Share Facebook
Crohn's Disease Forum » Treatment » Humira/Adalimumab » Does this happen with others?


06-24-2016, 09:22 AM   #1
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Does this happen with others?

Last week, the specialist typed out that I was in remission. I can go a few days feeling fine and then all of a sudden I will have a bad day. Is that common?
06-24-2016, 12:41 PM   #2
Clash
Forum Monitor
 
Clash's Avatar
There are different types of remission

Clinical: lab work is normal and symptoms have abated or lessened considerably

Endiscopic: visually your bowels look good

Histologic: at the cellular level there is no inflammation present.

If his statement is off of lab work then you could be in clinical remission yet still not have the inflammation fully controlled so you could still have symptoms.

The therapy goal of most GIs today is to reach all three types of remission with mucosa healing. This would be considered deep, stable remission which tends to last longer and lessens the risks of damage leading to surgery.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
06-24-2016, 12:43 PM   #3
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Thanks

06-24-2016, 12:51 PM   #4
lenny
Senior Member
My son's last doctor had written in my son's chart that he was doing well, every visit, even though he had many unresolved issues. Nothing was written down! Was he listening? I have no idea.
06-24-2016, 12:54 PM   #5
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Sometimes doctors don't listen

07-02-2016, 12:09 AM   #6
Echodog
 
Join Date: Jun 2013
I hate the word remission for Crohn's. I know clinically it's correct but it doesn't feel right. For me, either I've had a good day or a bad one. If I'm lucky , I've had a good week. Maybe even a month. I can't call any of it remission even if that is the correct term. When I was 13, I was diagnosed with Leukemia. I'm 46 now so it's a thing of the past. remission in cancer is pretty black and white. You have active cancer or you don't. Crohn's doesn't work like that. I've had good months and even good years. I still would never say I'm in remission


Reply

Crohn's Disease Forum » Treatment » Humira/Adalimumab » Does this happen with others?
Thread Tools


All times are GMT -5. The time now is 01:48 PM.
Copyright 2006-2017 Crohnsforum.com