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Crohn's Disease Forum » Parents of Kids with IBD » Youngest daughter in a flare

06-11-2017, 08:43 PM   #121
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kimmidwife's Avatar
Extra shot given. My poor baby. I am so angry!!!!

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
06-11-2017, 10:00 PM   #122
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Maya142's Avatar
Did it go any better this time?

Poor kiddo. I am keeping my fingers crossed that the new Humira formulation will be out soon. We were told this summer, so hopefully in the next few months.
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
06-11-2017, 11:32 PM   #123
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kimmidwife's Avatar
It was worse this time. Hoping we can get the buzzy soon.
06-12-2017, 04:05 PM   #124
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Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

My Support Groups:
Poor girl!
I think I told you with Grace, I had to just do it!
All the prep work (letting it come to room temp, numbing cream, buzzy. ..) just made her more worked up.
But still, you mention humira after all this time and she gets upset.
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
06-14-2017, 10:51 PM   #125
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kimmidwife's Avatar
A friend got her a buzzy! She sent it as a surprise to us today! Hoping it helps with the next dose.
06-14-2017, 11:01 PM   #126
my little penguin
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Join Date: Apr 2012

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Glad you got one
The wings (cold pack to freeze) are uselesss

Read the distraction. Techniques in the website
Remember the bee does not stop the medicine from burning
It distracts from the minor pain of the "stick"
Do you won't be disappointed

Add a lot of choice for her
She gets to decide where -what room what leg etc...
She gets to decide what movie to watch or lollipop to eat

Good luck
DS - -Crohn's -Stelara -mtx-IVIG
06-14-2017, 11:27 PM   #127
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Maya142's Avatar
Good luck!!

I agree on the choice - which thigh (or belly, if she wants to try that), which bandaid (we always got colored/cartoon band-aids and let them choose - they still do that!!), which TV show or movie, what treat after the shot (we'd usually make cupcakes or donuts or chocolate).

As MLP says, it won't take away the burn, just the needle poke. We ice before then use Buzzy - the wings were too small for us to make a difference.

Hope it really helps!!

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