretending to be normal. Its only recently that I got very painful, crampy and frequent diarrhea that my doctor suggested colonoscopy again.

To answer your question, no she didnt suspect crohn's because of fistula. Rather its because of the uncontrolles diarrhea that is recurrent and not responding to any medicine.

Thank you for al your advice about colonoscopy prep. It gives me hope that I might survive it through these ointments. Thank you for all your support
05-03-2016, 08:38 AM   #9
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Wishing you the very best! You're in my prayers!
05-03-2016, 08:47 AM   #10
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I am amazed at how our situation match too much. I am 28 and have been in this self inflicted torture. Sometimes I want to just give it up and wait for sudden death to avoid the humilation and disappountment I have to go through by these doctors

Despite being in undecided state myself, i would still advice you to not give up. I am sorry to hear what you had to go through. How do you feel now? I really want to appreciate your strength for not giving up. I will follow your example.

I have only seen better days in my life after i made friends with google. It has halped me undertand myself better which lead me to decide the course of action.

Sometimes I have to put words in the mouth of doctors. The easiest way to escape a difficult patient is to blame his mental state. And that I have been blamed for 15 years now. And the easy diagnosis for disturbed bowel is IBS. Doctors can blame IBS as its less dangerous a disease then others and then blame your stress for flaring it up. I only ask, who on earth is not stressed these days? Everyone one is. So why M I going through this.

I have also developed urine incontince from last year and seeing your comment somewhere I also feel I have some kind of an abscess that disturbs my bladder.

From december last year I have pain in the appendice area too. Sometimes it goes to.my legs too. I am in constant fear that I may someday wake up to appendice pain.

My doctor had inserted a lubricated gloved finger while examining me for hemorroid and it had hurt for so long. She suggested neo- healor suppository to heal and ointment i cannot live without. I tried the suppository last night. It hurt it even more. But ironically i had the most pain free bowel.movement today.

Thank you for your support and such nice words. This is the first forum I have ever joined. I needed to discuss and feel I am not alone. I am tired of pretending to world I am just as strong as others. My life is better when I admit I am made different and my challenges include health too.


Just wanted you to know you are not alone. It seems it is so hard to get good health care with a knowledgeable doctor these days. I gotta say, it is scary when I think about all the "bad" doctors I have seen this past 13 years. Many things I was misdiagnosed with that I actually did not even have(Lupus, Scleroderma, Barrett's esophagus, etc..). I had to always follow up with two three opinions before getting answers and even then I was unsure. Then I have the doctors who kind of just fluff things off. I went to a TOP hospital here is Chicago and saw the professor of Gastroenterology years back. DO you know what he told me? He told me my problems were because I was a woman and that women make mountains out of mole hills all the time!!! Mind you, this was during a time when I was sick and had lost 35 lbs in less than 2 months! ( Found out later on my own that I could not tolerate Gluten). All those doctors and not one helped me. I ended up doing the research and decided to go gluten free for good and within 4 months I was 95% better( at least in my upper gut). Sadly I still had the other health issues ( Interstitial Cystitis, Fibromyalgia, Chemical sensitivities, skin issues, and IBS supposedly). It seems the more health issue you have, the more doctors are apt to just dismiss your symptoms. At least it has been that way for me.

I hope you get some answers and more importantly, some help and relief. Hang in there..
05-03-2016, 08:48 AM   #11
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Thank you Kevin.. it means a lot.

Wishing you the very best! You're in my prayers!
05-03-2016, 11:31 AM   #12
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Well thank you, and I am glad if I was able to help at all. I realize we are not in the best situations, but we have to keep going and keep looking for answers. And YES, I totally know what you mean about doctors liking to blame things on stress. Don't get me wrong, stress can cause all sorts of stuff to be worse, that is true. Stress in itself however does not cause any given illness. It can open the door to a problem that is already festering, but it would not cause the illness.

I will say that stress can lower your immune system and lets say you already have something underlying going on, then it can trigger it. Back in March of 2002 my mom got diagnosed with terminal cancer. She passed away that August.I was 28 yrs old at the time. It devastated me and the grief was awful. I am sure that lowered my immune system going through all this. Well then in 2003 I got a flu shot and my health just spiraled downhill from then on. So I think losing my mom with all the grief and devastation just wore my immune system down, then when I got that Flu shot, it was the trigger that did me in. So yes, stress can lower your immune system allowing underlying things to get a hold. I was already standing on a precipice at the edge when things blew up for me in terms of my health.

Glad the suppository helped you to be able to go to the bathroom without awful pain, that is great. I am hoping to ask my GI for something to help me when I see him. If he cannot help, I will ask him about a colon-rectal doctor/surgeon. I think they know all about the anus, better than a GI doc would. It is so annoying having to deal with all this. I mean I feel like I am going to have to beg my doctor to look at my butt, is that not sad?? I mean I want to know what is going on! I do not get embarrassed anymore, that is probably because I have been through so much crap in the past 13 years and poked and prodded in every single orifice I have Lol! My Modesty flew out the window long ago! I just want to feel better, that is all I care about.

Don't give up hope. Always keep it in the back of your mind that YOU know your body better than anyone else. If any doctor tells you your issues are "in your head" or it is mental, you walk straight out of there and do not go back. I honestly can say a lot of the doctors I have seen in the past did me a disservice by demeaning me and disregarding my concerns when I first got sick. It was not a nice journey. I mean I went to the doctor thinking they were so smart and would definitely be able to help me. I learned really fast that it does not work that way most of the time. I learned I had to do the leg work and the research on my own. You are your best advocate.

