Hello All, and let me start by wishing you the best in your life and in fighting your Crohn's and any other illness.
Let me jump to the story,
I was diagnosed with Crohn's back in 2010 (I was 24-25 at that time) after a colonoscopy that followed years of rectal bleeding, pain, fever that comes and goes, and all symptoms you would expect in an immune system disorder-not to mention I also have psoriasis-. The Colonoscopy showed colitis -inflammation- in multiple areas of the rectum, the colon, large intestines, end of small intestines and possibly, as the doctor though, the small intestines would have been involved as well. Also there were numerous polyps in all these areas. The doctor's diagnosis at that time was Crohn's.
I still remember his words when he said "you should know that this disease only gets worse and you will end up needing multiple surgeries" He prescribed me a medication that I never took as I was in denial. Never went back to a doctor about it until july, 2015 when I had another colonoscopy that I didn't follow up with because of insurance issue, however, the diagnosis was still Crohn's, this time only of the small intestines, and the bleeding continued.
It wasn't until 1 month or so ago when I had a colonoscopy that showed no colitis whatsoever or even scaring of the intestines, and that the entire intestines were completely clear of any sign of an abnormality. It has been another month now and I see no blood in stool, no pain, no nothing.
The doctor was talking about spontaneous remission since I took no medications - apart from 2 weeks of Pentasa a long time ago- . However, wouldn't there be any signs in the intestines that Crohn's was at least there? scars? anything of such nature considering that I had Crohn's for years?
Was it a misdiagnosis in the first place? as I'm holding the two colonoscopy reports in my hand I wonder how did this come to be? Should I take any medication to stop it from coming back?, Do I expect the disease to attack again? and most importantly, Shouldn't have grown instead of just vanishing?
Thank you all in advance.
Let me jump to the story,
I was diagnosed with Crohn's back in 2010 (I was 24-25 at that time) after a colonoscopy that followed years of rectal bleeding, pain, fever that comes and goes, and all symptoms you would expect in an immune system disorder-not to mention I also have psoriasis-. The Colonoscopy showed colitis -inflammation- in multiple areas of the rectum, the colon, large intestines, end of small intestines and possibly, as the doctor though, the small intestines would have been involved as well. Also there were numerous polyps in all these areas. The doctor's diagnosis at that time was Crohn's.
I still remember his words when he said "you should know that this disease only gets worse and you will end up needing multiple surgeries" He prescribed me a medication that I never took as I was in denial. Never went back to a doctor about it until july, 2015 when I had another colonoscopy that I didn't follow up with because of insurance issue, however, the diagnosis was still Crohn's, this time only of the small intestines, and the bleeding continued.
It wasn't until 1 month or so ago when I had a colonoscopy that showed no colitis whatsoever or even scaring of the intestines, and that the entire intestines were completely clear of any sign of an abnormality. It has been another month now and I see no blood in stool, no pain, no nothing.
The doctor was talking about spontaneous remission since I took no medications - apart from 2 weeks of Pentasa a long time ago- . However, wouldn't there be any signs in the intestines that Crohn's was at least there? scars? anything of such nature considering that I had Crohn's for years?
Was it a misdiagnosis in the first place? as I'm holding the two colonoscopy reports in my hand I wonder how did this come to be? Should I take any medication to stop it from coming back?, Do I expect the disease to attack again? and most importantly, Shouldn't have grown instead of just vanishing?
Thank you all in advance.
