Share Facebook
Crohn's Disease Forum » Treatment » Humira/Adalimumab » 'Joint' pain - what to do?


07-02-2016, 11:10 AM   #1
nitty
Senior Member
 
nitty's Avatar
 
Join Date: Dec 2011
Location: United Kingdom

My Support Groups:
'Joint' pain - what to do?

So, it seems that the pains I am having have not been caused by Humira 'withdrawal' as it has continued even after my last jab.

Rather than being joint pain as such, it is more like the connective tissues, mainly tendons, with a little skin discolouration like mild bruising at the affected sites (had clotting checked yesterday, just in case). It is not really much of a problem through the day (just mild aching) but in the evening and by bedtime it is really quite bad, pretty painful and debilitating. I'm still uncomfortable in the morning, but it eases off gradually until evening again.

I have some other symptoms which are making me wonder whether this is Sjogrens symdrome (occasional dry mouth, achey jaw, post-nasal drip).

I need to sort out seeing a specialist, but in the meantime I wanted to ask you guys whether stopping the Humira will stop the pain or am I stuck with it?
Also, if it is the Humira causing it, am I likely to have the same issues if I swapped to a different biologic or should I investigate other drugs/drug combinations?
07-02-2016, 12:24 PM   #2
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I am sorry for what you are going through. I would think if it were the Humira causing it that it would eventually stop. In that case, I would ask your doctor about putting you on a different biologic. Let us know what the specialist says and how you are doing.
07-02-2016, 04:56 PM   #3
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Tendon pain is still part of Spondyloarthritis (SpA)
I forget the technical term for it starts with an E
Enthesitis I think
Even if it continues after the humira shot doesn't mean humira isn't helping
Most with SpA need Mtx added as well as physical /occupational therapy

Can you see a rheumotologist??

Tagging Maya142 and Clash
__________________
DS - -Crohn's -Stelara
07-02-2016, 06:47 PM   #4
Maya142
Forum Monitor
 
Maya142's Avatar
Yes, it's enthesitis. It's pain where the tendons and ligaments insert into the bone. It's very common in SpA. Heel pain is probably the most common spot for enthesitis. The morning pain that gets better as the day goes on is pretty typical for inflammatory arthritis.

Are you on Humira every two weeks? Sometimes switching to Humira every week helps. Adding something like MTX or Sulfasalazine might help. PT, swimming and ice and heat should help.

You could also ask about something like Voltaren gel - less is absorbed so it's not as bad for the gut, but it could help a lot. Depending on how bad your Crohn's is, your GI might be ok with you taking an NSAID like Celebrex.

Seeing a rheumatologist is a good idea. Good luck!
__________________
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
07-03-2016, 05:07 AM   #5
nitty
Senior Member
 
nitty's Avatar
 
Join Date: Dec 2011
Location: United Kingdom

My Support Groups:
Thanks everyone.

My last gut flare was only the last 15cm of colon, and I have never had small bowel disease so I have chanced to occasional ibuprofen as I don't think it will be too much of a problem for me, and I would definitely try the gels if the docs OK it.

Things weren't nearly so bad last night, and it might just be the random nature of this, or it might be that I was out and about, active and distracted that helped, rather than sitting at home waiting for things to get worse!
Reply

Crohn's Disease Forum » Treatment » Humira/Adalimumab » 'Joint' pain - what to do?
Thread Tools


All times are GMT -5. The time now is 11:56 PM.
Copyright 2006-2017 Crohnsforum.com