With your urinary issue, do you get pain in your bladder or just urine leakage? I have Interstitial Cystitis of the bladder. It is painful. You get chronic sores, sometimes ulcers and inflammation in the bladder. I will admit it is one of the most painful things I have had to deal with so far. It really complicates things for me. I mean I also am prone to UTI's because of this so I have to be very careful and super clean. So now with my having all this anal pain and such, my GI doc is telling me to take sitz baths, yet my urologist says NO way, only showers. She said sitting in a bath will cause bacteria to migrate up into the urethra and cause a UTI, which is true. So one illness is complicating the other. It really sucks. I am also allergic to many medications so when I do get a UTI, I am not really able to take most antibiotics( I am either resistant to them and they no longer work, or I get severe adverse reactions and cannot take them), so I have to be super careful when trying to prevent UTI's and infections. Not a good situation to be in. I just developed an abscess on my labia last month. Had to get it lanced and drained by the dermatologist who said it was likely an infected hair follicle or gland. It has been a month and the area still will get little bumps and irritation around it at times and it kind of feels sore inside.

Anyhow, sorry for rambling on. We just have to keep chugging along and just keep looking for answers.




















I am amazed at how our situation match too much. I am 28 and have been in this self inflicted torture. Sometimes I want to just give it up and wait for sudden death to avoid the humilation and disappountment I have to go through by these doctors

Despite being in undecided state myself, i would still advice you to not give up. I am sorry to hear what you had to go through. How do you feel now? I really want to appreciate your strength for not giving up. I will follow your example.

I have only seen better days in my life after i made friends with google. It has halped me undertand myself better which lead me to decide the course of action.

Sometimes I have to put words in the mouth of doctors. The easiest way to escape a difficult patient is to blame his mental state. And that I have been blamed for 15 years now. And the easy diagnosis for disturbed bowel is IBS. Doctors can blame IBS as its less dangerous a disease then others and then blame your stress for flaring it up. I only ask, who on earth is not stressed these days? Everyone one is. So why M I going through this.

I have also developed urine incontince from last year and seeing your comment somewhere I also feel I have some kind of an abscess that disturbs my bladder.

From december last year I have pain in the appendice area too. Sometimes it goes to.my legs too. I am in constant fear that I may someday wake up to appendice pain.

My doctor had inserted a lubricated gloved finger while examining me for hemorroid and it had hurt for so long. She suggested neo- healor suppository to heal and ointment i cannot live without. I tried the suppository last night. It hurt it even more. But ironically i had the most pain free bowel.movement today.

Thank you for your support and such nice words. This is the first forum I have ever joined. I needed to discuss and feel I am not alone. I am tired of pretending to world I am just as strong as others. My life is better when I admit I am made different and my challenges include health too.
05-03-2016, 01:45 PM   #13
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I am sorry to hear about your mother. I went through some really tough and depressing times in life and I can remember thats when I started loosing Immunity. I can now undertand the connection.

By a blaming doctor I mean doctor that treats you like an idiot. Honestly there is no other explaination of there expression other then you are an idiot and its all in your head. Did you read about the story of a woman who died because doctors kept saying it was im her head.

I get excrutiating pains in chest too. But the cardiologist i went to was a nice lady. She did all the relevant tests that didnt cost me a.dime and concluded that I didnt have any heart problem. Yet she gave me meds for angina pain releief. And it did help. She was different and I wish all doc were like that too.

Yes it is sad that you have to beg to the doctors but trust me you are way brave than normal people. No you have your modesty intact but it only reflects your bravery, respinsibility and commitment towards getting healthy. I really appreciate your struggle. I agree with your decision to visit an anrectal surgeon , its on my list now too ( if things dont workout here).

I get tons of UTI an year. Last year, i got 3 in a month. It was like the antibiotic was not working and then my gp suggested me a urologist. I went, got a urine culture and other tests done but it turned out i didnt have any bacteria . So it wss negtive. He gave me dutrisol and a mild antibiotic u take for a month. The incontinence is on and off but i cannot empty my bladder in a single time. I have to stand walk around sometimes and then sit back to welcome another half of the urine. I feel unsatisfied, even after that. And i have to convince my self i peed.

No my bladder doesnt hurt much now. But my periods kill me. I have a general weakness and heavy ness in that area like i am sitting in something. When my Urologist said okay I never went back cause I already had too much to deal with.

Tell me how you get this interstitail cystitis diagnosed? I have had hundereds of ultrasounds, stating m all okay. Is ultrasound enough? Also could my bladder be effected because of bowel too?

About the labia thing you said. I have a whole bunch of bumps around it. I lived with it for years feeling shy to open legs to a doctor. Last year I did, and she says she cant see anything. Everything is normal there. But i can feel the bumps that were not always there. Could it also be a sign of abscess. I think i should mention it to my GI too.

Thank you for taking out time to read and reply. I really appreciate it. You r right we need answers


Well thank you, and I am glad if I was able to help at all. I realize we are not in the best situations, but we have to keep going and keep looking for answers. And YES, I totally know what you mean about doctors liking to blame things on stress. Don't get me wrong, stress can cause all sorts of stuff to be worse, that is true. Stress in itself however does not cause any given illness. It can open the door to a problem that is already festering, but it would not cause the illness.

I will say that stress can lower your immune system and lets say you already have something underlying going on, then it can trigger it. Back in March of 2002 my mom got diagnosed with terminal cancer. She passed away that August.I was 28 yrs old at the time. It devastated me and the grief was awful. I am sure that lowered my immune system going through all this. Well then in 2003 I got a flu shot and my health just spiraled downhill from then on. So I think losing my mom with all the grief and devastation just wore my immune system down, then when I got that Flu shot, it was the trigger that did me in. So yes, stress can lower your immune system allowing underlying things to get a hold. I was already standing on a precipice at the edge when things blew up for me in terms of my health.

Glad the suppository helped you to be able to go to the bathroom without awful pain, that is great. I am hoping to ask my GI for something to help me when I see him. If he cannot help, I will ask him about a colon-rectal doctor/surgeon. I think they know all about the anus, better than a GI doc would. It is so annoying having to deal with all this. I mean I feel like I am going to have to beg my doctor to look at my butt, is that not sad?? I mean I want to know what is going on! I do not get embarrassed anymore, that is probably because I have been through so much crap in the past 13 years and poked and prodded in every single orifice I have Lol! My Modesty flew out the window long ago! I just want to feel better, that is all I care about.

