Hi I'm new to this forum and hope I post this correctly. My son was diagnosed with Crohn's in 2011 and immediately was put on humira. He was scoped in 2014 and again I was told that it was Crohn's, but after that I felt something was not accurate. My son had a colonoscopy and endoscopy last week with a new GI and different hospital from where he was diagnosed. No finding of Crohn's and then had MRE no evidence of Crohn's. I stopped humira last July 2015 when the Prometheus blood report came back inconsistent of IBD. The new dr suggested that we wait a year to scope. During the year he lost over 60lbs and on the MRE shows enlarged liver and enlarged right kidney and endoscopy found submucosal lesion in stomach. He needs further testing. I'm lost and baffled at how he was originally diagnosed put on deadly medicine for a condition he does not have. Anyone else ever had this happen? And I'm scared about his weight loss enlarged liver and right kidney and lesion. Please help.
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