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Crohn's Disease Forum » Parents of Kids with IBD » Shake Supplements dairy and soy free


07-17-2016, 11:33 PM   #1
kimmidwife
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Shake Supplements dairy and soy free

Hi All,
My friends daughter was recently diagnosed with Crohn's disease. She has lost a ton of weight and now weighs only 96pounds. They want her to drink a supplement she is trying to find one that is palatable. She is allergic to soy and dairy. I was hoping someone here could reccomend one.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
07-18-2016, 04:53 AM   #2
my little penguin
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Join Date: Apr 2012

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Orgain vegan is dairy and soy free
Neocate Jr
Elecare Jr
And e028 splash
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07-18-2016, 09:24 AM   #3
kimmidwife
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Thanks MLP!!!!
07-27-2016, 11:36 AM   #4
kimmidwife
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Asking for another friend,
Can anyone reccomend a tasteless high calorie powder that you can add to food?
Is there such a thing?
07-27-2016, 11:53 AM   #5
Maya142
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How about Duocal? My daughter is VERY picky and she couldn't taste it.
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diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
07-27-2016, 08:28 PM   #6
CarolinAlaska
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We tried Duocal, and Jae says it makes everything sweeter...
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*J, 18, Crohn's diagnosis 1-2013 (age13), taking pred only. NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
07-29-2016, 02:49 AM   #7
jmiller
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Please be cautious. As far as I know, all prepared shake supplements contain
emulsifiers which may exacerbate Crohn's flares. Perhaps a shake supplement
using base ingredients made at home would be beneficial if others aren't tolerated.
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Crohn's Disease Forum » Parents of Kids with IBD » Shake Supplements dairy and soy free
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