Don't give up hope. Always keep it in the back of your mind that YOU know your body better than anyone else. If any doctor tells you your issues are "in your head" or it is mental, you walk straight out of there and do not go back. I honestly can say a lot of the doctors I have seen in the past did me a disservice by demeaning me and disregarding my concerns when I first got sick. It was not a nice journey. I mean I went to the doctor thinking they were so smart and would definitely be able to help me. I learned really fast that it does not work that way most of the time. I learned I had to do the leg work and the research on my own. You are your best advocate.

With your urinary issue, do you get pain in your bladder or just urine leakage? I have Interstitial Cystitis of the bladder. It is painful. You get chronic sores, sometimes ulcers and inflammation in the bladder. I will admit it is one of the most painful things I have had to deal with so far. It really complicates things for me. I mean I also am prone to UTI's because of this so I have to be very careful and super clean. So now with my having all this anal pain and such, my GI doc is telling me to take sitz baths, yet my urologist says NO way, only showers. She said sitting in a bath will cause bacteria to migrate up into the urethra and cause a UTI, which is true. So one illness is complicating the other. It really sucks. I am also allergic to many medications so when I do get a UTI, I am not really able to take most antibiotics( I am either resistant to them and they no longer work, or I get severe adverse reactions and cannot take them), so I have to be super careful when trying to prevent UTI's and infections. Not a good situation to be in. I just developed an abscess on my labia last month. Had to get it lanced and drained by the dermatologist who said it was likely an infected hair follicle or gland. It has been a month and the area still will get little bumps and irritation around it at times and it kind of feels sore inside.

Anyhow, sorry for rambling on. We just have to keep chugging along and just keep looking for answers.
05-03-2016, 05:08 PM   #14
Ihurt
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Thank you again for your kind words and support. I had a really nice GI doctor a few years ago but he moved out of state . I liked him because he was so honest. I remember back years when I was having issues and saw that horrible gasteroenterologist, I found this GI and instantly liked him. On my first appointment I reluctantly told him about my experience with the previous GI doc I just had seen and how badly I was treated. He told me, and these were his words " that doctor sounds like an idiot!". He told me that sadly lots of doctors have ego issues and would rather tell you it is in your head or just pass you off instead of admitting they just do not know. He said it is all ego. At the time I was having issues with my bladder and he was trying to help me more than the urologist I was seeing and he was not even a urologist! He told me Gastroenterology is 30 years behind and urology is 30 years behind gastroenterology when it comes to things. He said they have ways to go. They know some things, but so much they still do not know. He was not a huge believer in tests. I mean he said some tests are good, like colonoscopy and endoscopy can tell you a lot since you are looking directly at the source through a camera. He just said a lot of function tests are not always reliable since the body changes from moment to moment. I was devastated when he moved away. But yeah, I can see why you loved your Cardiologist, she sounded like she cared and wanted you to feel better. That is how my old GI doc was.

As far as the Interstitial Cystitis, that was diagnosed through a cystoscopy( they look inside the bladder with a camera similar to a colonoscopy except they put the camera into the urethra and look at the bladder. Not a fun test, but you can insist on being knocked out. Then it is okay because you wont feel anything. Actually my IC was able to be seen through a cystoscopy, but some people with IC have to have a Hydrodistension of the bladder where they put you to sleep and they fill the bladder( basically over extend it) and look for lesions on the bladder wall. I refused to do this procedure though because after researching I found it was not very reliable and could cause my pain to get worse. Luckily the urogynecologist I saw was able to see the inflammation with just doing a plain cystoscopy.

You know, I have lots of pain when I have my period too. My gynecologist says I have uterine Fibroids. That was diagnosed through Vaginal Ultrasound. She said she suspects endometriosis as well, but I would have to have a Lapracopic surgery in order to diagnose it and she said she did not think I should go there yet. I get horrible pains at times. Do you a lot more pain in your abdomen when you have your period? I am literally praying for menopause! It is funny, most women dread menopause and i am like " bring it on"!!

It sounds like you might have pelvic floor dysfunction. I know some ladies who have this have that issue with peeing and then having to sit back down and finish peeing again. Ugh, I am sorry you have that. When my IC is at it's worst My bladder feels like it has about 1000 canker sores inside with lemon juice being poured on top. It is absolutely awful. I cannot even begin to describe the pain. I did not honestly know something could be so painful. Ugh, I am sorry you are dealing with UTI's. For me they are absolute misery, probably because my bladder is already messed up so add a UTI on top and forget it, my pain goes through the roof. I will say yes, that your bladder could be aggravated when your Bowels are upset. I know at times my bladder gets worse when my Bowels are upset. I think because there are so many nerves in that area that things can overlap and irritate one another. Like right now, my anal area is super irritated and it does at times make my bladder feel more irritated so yes, it can do that.

Believe me, I totally understand your fear about doing a colonoscopy and being afraid it will make your butt hurt worse. When I had to have my colonoscopy three years ago I was petrified to do it because I was so afraid all the watery diarrhea would give me a UTI and make my bladder worse. Everything revolves around my bladder. I cannot explain it, but the pain it causes me puts the fear of God in me when it comes to something that "may" make it worse. Well, I ended up doing the colonoscopy and my bladder was okay( well at first anyhow). I did end up getting a vaginal infection which then caused me a UTI! But yes, it really aggravated my anal area and aggravated my hemorrhoids. However, I did not prepare myself. This time if I have to have another one, I will stock up on that Zinc oxide paste and vaseline or whatever and use a lot of it before I start drinking that stuff and in-between as well! I would ask your doctor who is doing the colonoscopy about this and see what he/she suggests. Tell the doctor you are afraid because things are already extremely painful and inflamed down there as it is. Maybe they will suggest something better even. I still will have to worry about my bladder though. I Hate the Interstitial Cystitis. I was considering bladder removal but it is a seriously complex surgery. They have to literally do a bowel resection as well in order to form a conduit to let the urine out. That would be last resort for me. I pray it wont come to that.

You are a strong person too! You have made it this far and you will get to the bottom of all this, we both will. It sucks that these things take so much time and it seems hard to get answers and help. We just have to keep chuggin along.
















