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Crohn's Disease Forum » Parents of Kids with IBD » Another year older and a new Dx.


 
12-21-2017, 06:20 PM   #181
my little penguin
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Same here
Non ibd kiddo who is “normal “ 101 is a fever

Ibd kiddo due to biologics and immunosuppressants (therefore shouldn’t run a fever ) anything over 100.4 F requires a call

That said raising temp during an infusion is different than a”fever” due to illness .
Same with raising bp etc...
These are signs of distress of the body during the infusion on how well it’s tolerating it
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12-21-2017, 08:28 PM   #182
Farmwife
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I should have clarified, the fever was just for the infusion.
No other symptoms of illness before or after. Just during the infusion.
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
Azathioprine
12-21-2017, 09:33 PM   #183
DanceMom
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A's infusions were obviously different than Grace's, but some fluctuation in temp and BP was expected. A temp of 100 would not have been a cause for concern.
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Diagnoses: Immune Dysfunction, Hypogammaglobulinemia, Asthma, Allergies

Treatment: Hizentra, Flovent, Zyrtec, Cellcept
12-22-2017, 03:59 PM   #184
kimmidwife
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I would definitely keep an extra eye out the next infusion. Caitlyn’s reaction to imuran started with just a fever.
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Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
12-25-2017, 02:43 PM   #185
Farmwife
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Merry Christmas and Happy New Year, 2017!

The little farmgirl loved her gifts and demanded to take her baby to show her grandma!
She named the baby after same grandma while getting another mountain of gifts.
It looks like Christmas grave yard in my house. 3 garbage bags full of wrapping and boxes and still there's more.

May you all make some wonderful memories this holiday season
12-25-2017, 02:55 PM   #186
kimmidwife
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So glad she loved it!!!! Happy holidays!!!
12-25-2017, 10:06 PM   #187
Maya142
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Aw glad she liked her "baby" . Hope she had a wonderful day!!
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diagnosed with Crohn's Disease at 16
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Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
12-26-2017, 04:34 PM   #188
Pilgrim
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Just wait until you hear all of your lessons repeated to the baby doll! Sometimes I listen to the girls play, and think, "Do I really sound like that?!"
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Crohn's Disease Forum » Parents of Kids with IBD » Another year older and a new Dx.
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