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05-23-2016, 11:51 PM   #1
bradytbh
 
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Last edited by bradytbh; 05-24-2016 at 12:18 AM. Reason: [embarrassed]
05-24-2016, 12:20 AM   #2
ronroush7
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Welcome. I hope they can come up with a diagnosis soon and get it calmed down.
05-24-2016, 01:06 PM   #3
Walt
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Sorry you have decided not to reach out for help

You never need to feel embarrassed...
about ugly trouble you did not choose...
and problems you cannot lose.
peace
w

ps

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currently 'enjoying' Metho, Remi gave me Lupus, Humira pens now weekly - jury still out?
whew, just a little Prednisone?

I'm starting to think Crohn's isn't as much fun as they made it sound in the brochure?

Be who you are and say what you feel,
because those who mind don't matter and those who matter don't mind - Dr. Seuss

A hard road is better than no road.

getting knocked down is nothing.
bouncing back is everything.


in the end, only kindness matters...
05-24-2016, 01:13 PM   #4
smt
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Sorry you have decided not to reach out for help

You never need to feel embarrassed...
about ugly trouble you did not choose...
and problems you cannot lose.
peace
w

ps

I agree with the above. Please feel free to share your issues with the forum. This is a genetic disease, and you are not to blame for this. THERE IS ABSOLUTELY NO REASON TO FEEL EMBARRASSED ABOUT ANYTHING.

Come, share your story here, and I can guarantee many people would listen.
05-24-2016, 01:37 PM   #5
Tony H
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Hey Bradytbh as the other posters above hav said , this is the one place you never have to be embarrassed , I have had "accidents " on too many occasions to mention , have had to have examinations with my backside up in the air surrounded by medical students , have had colonoscopys with no sedation and cried like a baby , and am I embarrassed any-more , nope ,
I think of this forum as my safe place where I can just read the posts and see how much worse some people are that me and they still have time to help others with cheerful and helpful comments , welcome to the forum and I hope you stay .
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05-24-2016, 02:11 PM   #6
ronroush7
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I agree. Everyone here knows what you are going through and everyone will support you.

05-25-2016, 07:34 AM   #7
valleysangel92
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Hello lovely, I see from your post edit that you feel too embarrassed to share your issues publicly which is understandable if you're new to this or haven't talked about it before. I just wanted to reassure you that there is nothing to be embarrassed about here, we're all in this together and we've all been where you are now. This is a safe place, we are here to look out for each other and we will do what we can to help anyone who is in need. There is no need to feel embarrassed with us and there is no such thing as a silly question either.

I understand it can be daunting to post on a big forum if you're new to using them or talking about a particular subject, so I'd like you to know that my inbox is always open if you would feel more comfortable talking to someone in private. Anything you tell me would be in confidence and I would do all I could to help.

Take a look around the forum, read some of the posts and the replies and get a feel for it, settle in and make yourself at home. When you're ready reach out and we'll be there, we wont allow you to fall, I promise.
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coeliac disease/Osteopenia /Crohns/Arthritis/
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Meds- Vedolizumab, sulfasalazine, Lansoprazole, Vitamin D, prochlorperazine, Oramorph, MST, B12 shots My journey with crohns: http://glutenfreecookiemonster.wordpress.com/

Allergic to - inflectra, aza

Non CD meds - Gabapentin, paracetamol, ventolin
05-25-2016, 01:34 PM   #8
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Sorry you deleted your post

You absolutely CAN share anything, here. Really. ANYTHING. Crohn's can be messy in some pretty embarrassing ways. We've all experienced something or other that make us want hide from the world and never show our faces again. At least, here, you're surrounded by people who understand and might have some words of wisdom. Definitely encouragement and hugs.

You got this.

We got you.

Edited to add: Anything goes. I just saw a dancing poop emoji in someone's signature.
05-27-2016, 12:39 AM   #9
bradytbh
 
Join Date: May 2016
Thanks everyone for all the support, it means alot. I guess it's just a hard topic for me to talk about. I'll definitely take a look around the forum. xx

Brady <3
05-27-2016, 01:06 AM   #10
ronroush7
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You have found a great forum.
05-27-2016, 02:50 PM   #11
fuzzy butterfly
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Hi bradytbh. Welcome so sorry you need to be here,but as you are please make the most of it. We are a kind understanding supportive group here and we all want to help each other as much as possible. Nothing to big or small to ask about, nothing to embarrasing. We have all been through this and some are doing so still. Please feel free to ask for any help and advice you need,or just to vent if you want. We do ☺
Take care n best wishes 💕💕
05-27-2016, 05:35 PM   #12
Cross-stitch gal
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While you're not comfortable saying much on the forum yet there's other ways of talking. You can always private message a monitor, moderator or admin. Any of us would be good ones to talk to for questions or even concerns here on the forum. If we don't have the answers we could direct you to someone who does.