I am sorry to hear about your mother. I went through some really tough and depressing times in life and I can remember thats when I started loosing Immunity. I can now undertand the connection.

By a blaming doctor I mean doctor that treats you like an idiot. Honestly there is no other explaination of there expression other then you are an idiot and its all in your head. Did you read about the story of a woman who died because doctors kept saying it was im her head.

I get excrutiating pains in chest too. But the cardiologist i went to was a nice lady. She did all the relevant tests that didnt cost me a.dime and concluded that I didnt have any heart problem. Yet she gave me meds for angina pain releief. And it did help. She was different and I wish all doc were like that too.

Yes it is sad that you have to beg to the doctors but trust me you are way brave than normal people. No you have your modesty intact but it only reflects your bravery, respinsibility and commitment towards getting healthy. I really appreciate your struggle. I agree with your decision to visit an anrectal surgeon , its on my list now too ( if things dont workout here).

I get tons of UTI an year. Last year, i got 3 in a month. It was like the antibiotic was not working and then my gp suggested me a urologist. I went, got a urine culture and other tests done but it turned out i didnt have any bacteria . So it wss negtive. He gave me dutrisol and a mild antibiotic u take for a month. The incontinence is on and off but i cannot empty my bladder in a single time. I have to stand walk around sometimes and then sit back to welcome another half of the urine. I feel unsatisfied, even after that. And i have to convince my self i peed.

No my bladder doesnt hurt much now. But my periods kill me. I have a general weakness and heavy ness in that area like i am sitting in something. When my Urologist said okay I never went back cause I already had too much to deal with.

Tell me how you get this interstitail cystitis diagnosed? I have had hundereds of ultrasounds, stating m all okay. Is ultrasound enough? Also could my bladder be effected because of bowel too?

About the labia thing you said. I have a whole bunch of bumps around it. I lived with it for years feeling shy to open legs to a doctor. Last year I did, and she says she cant see anything. Everything is normal there. But i can feel the bumps that were not always there. Could it also be a sign of abscess. I think i should mention it to my GI too.

Thank you for taking out time to read and reply. I really appreciate it. You r right we need answers
05-04-2016, 01:28 PM   #15
Rooms
 
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I am so sorry you have to go through this everyday. Seeing your pain only makes me more grateful for the pains i dont have. I wish I could be of any help to you.

Yes my abdominal pain during periods is worst. Not only that I am so out of control that it leaks and I am just stained everywhere. I am also amazed evry time i have periods at how much blood my body makes despite bad health. But fortunately I am not bleeding a lot this year. But still the pains are there. Not just that, the periods are preceeded my diarrhea. I always have 2 to 3 loose stools that drain me out and just when I collapse period says hi!

Like you I have also waited for my period to end ever since it started. Infact the day they kicked it in I am on a rollercoaster ride of unresolved health issues. Unlike you, I am not that strong and become a little more dependent on family. They do not complain but they defenitely need answers for this health state of mine. I even dont see my self becoming a mother one day. With a pelvic floor so weak and fistula and all that pain in the a** i can not see a good future ahead. Atlease not a future with companionship and family of my own.

You are right, i have a weak pelvic floor. I do keigel exercises when i get incontinence. I have a good body but a round bear belly and big butt. If I had been fat all over the bady, it wouldn't look odd. But now it does.

Though I am not in a position to suggest, but I would still recommend you to take aspaghula hask and lots of ointment for the anal pain. Take rest too and avoid sitting a lot. I do not know if its my medicines or the illness but I am really sleepy all the time and when I am awake I have headache at the right side. So i would suggest you too to tak rest and lie down as much as possible. When sitting is unavoidable dont sit straight on the butt rather tilt a little relieving the pressure on anus and wear pure cotton fabric.

Also for your fibroids, is there any problem in removing them? I have heard they can become cancer. Let me knoe more about them and why you have to endure them. My mother had 2 and when they removed her uterus they found the third one too and it had also damaged her ovaries but it was nit visible in the tests and they only found out during the operation.so they took our consent and removed one of it too. My mother has a differenr life now. She is happy and more active after this operation. Period or not these fibroids can suck your life away and make it hell lot of more miserable. Maybe you should take a second opinion about them too. Our lives revolve our uterus as a women.

Also have you tried the alternative medicines for your problems too? I had a few other problems that went away with ayurvedic medicine and cupping too and they never came back. But, I only used them for less serious issues.

Also, please if I may suggest, include honey in your diet. You could drink 2 tablespoons of it with cold water half an hour before breakfast and It will start doing wonders for your bladder. My UTIs were controlled by honey. Give it a try. It might work. You will start noticing a change very soon.

I hope you dont have to go through bladder removal and you get healthy miraculously. It would look stupid but still, tell your body you love it and ask it to calm down. I can not feel what you do and it is easier for me to suggest you things. Only you can feel your pain but I pray one day you cheat all these pains and diseases and live a well controlled healthy life full of success. Ameen




Thank you again for your kind words and support. I had a really nice GI doctor a few years ago but he moved out of state . I liked him because he was so honest. I remember back years when I was having issues and saw that horrible gasteroenterologist, I found this GI and instantly liked him. On my first appointment I reluctantly told him about my experience with the previous GI doc I just had seen and how badly I was treated. He told me, and these were his words " that doctor sounds like an idiot!". He told me that sadly lots of doctors have ego issues and would rather tell you it is in your head or just pass you off instead of admitting they just do not know. He said it is all ego. At the time I was having issues with my bladder and he was trying to help me more than the urologist I was seeing and he was not even a urologist! He told me Gastroenterology is 30 years behind and urology is 30 years behind gastroenterology when it comes to things. He said they have ways to go. They know some things, but so much they still do not know. He was not a huge believer in tests. I mean he said some tests are good, like colonoscopy and endoscopy can tell you a lot since you are looking directly at the source through a camera. He just said a lot of function tests are not always reliable since the body changes from moment to moment. I was devastated when he moved away. But yeah, I can see why you loved your Cardiologist, she sounded like she cared and wanted you to feel better. That is how my old GI doc was.

