I have had stomach/intestinal issues since my teens. I am now almost 36 years old and was just diagnosed with Crohn's a little over a year and a half ago. I had gotten to the place that I thought I was going to die. The pain was excruciating! I was hospitalized and had a colonoscopy that showed Crohn's in the terminal ileum. I was put on prednisone and followed up with my GI to figure out what treatment. I was in the process of getting insurance and it took a while. I was on prednisone for six months. I still continued to have some symptoms, though not as bad. My GI acted puzzled and said I should be in total remission. I got put on Remicade in March, and things seemed to be getting better. In July, I started having terrible pain again but not very much diarrhea, I now was dealing with some constipation. The pain got so bad I was hospitalized again, but nothing was showing up in blood work etc...I received another colonoscopy which came back clear, so my GI said I had IBS as well, and put me on nortriptyline. Things gradually got better and by January of this year I was feeling great for the first time in a long time. Then I got type A flu, and as the flu symptoms were getting better, I started getting Crohn's symptoms again. It has been about six weeks, and the pain has gotten intolerable again. My pcp did blood work, u/a, Ct and everything looked good. My GI said it must be IBS flaring up and told me to take a probiotic for two weeks. He said they could scope me again but just does not think it is Crohn's since last July the colonoscopy was clear. It does not feel like IBS to me. The pain yesterday was such a constant deep searing pain all day. Could it still be a Crohn's flare in my small bowel and the tests are all missing it? I have a call in to my GI to see if they will do the capsule endoscopy to check my small bowel. It's very frustrating!
Last edited:
