Share Facebook
Crohn's Disease Forum » Your Story » Runs in the Genes


02-19-2017, 06:44 AM   #1
rogerramjet365
 
Join Date: Feb 2017
Location: Huntingdon, United Kingdom
Runs in the Genes

I have had Crohn's for about 25 years but misdiagnosed for the first 5 or so. I also have Uvitus as a linked condition, Bronchectasis, and Pulmanary Fibrosis.
my Sisters child also has Crohn's and my son has Psoriasis. I think the immune system is responsible for both Crohn's and Psoriasis. I had been on Imixaflab for about a year when the hospital changed for a cheaper version and then I broke out in Psoriasis all over my body. The hospital changed me back and it cleared up, they though the changed triggered a marker in my body.
But now I have started itching and have bumps all over my back, armpits and lower tummy and bottom.
I hav rread a few items on this site but wondered what i could do to relive this which is worse at night and keeps me awake.
Thank You.
P.s I joined this site today!
Attached Images
File Type: jpg Roger2 new years eve 2014.JPG (46.6 KB, 38 views)
02-19-2017, 07:38 AM   #2
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Welcome. I have psoriasis and Crohns also. Humira seems to be helping with the.itching. I am not sure if it is helping with the Crohns yet. Everyone is different. I wish you the best
__________________
Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
02-19-2017, 10:49 AM   #3
eleanor_rigby
Senior Member
 
Join Date: Aug 2012
Location: Cheshire, England, United Kingdom

My Support Groups:
Hey, for psoarisis I use dovobet prescribed by the doctor and nettle moisturiser.
__________________


2nd Generation affected

Symptoms since 2006 (age 17)

Emergency open bowel resection after perforation in 2011 (age 22) (wrongly diagnosed as burst appendix ). Three years remission following this unmonitored

DX with perforating small bowel Crohn's Disease 01/2016 (terminal ileum, duodenum) and coeliac disease (age 26)

Meds:
75mg azathioprine
Gluten-free diet
02-19-2017, 11:21 AM   #4
Tuff
Senior Member
 
Join Date: Feb 2013
Location: Ontario

My Support Groups:
Welcome to the forum. I have Crohn's, excema and allergies. They're probably all related. In Europe they use light therapy for psoriasis. Blue LED lights, or just plain sunshine. Excema and psoriasis seem to get worse in the winter. I'm on Betaderm, which is a topical corticosteroid.
__________________
Inflammatory bowel disease may more than double the risk of a serious blood clot in the legs or lungs.
************************************************** ********************************************

Stelara, Warfarin, calcium, Vitamins B12, D.
Previously: 5-Asa, Cipro, Flagyl, Prednisone, Aza, Remicade.
Pulmonary Embolism, DVT's, osteopenia, Peripheral neuropathy.
02-19-2017, 10:35 PM   #5
Hypocrohniac
 
Hypocrohniac's Avatar
 
Join Date: Feb 2017
Hello & welcome! My husband and his family all suffer terribly from psoriasis too. Mostly on his face (eyelids, between his eyebrows and either side of his nose), but his arms and legs are affected too. He gets as much sun exposure as he can, and gets the most relief from humid climates - he travels to Thailand as much as possible.
Medication-wise he gets the most benefit from Elidel. My kids are prone to eczema too. I try to keep the creams in the fridge so they can get some cool, soothingness.
Can you bare your bum in the outdoors?
02-19-2017, 10:50 PM   #6
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Also, my psoriasis is not only on my skin but in my scalp and my dermatologist has me using shampoo with tar in it.

02-19-2017, 11:47 PM   #7
cmack
Senior Member
 
cmack's Avatar
 
Join Date: Aug 2014
Location: British Columbia

My Support Groups:
Welcome Roger,

Maybe an antihistamine would help? I take Chlorpheniramine Maleate tablets 4mg. It helps bee stings and itchy hives.

Maybe give it a go it is OTC. I have never had a side effect. You should call the pharmacist and see if it agrees with your current meds.
02-19-2017, 11:50 PM   #8
cmack
Senior Member
 
cmack's Avatar
 
Join Date: Aug 2014
Location: British Columbia

My Support Groups:
calamine lotion is another option.

Best regards,

cmack
02-19-2017, 11:57 PM   #9
cmack
Senior Member
 
cmack's Avatar
 
Join Date: Aug 2014
Location: British Columbia

My Support Groups:
Roger,

I have also put a cup or so of baking soda in my bathtub before bed and had a good soak. That helped as well.

Hoping the irritation gets better,

cmack
02-20-2017, 02:31 PM   #10
cmack
Senior Member
 
cmack's Avatar
 
Join Date: Aug 2014
Location: British Columbia

My Support Groups:
Welcome to the forum. I have Crohn's, excema and allergies. They're probably all related. In Europe they use light therapy for psoriasis. Blue LED lights, or just plain sunshine. Excema and psoriasis seem to get worse in the winter. I'm on Betaderm, which is a topical corticosteroid.
Betaderm worked for my mystery skin irritation last year. It itched so bad I couldn't sleep either. It really was quite bad. After several nights of no sleep it really gets to you! I also have hay fever. My doctor said that crohn's, allergies and skin ailments tend to go together.
02-20-2017, 05:24 PM   #11
Hypocrohniac
 
Hypocrohniac's Avatar
 
Join Date: Feb 2017
Oh, I just remembered that I take Phenergan when I get an attack of the savage itches. Not sure how it interacts with other meds though...
02-20-2017, 08:25 PM   #12
cmack
Senior Member
 
cmack's Avatar
 
Join Date: Aug 2014
Location: British Columbia

My Support Groups:
Hello & welcome! My husband and his family all suffer terribly from psoriasis too. Mostly on his face (eyelids, between his eyebrows and either side of his nose), but his arms and legs are affected too. He gets as much sun exposure as he can, and gets the most relief from humid climates - he travels to Thailand as much as possible.
Medication-wise he gets the most benefit from Elidel. My kids are prone to eczema too. I try to keep the creams in the fridge so they can get some cool, soothingness.
Can you bare your bum in the outdoors?
I have bared my bum in the outdoors before. LOL
02-24-2017, 10:39 AM   #13
rogerramjet365
 
Join Date: Feb 2017
Location: Huntingdon, United Kingdom
Hey, for psoarisis I use dovobet prescribed by the doctor and nettle moisturiser.
Thank you for the advice and hope you are ok?
02-24-2017, 10:44 AM   #14
rogerramjet365
 
Join Date: Feb 2017
Location: Huntingdon, United Kingdom
Hello & welcome! My husband and his family all suffer terribly from psoriasis too. Mostly on his face (eyelids, between his eyebrows and either side of his nose), but his arms and legs are affected too. He gets as much sun exposure as he can, and gets the most relief from humid climates - he travels to Thailand as much as possible.
Medication-wise he gets the most benefit from Elidel. My kids are prone to eczema too. I try to keep the creams in the fridge so they can get some cool, soothingness.
Can you bare your bum in the outdoors?
Thank you, i am tryig e45 cream and antihistamines.
Never tried the bum outdoors, sounds interesting
02-24-2017, 12:16 PM   #15
GI Jane
Senior Member
 
GI Jane's Avatar
 
Join Date: Jan 2017
Location: Yakima, Washington

My Support Groups:
I know when I'm going crazy from the itching after my shower I put straight Organic Coconut Oil all over my skin and that helps.
Reply

Crohn's Disease Forum » Your Story » Runs in the Genes
Thread Tools


All times are GMT -5. The time now is 09:01 AM.
Copyright 2006-2017 Crohnsforum.com