As far as the Interstitial Cystitis, that was diagnosed through a cystoscopy( they look inside the bladder with a camera similar to a colonoscopy except they put the camera into the urethra and look at the bladder. Not a fun test, but you can insist on being knocked out. Then it is okay because you wont feel anything. Actually my IC was able to be seen through a cystoscopy, but some people with IC have to have a Hydrodistension of the bladder where they put you to sleep and they fill the bladder( basically over extend it) and look for lesions on the bladder wall. I refused to do this procedure though because after researching I found it was not very reliable and could cause my pain to get worse. Luckily the urogynecologist I saw was able to see the inflammation with just doing a plain cystoscopy.

You know, I have lots of pain when I have my period too. My gynecologist says I have uterine Fibroids. That was diagnosed through Vaginal Ultrasound. She said she suspects endometriosis as well, but I would have to have a Lapracopic surgery in order to diagnose it and she said she did not think I should go there yet. I get horrible pains at times. Do you a lot more pain in your abdomen when you have your period? I am literally praying for menopause! It is funny, most women dread menopause and i am like " bring it on"!!

It sounds like you might have pelvic floor dysfunction. I know some ladies who have this have that issue with peeing and then having to sit back down and finish peeing again. Ugh, I am sorry you have that. When my IC is at it's worst My bladder feels like it has about 1000 canker sores inside with lemon juice being poured on top. It is absolutely awful. I cannot even begin to describe the pain. I did not honestly know something could be so painful. Ugh, I am sorry you are dealing with UTI's. For me they are absolute misery, probably because my bladder is already messed up so add a UTI on top and forget it, my pain goes through the roof. I will say yes, that your bladder could be aggravated when your Bowels are upset. I know at times my bladder gets worse when my Bowels are upset. I think because there are so many nerves in that area that things can overlap and irritate one another. Like right now, my anal area is super irritated and it does at times make my bladder feel more irritated so yes, it can do that.

Believe me, I totally understand your fear about doing a colonoscopy and being afraid it will make your butt hurt worse. When I had to have my colonoscopy three years ago I was petrified to do it because I was so afraid all the watery diarrhea would give me a UTI and make my bladder worse. Everything revolves around my bladder. I cannot explain it, but the pain it causes me puts the fear of God in me when it comes to something that "may" make it worse. Well, I ended up doing the colonoscopy and my bladder was okay( well at first anyhow). I did end up getting a vaginal infection which then caused me a UTI! But yes, it really aggravated my anal area and aggravated my hemorrhoids. However, I did not prepare myself. This time if I have to have another one, I will stock up on that Zinc oxide paste and vaseline or whatever and use a lot of it before I start drinking that stuff and in-between as well! I would ask your doctor who is doing the colonoscopy about this and see what he/she suggests. Tell the doctor you are afraid because things are already extremely painful and inflamed down there as it is. Maybe they will suggest something better even. I still will have to worry about my bladder though. I Hate the Interstitial Cystitis. I was considering bladder removal but it is a seriously complex surgery. They have to literally do a bowel resection as well in order to form a conduit to let the urine out. That would be last resort for me. I pray it wont come to that.

You are a strong person too! You have made it this far and you will get to the bottom of all this, we both will. It sucks that these things take so much time and it seems hard to get answers and help. We just have to keep chuggin along.
05-04-2016, 02:32 PM   #16
Ihurt
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Thanks so much for your kind words and suggestions. Where can I get aspaghula hask? I am interested in trying this for my anal pain. Thank you as well for the suggestions for the fibroids. The gynecologist says they are small so should not be causing me issues. However I have read even small ones can cause issues for some women depending on where they are. I have to get Ultrasounds every 6 months to every year to check on them to see if they are growing. They have been growing a little every time I have a Ultrasound. I have to keep an eye on it because if they keep getting bigger I will have to insist they do something. I know if they get to big then to remove them they would have to do an open abdominal surgery. I do NOT want that. If they are still small enough they can remove things through laproscopic surgery which I think would be better. I would probably just do a hysterectomy at that point though ( they can do it lapracopically) if fibroid and uterus are not to enlarged. I really do not want to have any surgeries down there though because of my IC of the bladder. I am terrified of making that worse! Also I worry about the whole catheter thing. When you have surgery you have to have a catheter. Catheters Always cause me UTI's. When I first got diagnosed with IC I had to do these bladder instillations where they inject medicine into the bladder using a catheter. I got lots of infections at that time. One infection I had lasted like over two months, it would not go away. I ended up on antibiotics for a weeks to get rid of it. So all these things scare me. I am glad the surgery helped your mom, that is great!

Awe, you are a very strong person, do not ever think you are not. Anyone who is going through pain with any chronic illness has to be a strong person. I guess we are forced to. Believe me, there are many a nights I cry myself to sleep as I am so tired of it all. I also rely a lot on my family. My husband is very understanding thank God. I also rely on my dad too, he helps me out a lot, I do not know what I would do without him. I have a brother who is Not very compassionate at all. He would say things like " oh, you just need to have a drink and relax and your issues would get better"!! I am severely limited with my diet ( I also am gluten free). During holidays my brother and his wife will invite us over and not once would they ever try and have something I could eat. So now we just do our thing here at home. My brother does not understand that I cannot eat certain things. He will roll his eyes at me and act like I am nuts.

Thanks for the honey idea. I use to get this honey called Manuka honey and it is supposed to be healing. I am going to try it again.

I have done lots of natural things. I drink cornsilk and Marshmallow root tea for my bladder. It helps a little. I also take this stuff called Dmannose powder to help prevent UTI's. I like to do as much natural as I can because i am so super sensitive to medications.

Oh, I meant to ask you, what soap do you use when you shower? I am trying to find a soap that I can use down there that I not irritating. I have been using this one that is just a non-fragrant one made with Glycerin. I wonder if it is aggravating me. I am trying to find a different one. I figure I would ask you since you have so much irritation down there too and wondered what you were using to clean?

