Does this happen with others?

Last week, the specialist typed out that I was in remission. I can go a few days feeling fine and then all of a sudden I will have a bad day. Is that common?

There are different types of remission

Clinical: lab work is normal and symptoms have abated or lessened considerably

Endiscopic: visually your bowels look good

Histologic: at the cellular level there is no inflammation present.

If his statement is off of lab work then you could be in clinical remission yet still not have the inflammation fully controlled so you could still have symptoms.

The therapy goal of most GIs today is to reach all three types of remission with mucosa healing. This would be considered deep, stable remission which tends to last longer and lessens the risks of damage leading to surgery.

Thanks

My son's last doctor had written in my son's chart that he was doing well, every visit, even though he had many unresolved issues. Nothing was written down! Was he listening? I have no idea.

Sometimes doctors don't listen

I hate the word remission for Crohn's. I know clinically it's correct but it doesn't feel right. For me, either I've had a good day or a bad one. If I'm lucky , I've had a good week. Maybe even a month. I can't call any of it remission even if that is the correct term. When I was 13, I was diagnosed with Leukemia. I'm 46 now so it's a thing of the past. remission in cancer is pretty black and white. You have active cancer or you don't. Crohn's doesn't work like that. I've had good months and even good years. I still would never say I'm in remission