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Crohn's Disease Forum » Treatment » Stelara/Ustekinumab » Ustekinumab infusion duration


04-01-2017, 03:33 PM   #1
littlemissh
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Join Date: Dec 2010
Location: United Kingdom

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Ustekinumab infusion duration

I have just had ustekinumab approved for me in the UK as nothing else is helping much.

I have been told the first loading dose is an infusion. I wondered how long it takes and how long you have to be observed afterwards? I will be the first to have it in my hospital and so the doc/IBD nurse cant give me any detail.

Also any obvious side effects with the infusion or afterwards?

Thanks
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Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.
04-02-2017, 06:54 AM   #2
woops!
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Join Date: Apr 2010
Location: Virginia
Infusion is weight based, so different for everyone. Mine took 1 1/2 hrs, I had no side effects. They watched for 30min after and then I went home. I'm in USA, not sure if they will do it different in UK. good luck. It did take 6 weeks for any improvements with me.
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04-19-2017, 11:05 PM   #3
Pam48
 
Join Date: May 2013
If this is the same as Stelara I had my first dose on Monday. It took about an hour. Total time at the doctors office was about 90 minutes, the rest was going over the procedure and answering questions. I had no side effects. I drove myself from work and when it was over went directly back to work. That did surprise the nurse, she said most people just take the day off.
08-06-2017, 03:09 PM   #4
Idiom
 
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Join Date: Aug 2013

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I have just had ustekinumab approved for me in the UK as nothing else is helping much.

I have been told the first loading dose is an infusion. I wondered how long it takes and how long you have to be observed afterwards? I will be the first to have it in my hospital and so the doc/IBD nurse cant give me any detail.

Also any obvious side effects with the infusion or afterwards?

Thanks
Hi there, I have recently been offered ustekinumab in the UK.

I wondered if you could share your experience of it and how you came to be on it?

Many thanks.
08-08-2017, 02:53 PM   #5
newdiagnosis
 
Join Date: May 2017
I chose it because I thought it had the least side effects. No side effects so far...just mild headaches rarely, although that could be associated with the low dose prednisone I am on.
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