Don't say you will never have a family, you never know. Maybe you will get better and healed to where you feel well and you will meet that special someone. Never say never. God works in mysterious ways and things happen when you least expect it.

We just have to keep having faith that we will get to where we need to be.















I am so sorry you have to go through this every Seeing your pain only makes me more grateful for the pains i dont have. I wish I could be of any help to you.

Yes my abdominal pain during periods is worst. Not only that I am so out of control that it leaks and I am just stained everywhere. I am also amazed evry time i have periods at how much blood my body makes despite bad health. But fortunately I am not bleeding a lot this year. But still the pains are there. Not just that, the periods are preceeded my diarrhea. I always have 2 to 3 loose stools that drain me out and just when I collapse period says hi!

Like you I have also waited for my period to end ever since it started. Infact the day they kicked it in I am on a rollercoaster ride of unresolved health issues. Unlike you, I am not that strong and become a little more dependent on family. They do not complain but they defenitely need answers for this health state of mine. I even dont see my self becoming a mother one day. With a pelvic floor so weak and fistula and all that pain in the a** i can not see a good future ahead. Atlease not a future with companionship and family of my own.

You are right, i have a weak pelvic floor. I do keigel exercises when i get incontinence. I have a good body but a round bear belly and big butt. If I had been fat all over the bady, it wouldn't look odd. But now it does.

Though I am not in a position to suggest, but I would still recommend you to take aspaghula hask and lots of ointment for the anal pain. Take rest too and avoid sitting a lot. I do not know if its my medicines or the illness but I am really sleepy all the time and when I am awake I have headache at the right side. So i would suggest you too to tak rest and lie down as much as possible. When sitting is unavoidable dont sit straight on the butt rather tilt a little relieving the pressure on anus and wear pure cotton fabric.

Also for your fibroids, is there any problem in removing them? I have heard they can become cancer. Let me knoe more about them and why you have to endure them. My mother had 2 and when they removed her uterus they found the third one too and it had also damaged her ovaries but it was nit visible in the tests and they only found out during the operation.so they took our consent and removed one of it too. My mother has a differenr life now. She is happy and more active after this operation. Period or not these fibroids can suck your life away and make it hell lot of more miserable. Maybe you should take a second opinion about them too. Our lives revolve our uterus as a women.

Also have you tried the alternative medicines for your problems too? I had a few other problems that went away with ayurvedic medicine and cupping too and they never came back. But, I only used them for less serious issues.

Also, please if I may suggest, include honey in your diet. You could drink 2 tablespoons of it with cold water half an hour before breakfast and It will start doing wonders for your bladder. My UTIs were controlled by honey. Give it a try. It might work. You will start noticing a change very soon.

I hope you dont have to go through bladder removal and you get healthy miraculously. It would look stupid but still, tell your body you love it and ask it to calm down. I can not feel what you do and it is easier for me to suggest you things. Only you can feel your pain but I pray one day you cheat all these pains and diseases and live a well controlled healthy life full of success. Ameen
05-04-2016, 06:15 PM   #17
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You are very welcomed. Asbaghol husk is also known as psylium husk. I am sure you must have heard ir someewhere. They are not laxative and yet they politely push the stool out in the jelly form. They are alsi gluten free and used in many cooking recipies too you might wanna try.

For your UTI, basil seeds do wonders. In times of heat too they cool down the heat and make a wonderful drink. You can google it find how people are amazed with it. It swells up in water just like husk. I drink one teaspoon full basil seeds (already soaked in water a night before) and add 2 tablespoons of honey in it and drink before breakfast.

Also, yougurt is a natural probiotic so you could keep a small bowl size serving to be consumed in a day that might help you in fighting infections. Another herb is chia seeds. Now chia and psyliym husk are the same. Its just chia are seeds and psylium is husk made from the seed. But for me i have seen chiaa more better. They make you feel fuller too and have a cooling effect. You can use it before going to sleep. Just stir a teaspoon full in water and drink. You can use juice or any non frizsy drink to drink with it. Husk is good too but it sticks to mouth. So better soak.it not.more then a minute. So it becomes a paste and drink.it. dont add too.much water in it.

For the anal area today I also gave it ice pack. It wss a little embarrassing but the result was so amazing i instantly felt better. You might wanna try it. It should be used four times in 3 days to see a considerable difference. It reduces the inflammation.

I believe these are the things that have saved me from other serious diseases. Had they not been there i would have had many resections already. All these help in making soft and most importantly slippery stool. It becomes effortless and reduces fhe intestinal inflammation.

Sorry to hear about the two month antibiotic thing. I can not begin to undertand how it felt to you to continue antibioitics for so long. Its hard for me to continue then for 5 or 7 days. 2 months must have been devastating.

For your period pain, have you tried chamimille tea? Excuse me for the spelling. But the tea is hearbal im nature and helps on period cramping. Imfact it is so good for stress. People take it before sleep to sleep well. And for periods it works if you dont have diarrhea or uti. Try it if it doesnt help you, it wouldnt do any harm either.

I am sorry to hear about your brother being uncompassionate. I can relate. Many people in my relatives have suggested my parents to treat me like an ordinary child so i would be tough. Like i make this all up in my mind. For many years, they believed them too. I have been to family gatherings despite begging to let me stay home and then spending whole night in bathrooms due to heavily bloody disentry.

Whenevrr i had exams my condition would flare up and everyone would say i am trying to find an excuse to not studdy. Luckily, the anxiety and stress did good to me academically. Althiugh m physically shattered but did good in studies.

I am glad my parents and family have learnt to listen to me. And there is nothing more i can ask. I usually go ti the doctor alone. But this time my mom went too and I saw a considerable difference in the doctors behaviour. She started taking me more seriously. My sister suggested that all my siblings and mom wkuld accompany me next time. Trust me it works. It tells doctors how much you are important to someone and you are no practice material.

As for the soap, i dont use soap or wipes. Rather i have a small hand shower near the toilet seat. I wash up front to back after relieving myself. So i am usually clean. I had read on internet that our vagina has a self cleaning machanism. When we use soap we kill the natural healthy bacteria that is there to fight with infection causing bacteria.
I am.sorry i cant suggest anything.. If youd want you could give this method a try. I wash every time i pee and also after every Bm.

