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Crohn's Disease Forum » Your Story » Remicade and Weight


08-25-2016, 08:54 PM   #1
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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Remicade and Weight

Hi everyone, I'm Laura and I'm 18 years old.
I've posted about this topic before but didn't get any answers, so I wanted to ask again. I'm currently now on 10 mg/kg of Remicade every 4 weeks (2 doses so far) and have increased from 5 to 7.5 to 10 mg/kg in the past year. I'm nervous because I keep gaining weight. I feel like it just keeps increasing. I've been recently starting to work out again because in high school, I was on the cross country and track team. I never used to worry about my weight because I'd be working out almost every day. Now, during the summer, I continue to gain weight. I'm getting nervous. I was wondering if anyone has been through this weight gain with Remicade, especially since my dosage and frequency has increased. Thanks.
__________________
19 year old female,
Crohns dx: March 2014 at 16 years old,
Past medications/treatment: 5 and 7.5 mg/kg Remicade every 4-8 weeks, Pentasa, EEN nutrition with Boost Plus (10 weeks), Prednisone
Current medication: 10 mg/kg Remicade every 7-8 weeks, 50 mg 6 MP daily, and vitamin D supplement

In remission!
08-25-2016, 09:16 PM   #2
lenny
Senior Member
My son has gained a lot since starting Remicade in April 2015, but he really needed to. He's about perfect now, so hopefully he won't gain too much more.
08-25-2016, 09:19 PM   #3
ronroush7
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Location: vienna, Virginia

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I have been on it and didn't gain weight. Are you on steroids.
08-26-2016, 07:01 AM   #4
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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My son has gained a lot since starting Remicade in April 2015, but he really needed to. He's about perfect now, so hopefully he won't gain too much more.
Yeah, my weight is pretty much perfect now as well, but I fear that I'm just gonna keep gaining more...
08-26-2016, 07:02 AM   #5
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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I have been on it and didn't gain weight. Are you on steroids.
No, I'm currently not. I have been in the past though.
08-26-2016, 07:13 AM   #6
Clash
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With CD when you have inflammation it can hamper nutrient absorption. When a med, remicade or otherwise, is effective at controlling that inflammation your body can once again absorb nutrients effectively.

If you happen to be underweight due to active disease then the med working allows for weight gain.

There are a number of kids here who were very under weight until remicade started working for them. Many have stunted growth due to CD robbing them of the ability to absorb nutrients so their vertical height as well as weight gain plays catch up.

If you feel that the weight gain is disproportionate to what you feel is normal then you might check with your GI to see if other patients experienced disproportionate weight gain.

I've read of members that have gained 20-30 lbs over the course of reaching remission. Of course, many of these members were under weight due to their active disease.
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
08-26-2016, 07:16 AM   #7
my little penguin
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Join Date: Apr 2012

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Your body may abd needed to catch up to normal
Which once a it healed from remicade it would do
Then it will slow down
Ds gained 20 plus lbs over three months after remicade kicked in
And eventually slowed down to a normal rate of weight gain

Also remember due to crohns most kids are still growing in height and weight well into their twenties vs their peers as the body catches up from be sick before

Please talk to your pcp/Gi
A bone age scan of your hand would let you know if your not growing anymore and your docs can help you determine if the weight gain is normal for your age etc....

Remicade itself does not cause weight gain
A healed gut just absorbs nutrients and calories easier
__________________
DS - -Crohn's -Stelara
08-26-2016, 07:44 PM   #8
lenny
Senior Member
In March of 2013 I believe my son got down to 79 lbs at 5'6" or 5'7". He's now 6'1" and weighs about 180.
08-26-2016, 09:17 PM   #9
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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In March of 2013 I believe my son got down to 79 lbs at 5'6" or 5'7". He's now 6'1" and weighs about 180.

How old was he then and now?
08-26-2016, 11:53 PM   #10
lenny
Senior Member
How old was he then and now?
16 and 19.
08-27-2016, 08:25 AM   #11
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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16 and 19.

And was he/is he on Remicade too?
08-27-2016, 12:12 PM   #12
Jaynie
 
Join Date: Aug 2016
Hi everyone, I'm Laura and I'm 18 years old.
I've posted about this topic before but didn't get any answers, so I wanted to ask again. I'm currently now on 10 mg/kg of Remicade every 4 weeks (2 doses so far) and have increased from 5 to 7.5 to 10 mg/kg in the past year. I'm nervous because I keep gaining weight. I feel like it just keeps increasing. I've been recently starting to work out again because in high school, I was on the cross country and track team. I never used to worry about my weight because I'd be working out almost every day. Now, during the summer, I continue to gain weight. I'm getting nervous. I was wondering if anyone has been through this weight gain with Remicade, especially since my dosage and frequency has increased. Thanks.
I have been on Remicade every 4 weeks for 8 & 1/2 years, I did gain weight with it until I had them discontinue giving me steroids before the Remicade was infused.
08-27-2016, 03:11 PM   #13
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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I have been on Remicade every 4 weeks for 8 & 1/2 years, I did gain weight with it until I had them discontinue giving me steroids before the Remicade was infused.

What was your dosage?
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