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Crohn's Disease Forum » Your Story » The mental an physical Pain


08-20-2016, 09:29 PM   #1
Megeraldo3
 
Join Date: Aug 2016
Location: Radcliff, Kentucky

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The mental an physical Pain

I do not have Crohn's, or IBS....but I do have a rectovaginal fistula with a ileostomy which has a huge para hernia in it. I have undergone 11 surgeries so far from March 2015 until this last one in june.for a gracilis muscle graft flap. I'm bleeding anal everday, my leg hurts so bad everyday an my hernia too. To top it off I have hypothyroidism an only one thyroid to regulate everything plus I'm on 2 iron pills a day for being anemic. It's all so overwhelming an im sorry depressed all the time. It's hard to do anything. I can't finish school I only had 4 mo. To go an my job working for the government had to let me go for having an ileostomy. They held my job for a yr but because it's not reversed I can't go back. I worked as a cook for our military troops an everything is so strict an that's in the contract. But also mr 2 drs, my gastrointestinal dr an my plastic surgeon won't release me to go back to work because I won't stop having infections an my hernia sticks out for far. It hard to be in public because everyone stares at me like I'm a freak. It's hard to clean my house because of my stomach an leg. I have a teenager daughter that don't help me out an can be so disrespectful an has put so much stress on me an my family she's 15 been in an out of court an day treatment programs an alternative schools an police for the past 2 yrs. My husband an i got married in Dec 2014 an never got to take our honeymoon because of all this happening. It was all caused by me getting my fyboids removed from my uterus an the Dr cut me. I can't do anything about it because this is apparently in the fine print of things that could happen in surgery an I signed it. I talked to many lawyers an they all say I have no case. I woke up from my first surgery with this gi dr telling me i have this fistula now. An it's been one thing after the other. Me an my husband fight alot now an it's hard to feel like I'm a burden in everyone's life. I don't really have alot of support. I actually have almost none. I cry myself to sleep all the time an I try to read the bible to keep myself from just letting go so no-one has to deal with me anymore. But I love life an im trying to fight for it. I have no-one to talk to about anything i feel so alone. That's why I'm trying this to see if talking to anyone might help...
08-22-2016, 02:41 PM   #2
ronroush7
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Location: vienna, Virginia

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I am sorry for all that you are going through. I hope you can get help soon. You have come to a great place for support. Let us know how you are.
08-22-2016, 04:26 PM   #3
Megeraldo3
 
Join Date: Aug 2016
Location: Radcliff, Kentucky

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Thanks, ronroush I really appreciate that an I am very greatful to have found this support group it has givin me comfort to be able to talk about this haunting condition. An know I can get through it as i see other people staying positive through their journey.
08-22-2016, 05:51 PM   #4
ronroush7
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