Thank you again, for every word you have written ti me. It means a lot. at this point in life may be i can not see a future but i hope i.will have my spirit back soon. Thank you.. you will be in my prayers..
05-05-2016, 01:58 PM   #18
Ihurt
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Thanks for all the advice and ideas, I really appreciate it.

It really sucks because I have so many allergies. It makes it so hard to take anything. Every medication I Have taken I end up eventually getting allergic to it or having a nasty reaction. It makes it so hard.

Yes, I have heard that soap can be irritating to the skin down there. I am using one that only has Gyycerin and coconut oils in it. There is no fragrance at all. I was told by my urologist to use a mild soap especially around the anal area after having a BM to make sure to clear all the fecal matter and bacteria away. Now my bladder is not happy either and this is making things miserable. I hope by putting all the creams down there it wont cause a UTI, like cause bacteria to easily be able to migrate up to the vagina and urethra. I have no choice though, i have to put something on the area with it being so irritated. I am just using the Zinc oxide paste down there. It is like a super thick white paste( similar to diaper rash cream used on babies). It helps some with the irritation on the outside.

I called my GI doctors office to see if I can get in to see him before Next Friday. i am just waiting for the nurse to call me back. That can take sometimes 2 days!! It is ridiculous really, I mean I would think they should be able to get back to their patients the same day at least. I hope I can get in before Next Friday.

Thanks again for all the help and support. I will also keep you in my prayers.
05-05-2016, 03:17 PM   #19
Rooms
 
Join Date: May 2016
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I can undertand. Whenever you feel you are ready to test them do try. As they are simple food ingredients here in asia so not really medicines. I hope they wont hurt you.

You are right the creams can make bacteria migrate to ut through vagina. I hope your doctor suggests you something better. Something like a healing suppository that can ease the tension and itching. I hope you get a call back soon. Do update whenevrer you can or whenever you feel like. Either here or pm me. I will be glad to know if you got better.

I have an appoitnment on sunday. I hope our prayers get answered.
05-05-2016, 03:46 PM   #20
Ihurt
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Thanks. I just heard back from the GI doctor's office. They say I can come in tomorrow at 8:45 in the morning. I hope he will be able to look down there and see what is going on and more importantly, offer some help!

Yes, I am going to try some of the things you suggested, I really appreciate the advice.

Geez, Hope I don't get a UTI. I am trying to be as clean as I can be.

Wow, I did not realize you are from Asia. Such a far distance. I would love to take a vacation over there. I had a friend who visited over there and said it was beautiful! No way I could handle that long of a flight at this point. Maybe one day though.

Thanks again for the support. I will let you know how my appointment goes tomorrow. I pray your appointment goes well on Sunday. That is great your able to have an appointment on Sunday. Over here you can never get in to see a doctor on a Sunday, they are all closed!
05-06-2016, 11:19 AM   #21
Ihurt
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Rooms: Well I went to see my GI today. He looked down there and did not see much so then he did the finger exam. He felt around and I specifically asked him to pay attention to the left side as that is where my pain is. I told him for the last two times I had a BM I felt like a sharp type pain in that area. He said he thinks I likely have a fissure inside the anal canal. Not sure how he can tell by just feeling though. He prescribed me a lidocaine gel or soemthing like that which is supposed to numb the pain in there. I asked him about the nitroglycerin stuff that some people use to help heal fissures. He gave me a script for it, but he warned me if can cause side effects, especially Bad headaches in 50% of people who use it. I will start with the Lidocaine first. I just would like to know how I got a fissure when I have not been constipated at all? He said it just happens sometimes. Ugh, just not feeling to good. Between my anus killing me and my bladder killing me, I am not happy .

Just wanted to update you. Hope you are doing okay.
05-06-2016, 04:51 PM   #22
Grant
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Ihurt, Rooms. Oh boy I know how you feel. My backside is a disaster area most of the time. I have a fistula in my rectum that fortunately isn't infected or abscessing & fissures-I've had so many. The reason he can tell whilst doing the finger exam is how your sphincter reacts, the muscular spasm down there when he gets to the very painful area is a sure sign.
The ointment nitroglycerin is called GTN over here in UK. Its typically used on angina patients to rub into their chests to help widen blood vessels. Yes the headaches are severe & I've heard of people unable to drive because of it. But it does work in healing. The trick is the delivery to the area affected & I found rather than use a finger I go for one of those plastic tubes you typically get in hemmorroid ointments, smear the GTN all over it. Whenever I've used a finger it usually comes out bloody because I just manage to open the fissure up again. Finally if you want instant relief then sitz bathing is a must. You can buy the small bowl off ebay that fits over your toilet seat or basin & put in Epsom salts & water that's very warm. The relief is unreal & it aids healing as well. Please give it a go.
The very best of luck to both of you, I hope you get some relief very soon.
Best Wishes
Grant
__________________
1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate
Currently on:
Inflectra
Questran
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05-06-2016, 10:10 PM   #23
Ihurt
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Thanks Grant for the suggestions. Have you ever used lidocaine gel in the anal area? The GI doc said to use that first and see if it helps. Was the headache really severe from the nitro ointment? Meaning was it severe enough for you to stop it? They call the Nitro ointment here Rectiv ointment. I also worry because I do have already low blood pressure and I read it can cause the BP to lower. I have issues with Urinary tract infections so my urologist does not want me to submerge in any water, she said only showers. I have been using a heating pad though set on medium and placing it against my anus. Would that be equivalent to a warm sitz bath? My fissure is inside so water would not even touch it really.

Thanks for the idea on how to get the nitro ointment up there. When you had your fissures, were they also inside the anal canal? How long did it take them to heal? I have pain all the time ( more so when I am sitting) but always there is an ache in there in that area. I always thought it only hurt when you have a Bowel movement.

