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Crohn's Disease Forum » Treatment » Remicade/Infliximab » Moving From Humira to REMICADE


 
10-09-2016, 04:54 PM   #31
Honey
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Hi Tony,
I hope all goes well for you and you feel better soon, and get home. Love the photo, I am a keen photographer myself.
Best wishes.
10-10-2016, 05:46 AM   #32
Tony H
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Thanks Honey , seem to be all rehydrated today , so better able to deal with the cramps and bms , just waiting for the big guns to arrive and assess me , I'm on tender hooks waiting because the surgeons were hovering around at the weekend giving me options
At least im in a nice room with a lovely view so that does help .
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10-10-2016, 01:30 PM   #33
Honey
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Hi there,
hope the news is good and you start to feel better, and stronger. I was in hospital for sometime a few years ago because of side effects of meds. It is a necessary evil until they make things improve for you, but one would rather be at home! Get well soon.
10-11-2016, 12:44 AM   #34
Tony H
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Had a good afternoon yesterday , night not so good , upping the dose of remicade this morning , here hoping .


10-11-2016, 12:45 AM   #35
ronroush7
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Hope it helps

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
10-11-2016, 01:37 AM   #36
Tony H
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thanks Ron im up early , you're up late the joys of ibd , how are you doing at the moment ?
10-11-2016, 03:49 PM   #37
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Thanks, Tony and Layla. Knowing people who have made the switch makes it easier.

I'm thinking seriously about going to Remicade just so I can retire. Humira is still working, but I can't afford my after Medicare portion after retiring. Plus I'd have to come up with 7 or $8000 in January and February just to blow through Medicare's catastrophic coverage.

I know it's not smart, and I know there's risks, but I have been on concrete factory floors for 42 years and I have bone spurs and arthritis in my feet. Big Pharma greed shouldn't prevent a person from retiring, damn it.
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10-11-2016, 05:09 PM   #38
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Hi Tony, I have been reading your posts today because my GI is talking about switching me from Humira to Remicade because the Humira doesn't seem to be working on me. I was on it years ago and ran into insurance problems and wasn't able to get it, so I was off for over a year. I just got back on a few months ago and I haven't seen any difference in my symptoms on it this time. I was diagnosed in 2010, but had never been sick before in my life, so all this doctor stuff is really new to me. I hope things get better for you soon. I feel like I am flying blind in the dark with all of this, and then I see you and you have been dealing with it for so many years and my issues seem so small. My prayers are with you.
10-11-2016, 07:53 PM   #39
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Hello,

I went from remicade to humira. I went to humira because I had an allergic reaction to the remicade. Otherwise remicade worked really great for me.
10-12-2016, 04:00 AM   #40
Tony H
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I had the remicade infusion yesterday , doubled it to 10 mg/kg , had a better night , only one at 4 am , then 2 more from 7 to 8 am , and all quietish since then , I'm still on the iv antibiotics (flagyl and piperacillin ) and hydrocortisone ,
I feel very weak this morning , I presume its the remicade effect ,
thats the end of my update , hope everyone is feeling a little better .
10-12-2016, 02:14 PM   #41
Layla
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Hope the doubling of the dose works for you!
My second dose has been delayed because of a junior doctor strike so I don't get it until next Tuesday! Which is a bit of a pain as I'll be working on Wednesday so I hope I'll get some sleep this time.
I'm otherwise fine, getting by on immodium and/or codeine.
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Diagnosed with UC in 1994, CD in 2014, "IBS" in between
Lactose intolerant, IgA deficient and Arthritis.
Resection due to strictures in 2014
Currently taking: amitriptyline, zinc, multi vitamin, b12 shots, Vit D, B complex, magnesium, calcium, Psyllium and the occasional iron infusion, probably sarting a medical trial soon

Previously on Remicade, Humira, Prednisone, Azathioprine, MTX, Pentasa, Asacol, Salofalk
10-12-2016, 02:14 PM   #42
Layla
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ps, meant to say lovely view, I've been to Cork years ago and liked it a lot
10-12-2016, 02:15 PM   #43
ronroush7
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Hope the doubling of the dose works for you!
My second dose has been delayed because of a junior doctor strike so I don't get it until next Tuesday! Which is a bit of a pain as I'll be working on Wednesday so I hope I'll get some sleep this time.
I'm otherwise fine, getting by on immodium and/or codeine.
I hope good things for you.

