Crohn's Disease Forum » Treatment » Remicade/Infliximab » Severe sinus issues


03-17-2017, 11:56 AM   #1
Ships
 
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Severe sinus issues

When I first stared remicade I got 3 sinus infections with like 5 days of relief between antibiotics, after the third round I had a week or so of relief and then I started having issues again. My nose is dry and stuffed and cracks and bleeds. There was an issue with my remicade and I ended up needing to switch infusion centers and while I was waiting to switch and already a week late the pressure got so bad I ruptured both of my ear drums and ended up on antibiotics so I got my infusion almost a month late, but there was over a week I wasn't on antibiotics and my nose was fine. Now a week after my infusion my nose is stuffed and dry and awful.

Has anyone dealt with this before? Is there something that can help? If the trade off is my crohns symptoms are better for my nose being awful it's still worth it, but I do enjoy the ability to breathe through my nose.
03-17-2017, 01:51 PM   #2
ronroush7
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Sorry for what you are going through.

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
11-18-2017, 12:03 PM   #3
Adelina
 
Join Date: Nov 2017
Location: France
Hello Ships,

I have exactly the same side effect as you but I haven't found the solution yet. One of my gastro told me to use antibiotics cream inside my nose but it didn't work and I simply couldn't breathe. During winter, I use a lot of corticosteroids spray in my nose but it doesn't change anything.
Overall I haven't find a cure yet but I'm going to try nasal spray with essential oils.
If you find anything don't hesitate to tell me because I'm suffering from the exact same side effect as you and I could easily do without it
11-18-2017, 01:35 PM   #4
Ships
 
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I used a nasal saline spray often, and Vaseline Iím my nose helped a lot, but it didnít totally clear up until I was late on my infusion by a couple weeks, and I havenít had an issue with it since. I just donít think it was clearing up so it would come back with every infusion if that makes since.

For relief from the symptoms what worked best for me was using arm and hammor nasal saline as often as I needed too. Once the saline dried I would put Vaseline on a q-tip and generously put it in there. I only used the antibiotic ointment first thing in the morning because it would always dry up crusty and make it hurt.
11-18-2017, 04:39 PM   #5
Lady Organic
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Did you consult and ENT dr?
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''UC-like Crohn's'' since 2001:
on: 25mg 6-MP (purinethol)+ B12 shots
minor hands/wrists chronic arthritis since 01/2013

Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only
suppl Curcuminoid extract, Inulin,psyllium, apple pectin, Vitamin D

past meds:
pred 50mg, 5-ASA, cortifoam, Imuran (failed) Purinethol (success) methotrexate (failed CD and arthritis).
04-04-2018, 10:19 PM   #6
TxGrizzlyBear
 
Join Date: Mar 2018
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Oy veh! I am about to start remicade and already have Obstructive Sleep Apnea! If I can't breath this is going to get interesting as I do sleep with a cpap. I guess I am about to find out how it effects me.
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In Montgomery County, Texas
Diagnosed Crohn's March 2018
Starting Remicade 4/13/18
Already on:
...Cholestyramine
...EnteraGam
...Budesonide
...Viberzi
...Paroxetine
Also have:
...GERD
...Gout
...Obstructive sleep Apnea
...Depression/Anxiety
04-11-2018, 07:18 PM   #7
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It wasnít the remicade, the problem started up again in December, and thatís when I had my last infusion, but itís still going on, so itís a me problem not a med problem lol.
04-12-2018, 09:04 AM   #8
TxGrizzlyBear
 
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It wasnít the remicade, the problem started up again in December, and thatís when I had my last infusion, but itís still going on, so itís a me problem not a med problem lol.
I understand .. I have similar problems. Prior to CD diagnosis, I am used to have sinus infection twice a year .. when South Texas goes from Summer to Winter and then when it goes back. We only have the two season down here! LOL
04-13-2018, 04:06 PM   #9
Ships
 
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Yeah, Iím in Northern Nevada (not Vegas), and I think between it being such a dry climate and the weather changing every other day, it is rough. Itís dry and crusty and bloody painful and I feel like a snot factory! Itís kicking my ass!
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Crohn's Disease Forum » Treatment » Remicade/Infliximab » Severe sinus issues
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