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Crohn's Disease Forum » Your Story » So unsure how to move forward


02-20-2017, 09:16 PM   #1
Momkar
 
Join Date: Feb 2017
Location: Washington
So unsure how to move forward

I am s 59 female who has had Crohn's for 25 years
Until this last year it manageable and I was fine 90%
of the time
I now have extreme narrowing in my Illiem,
A partial blockage and a lot of inflammation
I started Humira and Azathioprine at the end of December.
My doctor now wants to up my prednisone to 40 mg start remicade and put me on TPN for 7 weeks.
I am terrified of TPN and feeling like an invalid
I also have no idea what happens after the TPN
Am I better off having surgery?!!
Any insight would be appreciated
02-20-2017, 09:31 PM   #2
cmack
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Location: British Columbia

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Welcome Momkar,

I am glad you came here. There are a lot of very kind and helpful folks on this forum. I don't personally have the answers, but I think if you explore the forum and its various threads you will find useful info. If nothing else you can have my support, and that of our other members.

I hope you get some answers soon,

cmack
02-20-2017, 10:03 PM   #3
ronroush7
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Welcome. Everyone is different. I don't know what your doctor has in mind after the TPN. I was in the hospital three times in 2010. Somewhere in between hospital visits, it was decided to put me on TPN . It was also decided that surgery needed to be done to remove a fistula. I hope that the medication will help with your situation. Please let us know how you are.
__________________
Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
02-22-2017, 10:16 PM   #4
Lady Organic
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I'd go for it! Humira and Imuran can take up to months to be effective. Your dr is trying every best possible options in the meantime to try to induce a fast remission (pred and TPN). Good luck.
__________________
''UC-like Crohn's'' since 2001:
on: 25mg 6-MP (purinethol)+ B12 shots
minor hands/wrists chronic arthritis since 01/2013

Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA, cortifoam, Imuran (failed) Purinethol (success) methotrexate (failed CD and arthritis).
02-22-2017, 10:32 PM   #5
cmack
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Never give up! You can beat this!
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