10-12-2016, 06:20 PM   #44
Tony H
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Hope the doubling of the dose works for you!
My second dose has been delayed because of a junior doctor strike so I don't get it until next Tuesday! Which is a bit of a pain as I'll be working on Wednesday so I hope I'll get some sleep this time.
I'm otherwise fine, getting by on immodium and/or codeine.
Has a much better day yesterday ,cramps have all but gone and the time between my last two bms was nearly 8 hours, so the double remicade looks like its kicking in ,
sorry to hear your second infusion has been delayed , hope it goes as well as mine "seems to have"
I dont know how you can work when you are feeling so unwell , best wishes from a lovely night in Cork ,
nice to know you have been here and liked it , its a nice compact little city with lots to do all within walking distance .
10-14-2016, 02:39 AM   #45
Layla
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Has a much better day yesterday ,cramps have all but gone and the time between my last two bms was nearly 8 hours, so the double remicade looks like its kicking in ,
sorry to hear your second infusion has been delayed , hope it goes as well as mine "seems to have"
I dont know how you can work when you are feeling so unwell , best wishes from a lovely night in Cork ,
nice to know you have been here and liked it , its a nice compact little city with lots to do all within walking distance .
I guess I'm really lucky in that I don't have that much pain. I did when I was initially diagnosed, the cramps were killing but now it's really just D and fatigue with the occasional cramp. Oh and some pesky fissures. Just heard today that I'll also be having an iron infusion when I go for the next Remicade, hopefully that will help with the fatigue and breathlessness.
I also don't look ill at all, my bloods are mostly good and am not losing weight, but inside the strictures are forming and I'm losing a lot of blood, hence the Remicade.
I only work around 3 days a week, I couldn't cope with full time work, haven't for years. Have you?

Are you still in hospital? If so, I hope you'll be out soon, despite the view
10-14-2016, 06:26 AM   #46
Tony H
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Hey Layla , still in hospital , hasn't been the the best 24 hours , bms are frequent again , at least 10 yesterday and 8 and counting today , the latest from the docs is that if it gets much worse that surgery is looking more likely ,
haven't worked in years , you think you can go back and all of a sudden you are back where you started again , charging for the toilet
Really hope that the iron infusion and the remicade will give you some relief .

the view is still great but as they say its a nice soft day today, (its raining)
10-15-2016, 04:07 AM   #47
Tony H
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Well surgery it is , , my GI was just in and Im just waiting on the surgical team to set the time , a bit shocked but if all goes well my quality of life should be a lot better .
10-15-2016, 07:48 AM   #48
ronroush7
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Hope the best for you.

10-15-2016, 08:55 AM   #49
Tony H
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thanks Ron appreciate the support , will be seeing the main surgeon monday and if all goes as planned , surgery as soon as possible .
10-15-2016, 08:57 AM   #50
ronroush7
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Keep us updated

10-15-2016, 07:55 PM   #51
Layla
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Well surgery it is , , my GI was just in and Im just waiting on the surgical team to set the time , a bit shocked but if all goes well my quality of life should be a lot better .
Hey Tony, sorry to hear that!
But yes if it helps your quality of life it's worth it.
I had surgery 2 years ago now and what a relief it was to be able to eat without fear of strictures.

Hope it all goes well!
10-19-2016, 07:15 PM   #52
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Hey Tony. Sorry to hear about your set back. Man , they did same thing to me. Released me too early... You take care. never. Ever. give up.
10-19-2016, 08:43 PM   #53
ronroush7
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My dermatologist told me that Remicade is stronger than Humira.

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