But, there are many good people who have posted on this thread too who you can talk to as well. Just remember you're not alone. Take care.
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05-28-2016, 02:07 PM   #13
nitty
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Welcome to the forum. It really is such a supportive community here and you will be able to find advice and support on almost anything to do with our crumby guts.

Whilst you are reading around it can be quite scary when you read about the many problems that people are having, but please remember that many forummers post more when they are having flares or other problems and that means that you can be left with the impression that you have a life of trauma ahead of you.
HOWEVER, probably the majority of people with IBD are managing to control their condition and are happily getting on with other things, not needing so much support from the forum.

I didn't see your first post so I'm not sure what your symptoms or experiences are, but (not to diminish how awful it is for you) most of us have been there too. Just three months ago I was sat bawling my eyes out in front of my IBD nurse (and even in the waiting room beforehand) because of the sheer indignity of what I was going through.
Now I am on the verge of remission and have my quality of life back.

This forum is a true example of the saying "A problem shared is a problem halved".
Whatever you are going through, you will find friends here who understand.

Best wishes.
02-21-2017, 04:36 AM   #14
bradytbh
 
Join Date: May 2016
Well, after quite a long time, I've finally managed to get an appointment with a specialist (in about a months time). And they've given me some codeine to help with the pains, but I'm hesitating taking them as I don't know if that will interfere with any tests they run, so I might just stick to over the counter pain meds unless it gets too bad. I believe they've ordered a colonoscopy and an endoscopy, along with more blood tests.

I don't know where that'll land me, but hopefully they can find out whats wrong.

All the best

Brady

(And thanks again for the support xx)
02-21-2017, 07:16 AM   #15
TK83
 
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As said before this is a really supportive group and you'll always find someone who has been through something similar to you. Even if you don't find a solution, knowing you're not the only one going through something can be a comfort. Please don't feel embarrassed as we all have stories that curl the toes and there is no such thing as a stupid question so ask away
02-21-2017, 11:14 AM   #16
Tuff
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[QUOTE=bradytbh;966575]I might just stick to over the counter pain meds unless it gets too bad.

For mild pain, your doctor may recommend acetaminophen (Tylenol, others), do not take other common pain relievers, such as ibuprofen (Advil, Motrin IB, others), naproxen sodium (Aleve, Anaprox). These drugs are likely to make your symptoms worse, and can make your disease worse as well.
Hope you find some answers sood.
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02-24-2017, 08:55 AM   #17
valleysangel92
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Well, after quite a long time, I've finally managed to get an appointment with a specialist (in about a months time). And they've given me some codeine to help with the pains, but I'm hesitating taking them as I don't know if that will interfere with any tests they run, so I might just stick to over the counter pain meds unless it gets too bad. I believe they've ordered a colonoscopy and an endoscopy, along with more blood tests.

I don't know where that'll land me, but hopefully they can find out whats wrong.

All the best

Brady

(And thanks again for the support xx)
I'm so glad you finally managed to get seen by a specialist. I don't think the codeine should interfere with the test results as long as you dont take them for a few days before doing the colonoscopy prep. I once accidentally took two 30mg cocodamol tablets the day before a scope and it still turned out fine, I was totally clean for the test (I'm not recommending that though, you should stop taking it about 3 days before, I forgot and took some by mistake during a bad flare). Depending on where you are located, you can get paracetamol with small amounts of codine over the counter (they won't be as strong as the ones the doctor gave you so shouldn't cause constipation as quickly but may work better than plain paracetamol/ Tylenol), or you can get anti spasmodic medications like buscopan which help with spasms. Buscopan is sometimes marketed in the UK as an IBS medication but is totally safe for us to use.

Other options are things like a heat pad, I bought an electric one last year and its honestly one of the best things I've ever done. I don't know where I would be without it now. Mine is safe to sleep with, and shuts itself off after 3 hours (it can be turned straight back on if needed) and the temp is adjustable . A good old fashioned hot water bottle or wheat bag can do the trick just as well though.

Peppermint is great for cramping, or general colicky pains, and can be consumed as tea or sweets, or even just as peppermint capsules. Sucking mints in general is great for gassy pains and bloating. Ginger is very good for nausea, I tend to have ginger biscuits but again you can get ginger tea or ginger ale and these will work well too.
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