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Crohn's Disease Forum » Parents of Kids with IBD » Talk to me about your naturopath experience.


09-01-2016, 10:01 PM   #1
Pilgrim
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Talk to me about your naturopath experience.

I'm posting this here because I am making an appointment for my 5 yr old Crohnie. I want to hear your experience. It doesn't matter if it's a kid or adult experience but what treatments did you do and how did it work?
09-01-2016, 10:24 PM   #2
Maya142
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We went to an integrative medicine specialist, not a naturopath (so an MD). She did some sort of Lyme test that the FDA does not think is accurate.

Apparently, my daughter's was positive. So we did a month of Doxycycline (against the wishes of our pediatric rheumatologist, who told us again and again our daughter had juvenile idiopathic arthritis). No improvement of symptoms.

She also did some sort of blood food allergy testing. MANY things were positive but she'd never had a reaction to food that we could tell. The highest thing was gluten, so we cut that out and that made no difference at all for her.

She then said my daughter should visit a Lyme Specialist and be put on IV antibiotics. At that point, our rheumatologist made us see an infectious disease doctor who explained that if she had Lyme, it would have been treated. We also learned about the various Lyme tests.

Anyway, years later, we found out Doxycycline can trigger Crohn's...needless to say, I'm not happy we went. My daughter was absolutely miserable on Doxycycline (nausea, diarrhea) and did not get any better.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
09-02-2016, 04:55 AM   #3
my little penguin
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I know of food allergy families who have seen naturopaths
They were told to use NAET to "cure" their child food allergies
Only once they left and fed the kiddo the allergen - major reaction and epi pen needed.
Others have been tested by naturopaths for food allergies using IgG ( not IgE ) testing and told they must eliminate large amounts of food due to allergies .
Everyone makes IgG - it's suppose to be there and it was not a true your kiddo will have hives type of allergy

http://www.kidswithfoodallergies.org...d-allergy.aspx


So my kiddo will not see one ever
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DS - -Crohn's -Stelara
09-02-2016, 07:22 AM   #4
Farmwife
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We did this. I'm glad we tried.
It did nothing but set up back in her health and money.
I do believe there can be help in this area but not cures.

Let us know how it goes.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
09-02-2016, 09:01 AM   #5
Pilgrim
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Pretty dismal reviews. So, I'll keep my eyes open - without the rose colored glasses.

We're covered by insurance for the visit, we'll see how it goes.
09-02-2016, 05:28 PM   #6
Farmwife
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Wow, your insurance covers it? Impressive!

I didn't hate the visits but allot of vitamins, herds........
Just ended causing issues for grace.
Like aloe Vera .....
It's actually a well know irritant to the gi track but yet a lot of people push it.
If it works for them great but it made Grace worse.
Cumin can be great but wasnt for grace.
09-02-2016, 05:39 PM   #7
my little penguin
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Ginger is another one
Ds tried it
It works well for some
He got so much worse on ginger

Please remember just because it "natural" doesn't mean it's safe or won't cause harm or isn't a drug
Magnesium - that gives diarrhea

Most pharmaceutical are derived from "natural " things to make drugs
09-02-2016, 07:03 PM   #8
Maya142
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We tried fish oil, since it can have anti-inflammatory effects. What we weren't told is that it has blood-thinning properties and since my daughters were also on NSAIDs, they ended up with huge bruises, everywhere. Both their doctors told us to discontinue it.

However, my husband takes it (with an NSAID) and swears it works.

I'd just be careful and make sure to do your own research and check with your GI.
09-03-2016, 02:17 PM   #9
Charlotte.
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I'm visiting a naturopath currently, also using alternative treatment that he suggests. Is my saviour at the moment actually, no idea what I would do without that kind of treatments. The medication based section is anthroposophic / (homeopathy), the other section is eurythmie, autogenic training, meditation, special type of massage; also working with a very good dietician and products she recommends (sour milk product, kefir, certain probiotics; slightly see some effects even from the probiotics, had some side effects quite quickly and now seeing first results).
I feel a lot better emotionally, because he and my nutritionist really care and want me to feel better (well, my gastro as well I think, but she always is in a hurry and my GP only cares when something with my blood work is wrong, otherwise he doesn't really have an idea what to suggest, apart from taking a break from life kind of, going on holiday or something like that..., weird). They keep believing in symptoms getting better and me feeling better again though and they let me know that they won't stop searching and trying until I feel better.
Whenever I need to I can consult them both, also on the weekend, this gives me a very safe and supporting feeling.
For me, key is working with specialists who listen and work out an individual treatment plan for me, altering the plan when it is needed and keep believing that things will get better.
That's something my gastroenterologist isn't able to because she is too busy and has too many patients, too much reputation, too little time, no time to schedule out a very individual treatment plan.
I would recommend first thinking about what kind of treatment you would be interested in because there are tons of different treatments and nearly every person offering some kind of treatment will tell you it works but many might not work for Crohn's. My naturopath always tells me that it's an additional kind of treatment for me which enables my medication to work effectively, no more, no less. Maybe one day going off a drug might be an option, but actually this is not something I would ever think of, I would be so thankful to just be in remission one day, no need to get off the drugs if I don't have to.

Hope you can decide for a therapist that offers that kind of treatment that might be most beneficial for your kid. For me sympathy and feeling safe and comfortable is a big issue as well for really feeling that support and benefiting from it.
__________________
Crohn's Disease: diagnosed 2014 (at 24), symptoms for 10 years now
Enteropathic Arthritis, Sacroliitis, Osteopenia

Stelara; Uceris; Lansoprazole; Domperidone.

Previously: Remicade, Humira, Simponi, Azathioprine, Methotrexate, Sulfasalazine, Entocort, Uceris, Prednisolone, TPN, EEN, different alternative treatments.
09-05-2016, 09:01 PM   #10
Pilgrim
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Thanks, Charlotte. I'm not totally sure what we're after. We've tried a few very restricted diets. I know I am not really dreaming of no meds. Maybe just looking for something that will help us from having to ramp up the meds. Seems like we always have to escalate treatment and she's so young.
This naturopath has a "Dr." title, studied microbiology and immunology and went to a good university. She's accredited and licensed.
I'm so glad it's helping you. I'll post here after her appointment next week.
09-05-2016, 09:49 PM   #11
my little penguin
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Pilgrim
I thought she was increasing humira since her FC was very high and her scope showed inflammation ?
It's not uncommon for younger kids to burn through meds
Their bodies /immune system is rapidly changing adapting vs adults which is in more of a stable state .

Good luck at the appt
09-06-2016, 06:19 AM   #12
Pilgrim
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She has increased the Humira, MLP, that is right. Plus we added a course of Entocort. I have this appointment for her right after the taper of Entocort is finished.
We're repeating fcal this month.
Never seen her so well, so worried about the taper.
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