I am sorry you have all these issues down there too. I mean it is the worst place to have an ouchie! I have other issues which are horribly painful as well( I have IC which is Interstitial Cystitis of the bladder). With IC you can get ulcers and inflammation in the bladder and it can bleed. This really sucks! I wonder what people did back in the day before we had medication and doctors were scarce. I mean what did people do that came down with these things and how did they treat them?

anyhow thanks again for the support.













the muscular spasm down there when he gets to the very painful area is a sure sign.
The ointment nitroglycerin is called GTN over here in UK. Its typically used on angina patients to rub into their chests to help widen blood vessels. Yes the headaches are severe & I've heard of people unable to drive because of it. But it does work in healing. The trick is the delivery to the area affected & I found rather than use a finger I go for one of those plastic tubes you typically get in hemmorroid ointments, smear the GTN all over it. Whenever I've used a finger it usually comes out bloody because I just manage to open the fissure up again. Finally if you want instant relief then sitz bathing is a must. You can buy the small bowl off ebay that fits over your toilet seat or basin & put in Epsom salts & water that's very warm. The relief is unreal & it aids healing as well. Please give it a go.
The very best of luck to both of you, I hope you get some relief very soon.
Best Wishes
Grant[/QUOTE]
05-07-2016, 04:41 AM   #24
Grant
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ihurt, yes I've used it but my thoughts are only rely on it for pain relief. It wont aid healing imo.
The headaches are bad & like you I suffer with low bp. So if you use it don't bend down to do stuff because you're liable to get a bad dizzy spell. I take 2 paracetamol when I use it & it appears to take the edge off the headaches.
Sorry to hear you cant sitz bath, that's a blow.
Healing wise using GTN I usually notice the pain subsiding within 5 days or so along with cessation of bleeding. But you need to use the ointment a lot, especially if you're having multiple BM's a day.
Best Wishes
Grant
05-07-2016, 08:41 AM   #25
Ihurt
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Okay. Yeah, on the tube it says to only use twice a day. Luckily I am only having one BM a day and sometimes once every other day. I am confused as to how I got this. I dont have constipation at all, in fact my stools are always on the softer side usually.

So you do not think that the nitro really helps much with aiding in healing, but rather for the pain? Ugh, not looking foward to a nasty headache. I wont be able to take much to help with it if I get one. I cannot take any types of pain relievers due to getting side effects from them even! I would have to live through the headaches. That is why I was wondering how bad they are and it sounds like they are bad enough to cause significant pain .

Did you get them on the inside on the anal canal where you cannot even see it? It is hard to even know if I put stuff up there if it is hitting the area. This sucks. Do you think I should use like other stuff like hemorrhoid ointments or vaseline to squirt it up there to help heal it? My GI did not offer any suggestions. He just said to use the lidocaine gel to help with the pain that other ointments are not going to help. What do you think?









ihurt, yes I've used it but my thoughts are only rely on it for pain relief. It wont aid healing imo.
The headaches are bad & like you I suffer with low bp. So if you use it don't bend down to do stuff because you're liable to get a bad dizzy spell. I take 2 paracetamol when I use it & it appears to take the edge off the headaches.
Sorry to hear you cant sitz bath, that's a blow.
Healing wise using GTN I usually notice the pain subsiding within 5 days or so along with cessation of bleeding. But you need to use the ointment a lot, especially if you're having multiple BM's a day.
Best Wishes
Grant
05-07-2016, 03:10 PM   #26
Grant
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Its the lidocaine that is really for pain relief iirc. The nitro/gtn definitely aids healing. Yes they are nearly always in the anal canal & impossible to see from the outside, that's why a gastroenterologist will use a finger examination. Very painful, excruciating even. The other ointments I've found will only help so much. The GTN for all its horrible headaches does heal things up.
Good luck
Grant
05-07-2016, 04:33 PM   #27
Ihurt
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Thank you for the support and suggestions. I am going to try it. When he examined me it was not super painful, but it did hurt more after he examined me. one last question is how long did you usually have to use the Nitro ointment? I want to try it but am a little scared about the side effects.












Its the lidocaine that is really for pain relief iirc. The nitro/gtn definitely aids healing. Yes they are nearly always in the anal canal & impossible to see from the outside, that's why a gastroenterologist will use a finger examination. Very painful, excruciating even. The other ointments I've found will only help so much. The GTN for all its horrible headaches does heal things up.
Good luck
Grant
05-07-2016, 04:43 PM   #28
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I usually find the bleeding stops after a few days & the pain starts to die down after about 4 days. But I find that I need to keep going for a period of about a week to 10 days, if I stop using it before then the fissure comes back.
Grant
05-07-2016, 04:52 PM   #29
Ihurt
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Okay, thanks. I so far have not had any bleeding( at least not that I can see). My GI doc was reluctant to give me the nitro ointment at first due to the side effects. He claimed the fissure would heal on it's own anyhow in time. He finally gave me the script for it though after I asked. I just worry about the fissure getting infected. I mean lets face it, a wound in the anus is not the best place hygiene wise. If it were outside I think it would at least be easier to keep clean.
05-07-2016, 08:02 PM   #30
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The nitro works by stopping the sphincter muscle from spasming too much which is what causes the fissure. I've had them for years on and off and they never infect so try not to worry about that.

I also have low blood pressure and the first time I used the nitro I really noticed it, a drop in bp and a headache. But you get used to it really quickly and the side effects stop altogether! Start by using only a little and see how you go. Don't be put off by the side effects too much and persevere, I only has issues the first few times and now have none. Also use gloves to avoid getting any anywhere than where you want it.
I also use lidocaine to help with the pain but not at the same time.

HTH
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Layla
Diagnosed with UC in 1994, CD in 2014, "IBS" in between
Lactose intolerant, IgA deficient and Arthritis.
Resection due to strictures in 2014
Currently taking: amitriptyline, zinc, multi vitamin, b12 shots, Vit D, B complex, magnesium, calcium, Psyllium and the occasional iron infusion, probably sarting a medical trial soon

Previously on Remicade, Humira, Prednisone, Azathioprine, MTX, Pentasa, Asacol, Salofalk
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